Danita Lewis Transplant Recovery Fund
We just got back from KU. Danita had two follow up appointments. One with the surgery team and one with her liver dr., Dr. Taylor. We left at 5:45am to get up there to get blood labs done prior to the first appt. On the way in to the hospital we saw Dr. Schmidt, one of the surgeons that did Danita's transplant. He was surprised to see Danita walking into the hospital, no walker.
Then at her surgical appt. Dr. Kumer, Danita's other transplant surgeon walks in, big smiles, to see Danita and told her how good she looks after being so sick. Then he comments on my Shocker gear, because he said he went to the basketball tournament at the Sprint Center, when WSU played.
He then checked her wound and said it looked good and that it is healed and does not need to be changed anymore.
We had some time between appointments so Danita and I went upstairs to unit 63 and unit 64 to say hi to the nurses and aides that were there. Lots of smiles from everyone. Lots of comments about getting to hear Danita talk.
The Dr. Taylor visit started rather late, but the good news is that Danita's liver and kidney numbers are still good. Her prednisone dose will go down again next Thursday. Her Prograf dose goes down slightly starting tonight.
Even though the blood numbers have been good, Dr. Taylor wants to do a liver biopsy next month to get a closer look at the liver.
She will continue to have blood tests done weekly to watch her numbers. As they look better, she will change and have labs done every two weeks instead. Her bilirubin today was .7. Normal is below 1.0 and Danita's last test before transplant was 34. Nice change.
Happy thanksgiving everybody. Latest update is that Danita had an appointment in KC on Monday to check on the stent that was placed in her bile duct in September. It was put there because it was constricted after the transplant. They did another ERCP down her throat. The stent was not there. It had already passed through her system. They used some dye to check the bile duct and it looked good. Her liver numbers continue to be good. We go back this Monday for appointments with the surgical team and then with her liver doctor, Dr. Taylor. I'm on the road with the bowling teams for the first time this year. Taylor and Danita are going to her sister Debbie's house for thanksgiving. Obviously, there is lots to be thankful for in our household, not the least is all the people who have been there for us through everything these past few months. Safe holiday to everyone.
"One last night in a hospital. Danita will be discharged from Wesley Rehab tomorrow. She will continue therapy as an outpatient starting this Thursday.
We need to train more with regard to her blood sugar tests, insulin shots, and wound care.
Now we are trying to coordinate all she needs from rehab tools, diabetes materials, and her transplant drugs and appointments. One day to go!"
Danita, I just found out about this and am in a complete state of shock. I will be keeping you close in my prayers! I do know the transplant people at the KU Med Center are the best - you are in good hands!