Cheyanne's Treatment Funds

$21,638 of $100k goal

Raised by 433 people in 4 months
Devon Jacobs
on behalf of Jodi Jacobs
 CANANDAIGUA, NY

Recently, my 7 yr old little sister Cheyanne was diagnosed with a brain tumor on her brain stem(DIPG). The tumor cannot be removed due to its position, as it is wrapped around all of the important nerves and her spinal cord. Doctors have recommended Radiation treatments for 6 weeks, but our family cannot really afford it. Cheyanne has brought nothing but joy to our family and those around her.

Cheyanne was discharged from Golisano's Children's Hospital on Thursday, Febuary 16th after her MRI showed growth in the tumor. Doctors are unsure if the growth was due to swelling from radiation or if the tumor was progressing. She's currently undergoing Avastin treatments every 2 weeks at the hospital. We've set up a program for nurses to come to our house and continue on with her PT and OT so she does not continue to lose muscle.

The funds earned from your donations will be going towards anything that Cheyanne needs around the house, any travel fees that may come about, any food costs for Cheyanne that our parents cannot cover, and generally anything that Cheyanne requires while she's at home.

Thank you all for the donations and everlasting support.

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Update 28
Posted by Devon Jacobs
10 days ago
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1
1
Cheyanne has been undergoing Avastin treatments every few weeks. She has an MRI coming up soon and we will post an update with the results.

Now, there's been a little confusion on what the funds from the donations are being spent on.

The funds earned from your donations will be going towards anything that Cheyanne needs around the house, any travel fees that may come about, any food costs for Cheyanne that our parents cannot cover, and generally anything that Cheyanne requires while she's at home.

Once again, we thank you for your continuous and never-ending love and support.
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Update 27
Posted by Devon Jacobs
1 month ago
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2
2
Cheyanne is being discharged from Golisano Children's Hospital today. Her MRI results were not too good so we're exploring more options for treatment before resorting to Avastin. We've sent out emails to almost all of the clinical trials for DIPG, but that would require more traveling and fees.

To help pay for any further costs, we've made t-shirts which are for sale until Thursday. Please get one and show Cheyanne that she still has people who are supporting and loving her! Thank you everyone!
Shirts: https://teespring.com/new-cheyanne-s-fight#pid=2&cid=2122&sid=front
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Update 26
Posted by Devon Jacobs
2 months ago
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2
2
Yesterday was Cheyanne's 7th birthday! We had such a great day with her. Anna and Elsa came to visit her and she was crowned Queen for the day. We shared cake with the 7th floor staff and also sang a few times! She had a very fun filled day and loved every moment of it. Chey laughed and smiled so much!

Today started with Cheyanne getting sick this morning and having to get an emergency CT scan, but nothing has changed. Her chest cold contributed to her spitting up a bit. She had quite a bit of food. She only peed once today so they had to catheter her, but that's alright. She had some sugar cookies and decorated them with her sister and brother.

Thank you all for the love and support.
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Update 25
Posted by Devon Jacobs
2 months ago
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Today was Cheyanne's last day of radiation! Although she was sick the nurses in the radiology department threw her a party with all her stuffed animals, a tea set and cupcakes! She got sick throughout the day due to her catching a virus/cold, but over time it cleared up. She still has not been drinking the amount of fluids she needs to so she had an IV put in, and the feeding tube will be put back in tomorrow. Rehab has been pushed off for a bit due to her sickness, but we will still be trying to get her in. She needs to be on her feet in order to qualify for the clinical trials in New York City. Thank you everyone for the love and support
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Read a Previous Update
James Butler
3 months ago
7
7

On behalf of my wrestling company on roblox we continue to raise awareness and ask people to make a donation, big or little every dollar makes a difference. I know you do not know me but this young girl remains in our hearts.

+ Read More
Devin Ulloa
4 months ago
6
6

OMG I need the address to send her a card! She is so small, and hopefully she will win the fight!

+ Read More
Jodi Jacobs
4 months ago
5
5

I am beyond words for the amount of love and support we are receiving and I cannot ever thank you enough...this is a nightmare but.....we have a great team and a beautiful world wide support system...I personally thank you one and all ....

+ Read More
Zachary Wilson
3 months ago
4
4

Hey man, everything's going to be alright. I'm praying for your family. Good luck, and tell her that a stranger who for some reason cares said to beat that tumor down, and win that fight.

+ Read More
Colleen Curkendall Hughes
4 months ago
4
4

Thank you Tanya! I don't know if you remember me, but please give Jodi a huge hug for me and sweet cheyanne a gentle squeeze from someone who cares! Xoxo

+ Read More
Jodi Jacobs
3 months ago
3
3

Po box. 894 Canandaigua NY 14424

+ Read More
Beckie Milliman
3 months ago
3
3

I'm so saddened by this news such a beautiful and loving child - my thoughts and prayers are with you all I can't imagine....

+ Read More
Tanya Kunzman
4 months ago
3
3

Colleen while I am there today I'll be sure to get an address and post! I've had many people message me to ask that. Thank each and every one of you that are supporting them all at this time. Keep the prayers coming!!

+ Read More
Margie Rockwell
2 months ago
2
2

AWESOME!!!!! Happy Birthday Cheyanne!

+ Read More
E Anne Wasson
2 months ago
2
2

Continuing to pray for Cheyanne and this sweet girl's family ...

+ Read More
Rains Deciete
2 months ago
2
2

On Behalf of the acting Secretary of Veteran affairs for NUSA, I send you and your family my best wishes.

+ Read More
Rich Gentner
3 months ago
2
2

I just tried to donate and it said their was an issue and to ask the person in charge of account to login to fix.

+ Read More
Margie Rockwell
3 months ago
2
2

AWESOME news!!!!

+ Read More
Margie Rockwell
3 months ago
2
2

Thanks for the update!!! Continued prayers and hugs your way!!

+ Read More
Karen Marie Ford
3 months ago
2
2

There is help out there for her and your medical expenses. Our son had a brain tunor 14 years ago. I am so sorry you are going through this. You are in my thoughts and prayers. God bless her. You can contact Cure in Rochester and compassion net also in Rochester. Camp good days and special times. All these organizations were a great help to us. If you would like to talk please feel free to contact me. God bless.

+ Read More
Jodi Jacobs
3 months ago
2
2

I cannot thank you all enough for the love and support we are receiving....we are forever grateful ...

+ Read More
Mary Ball-Bordwell
3 months ago
2
2

Can we get an address to send a card to? I just wonder if it wouldn't help lift her spirits if she had a bunch of cards delivered to her? Maybe she could have a card wall where she could see how many people care.

+ Read More
Janet Heineman Sutter
3 months ago
2
2

She's beautiful. Please go to www.needymeds.org and then to bottom of page to site map. click on it and then go to help by diagnosis ie... cancer, child hood cancer, brain cancer..... check all of the ones her diagnosis falls under, then click help by diagnosis. There are organizations that help a lot with expenses. I hope it helps your family. And if she has a page, please post it so we can keep up with her. God bless and send healing touches.

+ Read More
Tanya Kunzman
4 months ago
2
2

Yes of course I will Colleen! Thank you so much for all you do! Jodi I got her.... I'll give Cheyanne some love from you also!!

+ Read More
Colleen Curkendall Hughes
4 months ago
2
2

Is it possible to get an address for those wishing to send Cheyanne a card or gift?

+ Read More

$21,638 of $100k goal

Raised by 433 people in 4 months
Created December 25, 2016
Devon Jacobs  
on behalf of Jodi Jacobs
LB
$20
Lori Bruland
1 hour ago
KS
$100
Katrina Smith
14 hours ago
1
1
$50
Anonymous
7 days ago
2
2
$5
Anonymous
11 days ago
2
2
LH
$20
lana husni
14 days ago
2
2
$50
Anonymous
15 days ago
2
2
$100
Anonymous
15 days ago
2
2
$25
Anonymous
17 days ago
1
1
AY
$50
Anon ymous
18 days ago
3
3
$25
Anonymous
19 days ago
3
3
James Butler
3 months ago
7
7

On behalf of my wrestling company on roblox we continue to raise awareness and ask people to make a donation, big or little every dollar makes a difference. I know you do not know me but this young girl remains in our hearts.

+ Read More
Devin Ulloa
4 months ago
6
6

OMG I need the address to send her a card! She is so small, and hopefully she will win the fight!

+ Read More
Jodi Jacobs
4 months ago
5
5

I am beyond words for the amount of love and support we are receiving and I cannot ever thank you enough...this is a nightmare but.....we have a great team and a beautiful world wide support system...I personally thank you one and all ....

+ Read More
Zachary Wilson
3 months ago
4
4

Hey man, everything's going to be alright. I'm praying for your family. Good luck, and tell her that a stranger who for some reason cares said to beat that tumor down, and win that fight.

+ Read More
Colleen Curkendall Hughes
4 months ago
4
4

Thank you Tanya! I don't know if you remember me, but please give Jodi a huge hug for me and sweet cheyanne a gentle squeeze from someone who cares! Xoxo

+ Read More
Jodi Jacobs
3 months ago
3
3

Po box. 894 Canandaigua NY 14424

+ Read More
Beckie Milliman
3 months ago
3
3

I'm so saddened by this news such a beautiful and loving child - my thoughts and prayers are with you all I can't imagine....

+ Read More
Tanya Kunzman
4 months ago
3
3

Colleen while I am there today I'll be sure to get an address and post! I've had many people message me to ask that. Thank each and every one of you that are supporting them all at this time. Keep the prayers coming!!

+ Read More
Margie Rockwell
2 months ago
2
2

AWESOME!!!!! Happy Birthday Cheyanne!

+ Read More
E Anne Wasson
2 months ago
2
2

Continuing to pray for Cheyanne and this sweet girl's family ...

+ Read More
Rains Deciete
2 months ago
2
2

On Behalf of the acting Secretary of Veteran affairs for NUSA, I send you and your family my best wishes.

+ Read More
Rich Gentner
3 months ago
2
2

I just tried to donate and it said their was an issue and to ask the person in charge of account to login to fix.

+ Read More
Margie Rockwell
3 months ago
2
2

AWESOME news!!!!

+ Read More
Margie Rockwell
3 months ago
2
2

Thanks for the update!!! Continued prayers and hugs your way!!

+ Read More
Karen Marie Ford
3 months ago
2
2

There is help out there for her and your medical expenses. Our son had a brain tunor 14 years ago. I am so sorry you are going through this. You are in my thoughts and prayers. God bless her. You can contact Cure in Rochester and compassion net also in Rochester. Camp good days and special times. All these organizations were a great help to us. If you would like to talk please feel free to contact me. God bless.

+ Read More
Jodi Jacobs
3 months ago
2
2

I cannot thank you all enough for the love and support we are receiving....we are forever grateful ...

+ Read More
Mary Ball-Bordwell
3 months ago
2
2

Can we get an address to send a card to? I just wonder if it wouldn't help lift her spirits if she had a bunch of cards delivered to her? Maybe she could have a card wall where she could see how many people care.

+ Read More
Janet Heineman Sutter
3 months ago
2
2

She's beautiful. Please go to www.needymeds.org and then to bottom of page to site map. click on it and then go to help by diagnosis ie... cancer, child hood cancer, brain cancer..... check all of the ones her diagnosis falls under, then click help by diagnosis. There are organizations that help a lot with expenses. I hope it helps your family. And if she has a page, please post it so we can keep up with her. God bless and send healing touches.

+ Read More
Tanya Kunzman
4 months ago
2
2

Yes of course I will Colleen! Thank you so much for all you do! Jodi I got her.... I'll give Cheyanne some love from you also!!

+ Read More
Colleen Curkendall Hughes
4 months ago
2
2

Is it possible to get an address for those wishing to send Cheyanne a card or gift?

+ Read More
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