Support for the Crowell Family
On Wednesday, November 30th the Crowell Family received devastating news about their 8-month old baby boy, Connor William. Preliminary test results showed that Connor most likely had Leukodystrophy, a very rare genetic disorder that affects the brain. Through further testing they discovered that he had the more severe type of this disease called Krabbe, and his progression could be even quicker than they initially expected. There is no good outcome to this unimaginable diagnosis and it will be fatal.
Those of you who are close to Ashley and Zach know what incredible parents they are and the dedication that they have to both of their boys. On top of that, they are also extremely thoughtful and caring friends who would do anything for the people in their lives. We are all completely heartbroken for them and overwhelmed with sadness. But as unimaginable as this information is to their family and friends, none of us can begin to understand the pain and emotional struggle that they are dealing with on a daily basis and will carry with them forever.
During this time, Ashley and Zach are taking full advantage of the time they are being given with their sweet CW and plan on making as many happy memories as possible with both of their boys. I know many people have been asking if there is anything they can do to help, which is why we created this page.
Although nothing will make this any easier for them, the last thing that they should have to deal with at this time is the stress of bills. With these donations we can only hope to ease the burden of accumulating medical bills and living expenses, or perhaps we can even help them add more happy memories as a family.
Ashley plans on sharing their journey with Connor on a shared Facebook page and she welcomes and appreciates any photos or memories that you would like to contribute of CW. Thank you for your love and support, and please keep Ashley, Zach, Kellan and Connor in your prayers.
Here's the link for those who want to get your shirts & join team King Con Strong! (Available in adult & youth tees, women's tanks, kiddo & infant tees)
Thank you to my amazing husband, Zach Crowell, for designing these awesome shirts in support of our wondrous warrior!
And thank you to all of you for your prayers and all your support through this journey! And, mostly, thank you for loving our baby boy!
My prayers are with CW and both his parents.God is with you to help you to be strong.I've only seen him once,and I'm so sorry for that Be strong, God is good.CW is a Angel. God will take care of him and you gunsHot loves you all 4 of you. God bless you with all my heart. Love you all