Stem Cells to Cure Mindy Delfiner
... and I have been married to Mindy for the past 33 years.
IF YOU COULD KINDLY SHARE THIS STORY ON FACEBOOK AND OTHER PLACES WE WOULD APPRECIATE IT! (link below)
Let me begin by explaining what Mindy has been severely suffering from for the last 4 years, which has
rapidly progressed to a very debilitating state.
You all have an idea what Multiple Sclerosis is (a severe autoimmune disease that attacks ones own muscles). What Mindy is suffering from is called Lichen Sclerosis, in her case her body is attacking her own tissues, especially in her female anatomy areas.
Let me give you a quick summary of how severe this disease has affected Mindy. In the last 12 months the Lichen Sclerosis (LS) has progressed to a very deblitating state! Her symtoms include: Severe pain that lasts most of the day, disturbing her sleep and the simplest of activities. LS has caused her skin to become paper thin, making her skin tear, fissure, blister and bleed almost continuously. I'm sorry to be so graffic but when she goes to the bathroom she says it feels like razor blades cutting her skin. LS has caused all the skin around her female anatomy areas to severly scar and become fused together. Most of her female anatomy has literally disapeared!!!!
Through the years Mindy has been treated by top
specialists. We have followed their directions but the LS
has only gotten worse to the point where it is just about unbearable for her. You can't imagine how awful she feels.
For thoses of you that may know Mindy personally,
she has become an expert at hiding her condition.
Now let me explain about Stem Cell Treatment: To date all the doctors are telling her their is no cure. All she can do is continue use of the strongest steroid creams & a daily week by week program of medicines she has been on for a very long time. This has not worked for her , in fact the LS has become much worse. At this point her quality of life is almost
non existent and she has become very very desperate.
Through exahaustive research on my part I have uncovered one doctor located in California that is using cutting edge Stem Cell Treatment with which he is producing a 90% complete remission rate for people suffering from LS. We have not just taken the doctors word that this Stem Cell Treatment works as he described, Mindy and I have literally talked to over 50 of his patients & some in depth. They explained they have their life back and are beyond gratefull!!!! Talking to these women has given Mindy so much hope.
As Mindy's husband it breaks my heart daily to see her cry and suffer in so much pain and anguish.
Now that we have uncovered a solution our hearts have been lifted and I see in Mindy's eyes, hope in her future. She can live life as a "normal " person.
As most of you can guess these new Stem Cell procedures are not covered by any kind of health insurance. If you know Mindy and I then you know it is very hard for the both of us to ask for help.
What some of you don't know is that we owned a successful business for 35 years in the Philadelphia area. During the recession of 2008 we were forced to declare bankrupcy. The bank took everything from us. Our business, house, everything. They left us with two old cars, some old furniture and clothes. We are not complaining, we count the blessings we have. I'm
just trying to explain why we have no money to pay for Mindy to have the Stem Cell Treatments she so desperately needs.
I just want to mention here that someone with LS does have a higher chance of it turning into Cancer.
I am not going to allow myself to even think about that happening.
Mindy will need a series of three Stem Cell Treatments
over the next 12 month period. We have added up all the costs involved. The costs include fees for: the three Stem Cell Treatsments, plane fair costs for the both of us to go back a forth to California 3 times, 12 nights or more of hotel rooms, food, transportation while we are there, we also have to pay seperatly for an anesthesiologist to put Mindy under general anesthesia, also the website "GOFUNDME" takes a modest fee of 5% plus 2.9% and 30 cents per credit card transaction (so about 8% total fees) we have come up with a figure of $19,500
to cover all costs. We wish it could be less expensive
somehow but unfortutately it is not.
To end, we thank you from the bottom of our hearts
that you have even read this and any contribution you may be able to make, regardless of the amount, will be so appreciated by us!! I must somehow get the money so my wife can have these treatments.
Thank You very much,
Lonnie & Mindy Delfiner
I hope everyone is doing well , healthy & enjoying life. It occured to me this morning that its been about 5 months since my last update. I woke up to an anonymous doner contributing to my Lichen Schlerosis fund. Tears of love just fell from my eyes at the kindness & generosity of these people. Not only in the way of donating money but the thought of them thinking of me & my battle with LS. Before I let you know how I am doing, this trip to see my new grandson Gyan in Austrailia would not have been possible if not for the financial help from my brother in law Gary who we love & thank more then words can say. Also again thanking all those friends who have helped make my treatments possible not only again in donations but sharing my story on their Facebook page. For my new friends you can scroll down & read my story that my husband wrote about my LS condition.. So as you might know we are leaving Austrailia on thurs to go to LA for my third Stem Cell & PRP treatment which will be on Monday. It takes about a full year for Stem Cells to work fully. My first treatment I had weeks of remission but the Second treatment has been difficult for me in the way of pain & facing lots of challanges with the disease. . The good news is Dr. Newman has finally had his scientific research approved & published which is amazing for those suffering from this devasting disease which can lead to cancer. I think that much of my severe pain, tears & bleeding is because I have been traveling around alot & thats tough. One in taking care of my almost two yr old max in Philadelphia & coming here to meet my beautiful grandson Gyan 15 weeks old. Along with seeing my son & daughter in Law & our whole Aussie family.. I am strong have handled this disease with no name for yrs & the pain I am good at hiding as most women are. I am very hopeful that this third treatment will lead me to a long remission. I also want to share that spending time with my family here & there & doing service to help others is a great remedy. In our LS group we have a saying of paying it back forward which means always helping the newcomer... The awareness of this disease is much more out there & I love to lighten anyones worries about this disease. For we as women , children & even men are much stronger then the disease. This is just a bump in the road I will learn from, have a positive attitude & never give up. Flying the 30 hrs are tough but will get thru it.. Lastly when we budgeted how much all three treatments would cost covering everything since this is not paid by insurance,we thought we were very close, but in reality like in most things regarding spending money for health issues or anything, finances are much more then we anticipated. I am not asking for donations as somehow Lonnie & I will get thru this as we always do but for those comfortable sharing this on their page would be great. Along with prayers. Oh also I cannot even begin to tell you what it has been like meeting someone from the other end of the world who I met in my LS group & who lived 20 minutes from my son. My special deeply loved friend Susan who I will meet again tomorrow to say our goodbys... To actually be in the same space as someone suffering , we help each other get thru.. My heartfelt blessings to everyone & will give another update when we come back to Iowa a week later. Deep Deep Love to all, mindy
Just want to take a little time to let you know how I am doing. Lets put it this way. I can sit, stand & drive with husband to philadelphia. I can get on the floor & tickle max. I can walk.. This disease is the worst.Dr. Newman has & will continue to create miracles & saved my life. I go for the second treatment Of Stem Cells & PRP for my disease on Oct.7. I am not as nervous as I was before. All of his staff are like family to us & everyone who walks in.. He is a Dr. who Listens who lets you speak for as long as you want.Just want to give a big Thank You for some of Lonnies friends for giving me a donation. Your kindness of course brings tears to my eyes. As one of the doners has said to me, "you have a nice cushion now, but all thats needed in Beverly Hills, you will spend more money for this or that & we have already seen that happen. And even more impt, it sharing this on facebook women hearing my story. So many women have LS & don't even know. Most Gyn's tell you things to do that got me no where only to a worse place. Again from my heart to yours thank you's are not enough , so I will imagine meeting you all & giving you the biggest hug ever. Friends helping friends all over the world to bring good healing Happieness love laughter & the belief in faith hope & God... Dr.s says things in a scarey way which usually never happens.. Having a positive attitude & trusting the hands that help you is most important.. Blessings & thank all those genuine friends who have shared my story on their Facebook Page. Love to all blessings & so much gratitude to all. Again if anyone has a message about LS feel free to send me a private message on my page. I will get back to you & give you a call back. Bunches of big hugs, Mindy
I just want to update everyone on that we have reached our goal!!! Thanks to all who have shared my page, prayed , donated , & more, I am able to get my Stem Cell Treatments & PRP for my disease Lichen Scherolsis. I have made my second treatment to go out to Dr. Newmans the first week of October. This disease is awful & thanks to all of you & Dr. Newman I feel much better & feel like my quality of life is coming back, but it is a process & takes times for the Stem Cells to adjust to the body. My husband & I have so much love & blessings in our hearts for everyone. If anyone suffers with this disease or have any questions feel free to contact me..
much love , mindy
Just a little update on my progress. This Dr. Nathan Newman works miracles! I am beginning to feel like the person I used to be. Just with one treatment under my belt. I can walk, get on the floor & play with my grandson, go out to see friends ect. Because of LS I became like a recluse. God Bless my husband for finding this information for me & making all the calls. I still have some flare up which is normal but each day I wake up with a smile , stretching my bodies, doing workouts gently yoga, & so much more.I have suffered for this since I was finished with Menapause at 39 now being 58 I can just about to do anything I want. Tomorrow we are gonna call Dr. Newman & schedule our appt. which is the same & also stay those 3 xtra days for all the helaing treatments, Now were really on the homestrech as I need to reach my goal so we have enough money to do my second & 3rd treatments, Thank you all so much for your love & support. I am in philly now taking care of my grandson & its easy. Blows my mind. So for those who havent shared my story feel free. We will have to be patient & be hopeful that my goal is met. In fact you always need more but we didn't have the strength to change it now; For all those who gave thank , shared my story on their facebook page & a simple prayer change they all work The nurses said to put all my intention on reaching my goal. I love you all with all my heart . Thank you form my heart. Sending hugs to all & blessing of happy delight to all of you and your familys.
deep deep love to all across the universe.