Usher syndrome is the most common genetic cause of deafblindness. The Usher Syndrome Coalition aims to identify and connect the 400,000+ people living with Usher syndrome worldwide with researchers, vital information, and others in the Usher syndrome community. By bridging the gap between researchers and those impacted, we will expedite the full understanding of Usher syndrome necessary for the development of treatments for the associated vision, hearing and vestibular issues and, ultimately, a cure.

Usher Syndrome Coalition

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Android

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Mark Rieth IP Address

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Platform is Android

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