CourtneysWishToWalk

€7,870 of €100,000 goal

Raised by 248 people in 24 months
my name is Courtney Manning i live in coolock in dublin ireland im 18 years old and I was 10 weeks premature and was diagnosed with spastic diplegia cerebral palsy I'm known as a "toe walker "

Cerebral palsy (CP) is a disorder that affects muscle tone, movement, and motor skills (the ability to move in a coordinated and purposeful way).

CP usually is caused by brain damage that happens before or during a baby's birth, or during the first 3 to 5 years of a child's life. This brain damage also can lead to other health issues, including vision, hearing, and speech problems; and learning disabilities.


I couldn't walk until I was 3 but with the help of mam and her determination I finally took my first steps I attend the C.R.C for weekly physiotherapy and occupational therapy appointments i also see my surgeon and doctor there too

For years on end I've never had any operations botox or AFOS(splints ) I was always 'too good ' but in September of 2014 I had my first round of Botox and casting which it failed so it was into surgery next

On the 10th of March 2016 I had my first major operation my right Achilles' tendons lengthened which has done its job but has unfortunately gave me lots of complications since the op my condition has worsened since then and we can see my mobility decreasing this has caused me a lot of pain daily and sleepless nights most of my nights are spent up crying with the pains and muscle spasms at a recent appointment during the week I was told the spasticity (tightness) is taking over my legs so this is urging us to get to St. Louis sooner then later

I have recently had a wish and this is to be pain free and I have just been accepted for for surgery in St. Louis in America it's known as SDR (selective dorsal rhizotomy) 

Over the next few months I will be doing alot of fundraising to get to America so any ideas or help would  be great ☘ 

my whole life is going to  change and most importantly i would be pain free  i would be like all my friends getting to wear high heels on a nigt out  and be back running around playing GAA again and get bak to dancing ive had to stop both of my hobbies over my cp which makes me upset that i cant do what all my friends are doing

when im in st louis i will be having SDR surgery along with hamstring and heel chord surgery (PERCS) so i will be having 2 in total my rehab is going to be hard but i can't wait to be able to do hat any other child can do but most importantly i will be pain free 

 thank youso much  for taking the time for reading my story

For more updates on my story see CourtneysCerebralPalsyWish on Facebook

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Just 2 weeks till we fly to St. Louis. We can’t believe how fast it has came round. We have made a massive 91k so we are 9k off target. Courtney is still in a lot of pain and discomfort but we can finally see a light at the end of the tunnel.

She has 2 years of hard work ahead of her with her rehabilitation learning how to walk again so we will take it one day at a time

On behalf of Courtney and Courtneyswishtowalk we would like to thank everyone for all their support and donations to Courtneyswishtowalk we cannot wait to update you after surgery.
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We have some exciting news we have got a date for Courtney's surgery and it will take place on November 10th 2017 in St. Louis children's hospital with dr Park

We have up until October to get the funds to the hospital so we are now feeling the pressure to make this happen for Courtney.
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Hi all Courtney's Mam here I feel like I personally have to update you all as a Mam as I lie in bed thinking of more fundraising ideas I can hear my baby crying in the next room with muscle spasms ... imagine your 18 yr old daughter getting ready for a wheelchair as you have as a mother to make a decision who to wheel first ... your beautiful daughter who you fought for since she was diagnosed with cerebral palsy or your grandson in his buggy ??? what choice would you make ?? ..
i know what I will do as courtney's mother ... i will fight till the end for my beautiful daughter , I wont see her in her deb's dress .. she wont go because shes using a walker .. no heels for my baby come graduation night .

please support /share
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Just a little update we are still a long way off our target but we can't thank everyone enough especially Courtney's fundraising team who's working hard behind the scenes

In other news Courtney is struggling a lot the last few weeks with the spasticity really affecting Courtney giving her a lot of painful spasms

We get our date for St. Louis in august we really need to get Courtney to St. Louis before it gets too late

Please help our girl
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€7,870 of €100,000 goal

Raised by 248 people in 24 months
Created November 2, 2016
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