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Costs of cancer diagnosis and treatment

$15,332 of $42,403 goal

Raised by 128 people in 4 months
So maybe you are wondering what Johnstone is up to these days. It’s spring time and I am usually loaded up with bikes and snowboards trying to camp and couch surf through the shoulder season.

This winter I discovered a lump in my throat, along with very swollen lymph nodes, and then went through a barrage of tests, biopsies and scans. I was diagnosed with head and neck cancer in February. I have started an aggressive regiment of weekly chemotherapy and daily radiation treatments in Montrose, CO at the San Juan Cancer Center. 

My insurance has been helpful, but there is a big difference between the total cost of my claims, and what they have paid so far. I am also currently not working, and instead focusing on my health and healing.

And that, of course, is where this GoFundMe comes in. Asking for help is hard, really hard. I want to be 100% transparent about the amount I have asked for. I simply took the costs of my 60 claims this year so far ($138,491.90) and subtracted the amount paid by Anthem ($96,088). No more, no less. This money not only helps cover the actual chemo and radiation treatments, but also helps with other costs like the surgeries to implant my chemo port and feeding tube, the bone biopsy, PET scans, medications, and the list goes on. 

Thank you very much, I really appreciate your support during these difficult times.
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My recent PET scan did show any cancer in the head and neck! I am super excited.

There is something called “abnormal activity” on my right hip (iliac crest). It may be part of the healing process or cancer. I will get a second opinion in Denver and then decide about immunotherapy.

So overall, it’s very good news. I’m (slowly) feeling better and getting stronger.
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I had another blood test this week and I’m slowly improving, which is a good deal! I’m still abnormally low with the White Blood Cell counts and some other important blood components though.

I have been scheduled for another PET scan at the end of July, so I should know more about the status of my cancer the first week of August.

I also got the go ahead to start lifting weights, I’ve lost 25 pounds and am very weak. Monday, yeah I hope to get to the gym on Monday...
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It’s been about a month since my chemo and radiation treatments ended. I am improving slowly and starting to eat some solid food. My blood test results today showed my white blood cell count is increasing, but very slowly; so it looks like it will be a long recovery process.
My oncologist said that I can be more active with hiking and biking, “Just don’t overdo it.” That feels like something very positive!

Thanks again for all your support!!!
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So I had more blood tests today and my white blood cell count has improved slightly and is no longer dangerously low, yea! I have been getting injections of Neupogen and am finally feeling a little better. The progress is slow, but moving in the right direction.
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$15,332 of $42,403 goal

Raised by 128 people in 4 months
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JE
$200
Jesper & Lisa Extremeqvist
4 days ago
PP
$100
Pelle Palmqvist
8 days ago
KF
$200
Kungalv Kreta Festklubb
9 days ago
SR
$100
Sandy Rouvel
9 days ago
MD
$100
Mike & Penni Davey
11 days ago
$150
Anonymous
13 days ago
SL
$100
Sara LeBus
13 days ago
HH
$50
Henrik Hedberg
25 days ago
$30
Anonymous
26 days ago
LG
$50
Lynette Guevara
1 month ago
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