Julia's/Dia's Medical Fund.
Donation protected
Hi anyone looking at this :) There are a ton of these floating around and it took me a while to make one. Out of fear that no one would care.
Right now, I'm hoping someone will.
Forgive me, I type a lot when I'm emotional.
My name is Julia, and I live in South Carolina with my roommate Suzanne. A little over 6 years ago I was diagnosed with Lupus and Fibromyalgia but was unable to be treated due to a domestic situation that left me stranded. Suzanne took me in, helped take care of me, made sure I ate when I was too sick to cook, and when she was offered a promotion in FL we drove across country, so she could take it. We arrived in January of 2011 and Since then, I've gotten the 'offical' Lupus SLE and Discoid diagnosis along with Fibromyalgia and Chronic Fatigue Syndrome, in Aug of 2013. Recently I've developed what we think is Orthostatic Hypotension, meaning I stand up, get dizzy, think I'm ok and take a few steps and faint. Everyone has had at least the stand up get dizzy part happen, for most it goes away in a few seconds. For me, it doesn't stop. I have to sometimes hand grip my way from my room to the bathroom, clinging to the walls and doors to stand up, a whole total of 18 feet, during which I pray I don't fall. In the middle of all this, I'm also recovering from early onset (think infant age) PTSD and seeing a Therapist and a Psychiatrist, who are helping with all the issuses that come with non-combat based PTSD (extreme anxiety, insomnia, hyperawareness, OCD, abandonment fears, rejection fears and fear of physical trauma at all times, so like combat PTSD but you've been 'at war' with yourself, really and your past, your whole life .)
I set the donatation total at 10k, that doesn't even cover a year really, and I'm scared. I've been told to up it, but I'm scared to that too. I don't want people to think I'm greedy. In 7 years Suzanne has spent over 80k on just keeping me alive asking nothing from me but friendship. She and I could use the help. I don't wanna die and watching her struggle so hard and break down and cry is tearing me apart inside.
None of these illnesses mean I'm lazy. What they do mean is that some days I can't get out of bed, that it hurts to move and I'm on a lot of medication :( I no longer want to hide behind my illnesses, I want the freedom to plan things and commit and show up, the energy to move around, the drive to join a community and be useful. Right now I can't and I feel helpless and afraid.
It also means that this woman, who is not my family nor my lover, who is just a friend, has spent about 7 years putting her heart and soul and health on the line to make sure that I stay alive. I know how much it costs to do so, and I was never her burden to take on.
She does what she does purely because she loves me and is one of my closest friends and doesn't want to see me starve or homeless or just waste away and die.
She took me to PT today and when we got home, burst in to tears because she isn't sure she's going to have enough to cover insurance and rent and everything else and SHE feels like she's dissapointed me. No, but I feel I've let her down by not being able to help. I was a responsiblity she took on out of pure, selfless love. Please help me help her, give her some stable ground to stand on and hopefully in the process keep me around longer too. I am awaiting disablity results, but I've been turned down once, and they normally do so three times, then a hearing. Once I get it, if I get it, I can take some of the burden off her.
We need help as soon as possible, for both our sakes, please? I don't want to watch her break in half emotionally because she thinks she's letting me down and honestly, with out her I'd already be dead and I don't want to be dead, not even a little bit.
I'm fighting tooth and nail to get my life back, to get control of my body back, from over 129 lbs of weight lost in a year and 4 months to Physical Therapy to help teach my body what to do again, how to hold itself up. How to eat correctly so I don't make things worse by gaining weight. The more I help make myself well, the easier this all becomes on the both of us
I am ok having these illnesses, but they no longer get to have me. So that all her efforts (along with any one else who's helped or helps along the way,) weren't in vain. I will not let her efforts (or yours should you choose to help) go to waste. EVER. I want to get healthy enough to have a job, pay my own way, and be free from what feels like a wall of imperatrable illness in front of me. I plan to be on disabilty no longer than I absolutely have to. I plan to one day move over the Atlantic to marry the man I love. But I have to heal first, and Suzy has tried so hard but she can't do it alone.
I'm trying to offset as much as I can as I do sell cosmetics via website, nice ones at that, but I can't link it here, please feel free to ask me though if you'd rather help us by helping me earn a living,
The writing tips say to tell you to say how thankful I'll be. I can't even put that in to words. Eternally? Is that the right one? You'll be helping save two lives with your donations. I could never say thank you enough.
Julia
If you can't help, please pass it on.
Right now, I'm hoping someone will.
Forgive me, I type a lot when I'm emotional.
My name is Julia, and I live in South Carolina with my roommate Suzanne. A little over 6 years ago I was diagnosed with Lupus and Fibromyalgia but was unable to be treated due to a domestic situation that left me stranded. Suzanne took me in, helped take care of me, made sure I ate when I was too sick to cook, and when she was offered a promotion in FL we drove across country, so she could take it. We arrived in January of 2011 and Since then, I've gotten the 'offical' Lupus SLE and Discoid diagnosis along with Fibromyalgia and Chronic Fatigue Syndrome, in Aug of 2013. Recently I've developed what we think is Orthostatic Hypotension, meaning I stand up, get dizzy, think I'm ok and take a few steps and faint. Everyone has had at least the stand up get dizzy part happen, for most it goes away in a few seconds. For me, it doesn't stop. I have to sometimes hand grip my way from my room to the bathroom, clinging to the walls and doors to stand up, a whole total of 18 feet, during which I pray I don't fall. In the middle of all this, I'm also recovering from early onset (think infant age) PTSD and seeing a Therapist and a Psychiatrist, who are helping with all the issuses that come with non-combat based PTSD (extreme anxiety, insomnia, hyperawareness, OCD, abandonment fears, rejection fears and fear of physical trauma at all times, so like combat PTSD but you've been 'at war' with yourself, really and your past, your whole life .)
I set the donatation total at 10k, that doesn't even cover a year really, and I'm scared. I've been told to up it, but I'm scared to that too. I don't want people to think I'm greedy. In 7 years Suzanne has spent over 80k on just keeping me alive asking nothing from me but friendship. She and I could use the help. I don't wanna die and watching her struggle so hard and break down and cry is tearing me apart inside.
None of these illnesses mean I'm lazy. What they do mean is that some days I can't get out of bed, that it hurts to move and I'm on a lot of medication :( I no longer want to hide behind my illnesses, I want the freedom to plan things and commit and show up, the energy to move around, the drive to join a community and be useful. Right now I can't and I feel helpless and afraid.
It also means that this woman, who is not my family nor my lover, who is just a friend, has spent about 7 years putting her heart and soul and health on the line to make sure that I stay alive. I know how much it costs to do so, and I was never her burden to take on.
She does what she does purely because she loves me and is one of my closest friends and doesn't want to see me starve or homeless or just waste away and die.
She took me to PT today and when we got home, burst in to tears because she isn't sure she's going to have enough to cover insurance and rent and everything else and SHE feels like she's dissapointed me. No, but I feel I've let her down by not being able to help. I was a responsiblity she took on out of pure, selfless love. Please help me help her, give her some stable ground to stand on and hopefully in the process keep me around longer too. I am awaiting disablity results, but I've been turned down once, and they normally do so three times, then a hearing. Once I get it, if I get it, I can take some of the burden off her.
We need help as soon as possible, for both our sakes, please? I don't want to watch her break in half emotionally because she thinks she's letting me down and honestly, with out her I'd already be dead and I don't want to be dead, not even a little bit.
I'm fighting tooth and nail to get my life back, to get control of my body back, from over 129 lbs of weight lost in a year and 4 months to Physical Therapy to help teach my body what to do again, how to hold itself up. How to eat correctly so I don't make things worse by gaining weight. The more I help make myself well, the easier this all becomes on the both of us
I am ok having these illnesses, but they no longer get to have me. So that all her efforts (along with any one else who's helped or helps along the way,) weren't in vain. I will not let her efforts (or yours should you choose to help) go to waste. EVER. I want to get healthy enough to have a job, pay my own way, and be free from what feels like a wall of imperatrable illness in front of me. I plan to be on disabilty no longer than I absolutely have to. I plan to one day move over the Atlantic to marry the man I love. But I have to heal first, and Suzy has tried so hard but she can't do it alone.
I'm trying to offset as much as I can as I do sell cosmetics via website, nice ones at that, but I can't link it here, please feel free to ask me though if you'd rather help us by helping me earn a living,
The writing tips say to tell you to say how thankful I'll be. I can't even put that in to words. Eternally? Is that the right one? You'll be helping save two lives with your donations. I could never say thank you enough.
Julia
If you can't help, please pass it on.
Organizer
Julia D Williams
Organizer
Spartanburg, SC
