In 1994, three parents of children with Fragile X founded FRAXA Research Foundation to support scientific research aimed at finding a treatment and a cure for Fragile X syndrome. At that time, there was no Fragile X website or listserv, and only a handful of scientists were studying Fragile X. The US government was spending just $30,000 per year to find a cure! As parents, we had to change that.
FRAXA funds research at universities all over the world. We have funded more than $34 million to date.

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