Madisyn's rare painful skin disease
2) Pain Management
7) Physical Therapy
Tomorrow, she will have her first whirlpool bath at the hospital. She will be sedated by an Anesthesiologist and a therapist will debried her wounds. Once completed, her mom and I will re-bandage all her wounds! This evening, she will receive adequate fluids through her feeding tube to assure she is hydrated efficiently which will make it easier for Intravenous therapy administration. Madisyn usually takes a long time to come out of anesthesia and depending on her level of pain, she may need to stay in the hospital for pain control. If she is feeling ok afterward and doesn't have to stay, then we will be on our way back home to Pittsburgh! Madisyn has ongoing expenses not covered by insurance and your donations are much appreciated! Thank you for helping Madisyn obtain a higher quality of life!
Hi there....any updates on Maddie? I would like to share this page but want to make sure it's still applicable
Hello, we have mutual friends. I also have another friend with a daughter who has EB... Please visit her website as they are very active in fundraising for research and will be attending the upcoming conference out west. Butterflywishesforellie.com Prayers for you all ~M