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Charlie’s space

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Charlie was diagnosed on the 3rd of September 2017 with a degenerative brain condition, there are less than 100 people in the world with this condition.  It has as taken fairly much all of his mobility, he can walk a few steps but not really I aided.  He has dementia like symptoms, Parkinsonian like tremors and has extremely painful cramps almost constantly.  Eventually it will affect is swallow, his eyesight and will leave him fully reliant on everyone around him.
This year we took him on our only holiday and it was too much for him, he’s had to go home early with my mum.  

Since we moved to our adapted property I’ve been battling with the jungle that is our garden,  I’ve asked for help, I’ve exhausted myself trying to sort it out but I’m a single mum doing the job of about 15 people - because we’ve realised this is the last time we will actually be able to take Charlie away then I’ve decided that this is the time to start operation garden.  We’ve had a quote that will make the garden accessible and allow Charlie to have fun in a safe space with his siblings.  

It will allow us to spend quality time together in the summer and hopefully a space to store his extra equipment- whilst leaving the garden a safe and secure environment as his illness progresses.  

All i want is the absolute best for Charlie, George and Evie and to be able to give them a space that they can play and be siblings, fighting, throwing water balloons, or just chilling with a yummy dinner on a summers evening.

I have no idea where I’m starting with this but I will be trying to get some ideas together!!!!!

Organizer

Anna Tesdale
Organizer

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