A Cure For Jack
His team currently includes primary care and developmental pediatricians, a neurologist, a gastroenterologist, two infectious disease doctors, and a psychiatrist, each of whom is working on a piece of the puzzle that is Jack’s condition. This means several appointments per week, most of which are in downtown Boston which has, so far, tripled the family’s transportation budget as they live well outside the city. Jack is also on a special diet, medications, and therapies to help him regain his health, positive behaviors, and social skills he lost when this illness began. Finally, his mom, my daughter, is homeschooling him full time while he is on indefinite medical leave from school.
Although they have health insurance through Jeff’s work, the copays, deductibles, procedures, medications, and hospitalizations have already reached thousands of dollars, which has depleted their savings with more procedures, appointments, and treatments to come. In addition, there are significant appointment-related costs associated with gas, parking, and babysitting because their two younger children (Kristen, 4, and Connor, 2), cannot accompany Jack to most appointments. Collectively, the transportation and childcare costs alone have run several hundred dollars per week at a time when Katie has had to significantly reduce her own work hours in order to manage Jack’s care. They are praying for answers soon, but there currently is no clear end in sight as they try to identify and treat the root cause of Jack’s condition. Because of the ongoing cost of his care, I am hoping to raise $10,000 to help this young family retire the combination of medical, child care, and transportation costs they have incurred—and will continue to incur—as they work with Jack’s team to determine a diagnosis and treatment.
On behalf of the Emanuel family, thank you for your prayers and support!
Dearest friends and family,
Jeff and I cannot begin to express how grateful we are for your compassion, kindness, prayers, and support. Along with his myriad specialist appointments, Jack has four upcoming procedures this month, including a brain MRI, a lumbar puncture (spinal tap), a colonoscopy, and an endoscopy. These procedures will help Jack's doctors see inside his body to better assess the impact of PANDAS/PANS, and understand more deeply the complexities of Jack's case.
In the last two weeks, we have been greatly encouraged by appointments with two new specialists on Jack’s team. One specialist specializes in pediatric auto-immune encephalitis and other rare neurological conditions at Boston Children's Hospital. The other specializes in pediatric infectious disease and PANDAS/PANS at Massachusetts General Hosptial. It's taken almost seven months of diligence, and no small amount of prayer, to find these two doctors, and we are so grateful to finally have them on Jack's team! Both doctors see the global complexities of Jack's case and recommended the procedures listed above to further understand his body and what he has been fighting against for the past seven months. We ask for your prayers as he goes into these four procedures this month!
Thank you for blessing Jack and our entire family by your love and generosity. We are so thankful for each and every one of you!
Katie and Jeff