Madison's medical expenses
Donation protected
This is our 19th month old daughter Madison RayLynn Gatlin. She has cloves syndrome or also what's called lymphatic malformation.
Congenital
Lipomatous
Overgrowth
Vascular malformation
Epidermal nevi
Spinal/skeletal anomalies and or scoliosis
Approximately 150 to 200 people worldwide have this syndrome. Madison has the majority of her upper body and arms filled with lymphatic fluid that is unable to drain back into her bloodstream which has caused cystic masses to develop in these areas. Due to her medical condition she needs custom made compression garments, she will have to also take oral medication to help reduce the fluid production. This is only the start of her treatment needed. Only a few hospitals are familiar with proper treatment, one of which is Texas Children's Hospital in Houston TX. Currently we live in Florida and we travel to Houston For treatments and upcoming surgeries. We are a single-income family and finances are stretched to their limit. The donations will fund copays for doctors visits. Now that a new year is upon us so comes insurance renewal. Our deductible $5000 dollars. The money we have already raised funded past medical expenses and travel, please help our family! If you can't help please pray.
thank you
Congenital
Lipomatous
Overgrowth
Vascular malformation
Epidermal nevi
Spinal/skeletal anomalies and or scoliosis
Approximately 150 to 200 people worldwide have this syndrome. Madison has the majority of her upper body and arms filled with lymphatic fluid that is unable to drain back into her bloodstream which has caused cystic masses to develop in these areas. Due to her medical condition she needs custom made compression garments, she will have to also take oral medication to help reduce the fluid production. This is only the start of her treatment needed. Only a few hospitals are familiar with proper treatment, one of which is Texas Children's Hospital in Houston TX. Currently we live in Florida and we travel to Houston For treatments and upcoming surgeries. We are a single-income family and finances are stretched to their limit. The donations will fund copays for doctors visits. Now that a new year is upon us so comes insurance renewal. Our deductible $5000 dollars. The money we have already raised funded past medical expenses and travel, please help our family! If you can't help please pray.
thank you
Organizer
Joni Gatlin
Organizer
Crestview, FL
