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Chris and Crista Faber need help!

$1,610 of $10,000 goal

Raised by 34 people in 9 months
Created September 26, 2018
Faber
on behalf of Crista Faber
On Thursday September 20th, Chris was rushed to the ER at Centralia providence hospital. After hours of tests and waiting they found pancreintitis, and determined they didnt have the nessicary equipment to help him, so they sent him to St. Pete's. Due to complications, his kidneys have shut down, he is on seditaves and paralytics to keep him unconscious, one surgery so far and at least one more to go, has been continuously on a ventilator and has been using it 40%-60% for the last few days, as well as 4-6 hours of dialysis each day. Crista was told by one physician that for every day that he is in the ICU, that will be about a week of recovery and therapy to get him better enough to go home, and so far he is looking at 7 weeks.
On top of this, they just found out that the owners of the house they have been renting will be moving back, so they have until November 20th to find a new place for Chris and Crista, their 2 children Baylee and Aiden, their 2 dogs, and the 2 goats that Baylee shows for FFA. 
I know they have so many people that love this family, and would like to help put so I am wanting to get this out there for them to see! 
Please, any help would mean so much to them at this time, even if you aren't able to help, sharing this to get the word out helps too!
Thank you all, and God bless!
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UPDATE: Today was another GREAT day! Apparently after I left last night around 11:30 when he fell asleep, he woke back up and was up until 3, but still no bowel movement, Wouldn't you know it, new nurse today (he will be here tomorrow too). They were trying to get him to go back to sleep for a couple hours before getting him to breathe on his own again, but he was just wide awake. While we were waiting for the nurses and doctors to do their rounds, I was putting cream on his hands and feet because they have become so dry and cracked. While I was rubbing his left foot I found was looks like a bruise on the bottom o his foot and top of his big toe. The nurse said it looks like a DTI (deep tissue injury) that can happen from pressing his foot on the end of the bed for too long, which is off because they come in and move him every hour....So, the called the wound nurse in and she took a picture of it and said she will monitor it. She will be back tomorrow to change his wound vac and will see how it's looking. I also took pictures and showed Chris, with the light from my phone in his eyes I noticed that his eye llids were red and kind of swollen! So, I talked to the nurse about that too! He paged the doctor and they said it could just be a minor reaction to some of the meds and they would just watch him.

The nurse came in and gave him some more Miralax to help get his bowels moving. They also decided to get him set up with a push button for his pain meds since they have dropped his Fentanyl down to 25. So, he will have a steady drip of Fentanyl and a push of Dilauted that he can use up to every 10 minutes, he has not oped to use it and shortly after he did he threw up. However, that was most likely caused from the tube in his nose that is emptying his stomach being clamped so the laxative would go down and not up. Basically, it was not supposed to happen, the tube was clamped for too long, but he was ok.
At 9:30 they started him on C-Pap and wanted to make sure he could do that for an hour before taking him off of the machine and just using the trach collar. At 10 the kidney doctor came in and said he will start having dialysis every other day so he can focus on his breathing trials and get started on PT (physical therapy). At 10:45 they changed him from C-Pap to the trach collar and he was breathing on his own. At 11:30 PT came in and got him sitting up, then carefully, with a lot of help and maneuvering got him to the commode, then from there they were able to get him into the chair. With the moving and sitting up he was able to cough up a lot of secretions from his lungs which is good, he burped a few times, also good and eventually he had a BM. I know that seems like too much info, but it was so important for that to happen! The surgeon came in and said Chris has some build up in his bowels and he really needs to get all that out in order for the swelling in his abdomen to go down. So any release from his bowels is a big step forward! He has not had near as much urine as the other day, but we will worry about that a little later, right now it's all about getting him and his bowels up and moving!
After all the work to get him in the chair he was tired and wanted to get moved back into the bed, but they wanted him to stay upright in the chair for an hour, so he did. After the big win on the commode they moved him back to the bed and he continued to breathe on his own until 5:30. So, just over 6 hours, physical therapy and a lot of work and he did GREAT! They have now reduced the tidal volume (help of the machine) from a rate of 550 to 450. So, he is still getting a little help, but he is having to work to expand his lungs a little more each minute of the day. The goal is to do the work with the help, the not need as much help more and more each day.
As of right now his H & H is 8.7 & 25.9, white cell count is 8.8, Potassium is 4.6, Glucose is 157, Creatinin 6.7 and starting lipids which is essentially fat to go along with all the vitamins and nutrients he has been getting. They are planning on putting his feeding tube back in tomorrow.

So, more big steps in the right direction today, a few small steps back still a long way to go, but he's heading in the right direction!!!

Love you all and greatly appreciate all the prayers, love and support!
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UPDATE: New nurse again today...He was scheduled for CT scan, wound vac change, dialysis and a breathing trial. So, today was a big day!
They have him down to 50 of Fentanyl, completely off of Propofol, 08 of Precedex and still slowly introducing the Zyprexa. They said he slept pretty well most of the night, he just had a little agitation over night and that seems to be his MO. He does great for hours, then kind of hits a wall and needs a little medication to put him out so he will rest. They said that is common because he doesn't want to miss anything, but the most important part for him besides breathing is resting.

His H & H levels have not been increasing, so he required 2 units of blood again. They have started giving him Epogen which is a medication that is supposed to trigger his red cells to start generating more blood. However, it takes 2 weeks before they see any results.
The wound vac nurse came in to change his dressing and they gave him a push of fentanyl and Dilaudid, he pretty much slept through the whole thing, so that was good. The dialysis showed up and she got that process started without having to sedate him, also a good step. About 3 hours into dialysis, his BP kept going up and up, so without saying anything she gave him a push of Ativan. The Ativan made him delusional and combative, so his BP kept going up. I could see that he looked confused and then she said she had given him Ativan and I explained that it makes him a little crazy and we have requested he not be given that. Then she gave him LIbatilal and within 10 minutes his BP was going back down UGH! During dialysis, RT (respiratory therapist) wanted to give him his breathing trial. She started him on C-Pap and he did that for about 20 minutes, then changed to just breathing on his own. Apparently, C-Pap is harder because there is a pull to it that he has to compete with. So, that wore him out, then breathing on his own all while getting exhausted during dialysis. So, 15 minutes later they put him back on the vent. I feel like everything was starting to work against him today.

After dialysis, X-Ray came to take him to get a CT scan. I was told that during his CT scan he was able to hold his own arms above his head, which is great! However, it wears him out and of course then requires rest. So, he had been through a lot and just needed rest. His CT results were back in a few hours and they showed no blockage, however now they are giving him a laxative to try and get the bowels moving. He's down to half the fentanyl he was on, but getting pushes of other pain meds in between to keep him comfortable. His anxiety has been up and down all day, therefore so has his BP. So a lot of different meds here and there to keep him stable. It's been a hard day on him and he still has #2 to go!

Based on a number of different things, he may not be moving to LTACH until next week. He has to be completely off drip fentanyl and having regular bowel movements. Also, his H &H needs to be more stable as transfusions aren't really offered at LTACH. So, he could do great the next few days and be ready to transport OR he could just keep improving slow and steady and need another week...More prayers and more waiting.
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UPDATE: New nurse again today...when I came in he had been breathing on his own since 6 and had a bed pan to try and go! No luck yet, but says he's still trying. He was on 10 of propofol just to make him comfortable, but later in the day they turned it off. So, he breathed on his own for 5.5 hours, but because there was no dialysis today the fluid backed up into his lungs making it hard to breathe. So, they hooked him back up to the vent so he could rest.Which was fine because he worked so hard yesterday. So, with the Hawks game on he napped off and on all day. At around 11:30 Chris was getting kind of worked up and trying to get out of bed, a few minutes later we found out why, it was because he had to pee!!! The took his catheter out 2 days ago and today he started peeing again! So, the doctor ordered a diuretic called Bumex to be administered in his IV along with an oral diuretic to go into the tube in his nose down to his stomach. As of 11 pm he has released 25cc's of urine and it's a clear yellow not a dark amber color! With him being weened off the sedation meds his kidney's are starting to wake up! He's also trying to communicate more, including writing, but it's just scribbles right now.

The plan for tonight it to continue to reduce his pain medication, keep him off of the propofol and start reducing his precedex while increasing the zyprexa. He will doing another breathing trial tomorrow, hopefully in the morning and see how long he can go during or after dialysis. Then back on the vent for the evening and if all goes as planned he can have the tube that allows him to talk put it as early as Tuesday!!! The nurse tonight also said they may look into getting him started on physical therapy as early as tomorrow as well!

As much as everyone wants to come see him awake and alert, we ask that you schedule your visits with me and please keep them to about 15 minutes at a time. Though he is getting better every day, he still requires a lot of rest even though he may not want to and loves to see his friends, he still can't talk and that can get his heart rate and BP up. Also, until things start flowing through his bowels, he may require some private time throughout the day.

The question now is if he still needs to go to LTACH or if he can just be admitted to the physical therapy/rehab wing here at the hospital. More questions to ask and more answers to hope for!

Prayers, love and support are what have got us this far, lets keep em coming!
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UPDATE: Today was a GREAT day! When I came in this morning all his meds were still where they were last night, and he woke up to me covering him up, smiled and went back to sleep. So that was a good start! Around 9 he started doing a slow breathing trial, not as intense as before just reducing his respiratory rate from 26 to 20 and he did just fine. The Dr ordered another calming medication, but I asked the nurse not to give him any additional meds until I talk to the Dr. The point is to get him off the meds, not add to them. Around 10 they started the more intense trial with minimal support from the vent and he still did great! Around 10:45 the surgeon came in and said to give him another suppository and maybe an enema and if he doesn't have bowel movements by Monday, then they would do a CT scan just to make sure there is nothing major going on. So the goal for this weekend is breathing and bowel movements. 12:15, he was doing so well they decided to take him completely off the ventilator to see how his handles that. They were planning on doing it for a few minutes and hoping he could last an hour! 2 HOURS LATER, he was still breathing on his own and dialysis came in.
He was only scheduled for 3 hours of dialysis and I thought for sure they would bump his sedation up because he normally gets agitated during dialysis, but NOPE! He did all 3 hours of dialysis awake, calm and breathing on his own! He continued to breathe on his own for over 9 hours!!! He took a few naps in between, but continued to breathe on his own while sleeping!
The doctor came in and agreed to completely remove Ativan from his regiment, slowly trade his Precedex for Zyprexa which is still for anxiety, but doesn't make him as sleepy.
As of right now his white cell count is 11.5, his H&H is still a little low at 7.5 & 22.5, but holding. His Potassium is up to 3.9, Glucose was 125, Creatinine is 5.1. They have him down to
Propofol at 0, Precedex still at .9, Fentanyl went up to 100 while moving him and messing with his tube and stuff and they are slowly introducing Zyprexa at 2.5, which will eventually replace the Precedex. So, the plan for over night it to keep his Propofol off, and increase the Zyprexa and reduce his Precedex. Tomorrow he will not have dialysis, continue to breathe on his own as long as he can and get him off the sedation meds! All great steps forward! Noe he can focus on breathing, healing and trying to get those kidneys in gear! Next steps are to get a bowel movement, get the trache out, get him speech therapy, respiratory therapy and rehab. He still has a long road ahead of him, but I can proudly say he is out of the woods!

Prayers and love are still greatly needed daily!

I forgot to add they took 3 liters of fluid off of him during dialysis!
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$1,610 of $10,000 goal

Raised by 34 people in 9 months
Created September 26, 2018
Faber
on behalf of Crista Faber
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