Team Channing
Donation protected
Most of you know Channing's story and that he is a special needs child. For those of you who don't know Channing, he was born with a neural tube birth defect Spina Bifida, the most severe form called Myelomeningocele. Please take the time to look at all photos and read his story so you truly understand Channing's journey to overcome the battles he is faced with Spina Bifida and how your donations will truly give him a fair chance in life.
He also has Hydrocephalus, Chiari Malformation II, and Hip Dysplasia. Spina Bifida Myelomeningocele causes severe orthopedic issues, weakness and paralysis , bladder and bowel issues, and hydrocelplaus. Channing has PT 5 times a week and goes to Boston Childrens Hospital Spinia Bifida clinic 3 times a month. He sees a team of 12 specialists in the spina bifida clinic and ungergoes a variety of invasive and painful procedures every 3-6 months. He also goes to CHOP in Philedephia once a year , but he is having some serious issues orthopedically right now and we are saving funds to take him their for possibly another surgery in the fall.
He may be pyschically impaired but he is a determined little guy with a outstanding personality. I had fetal surgery for him at 23 weeks gestigation at CHOP and was cut open hip bone to hip bone while he was in my womb to close his Spine. I was at CHOP for 2 months and on bedrest remainder of pregnancy and used a wheelchair to get around to doctors apppointments. Channing was then born at 32 weeks via emergency c-section and was in the nicu for two months. He had his second spinal surgery Feb. 16th,2016 for a dermoid cyst and terthered cord which he is still weak from.
He has permant nerve damage and a weakness in legs and hips so we don't know exactly what lies ahead for channing, but special needs equipment brings him joy to be independant and be able to play appropiately like other children his age. He wants to have independance and be able to roam free just like other toddlers his age. Channing is struggling to crawl, stand and walk. Mentally he is advanced and is frustrated he can't stand or walk or even crawl.
Insurance will not cover a mobile stander, gait trainer, crawler, zipzac, or adaptive bike. He was also prescribed a HKAFO which is a large brace starting at the foot and goes all the way up to his hip. Since birth he has had severe issues with his hip and it has progressivly gotten worse. Insurance covers one brace a year which he already got his AFOS this year. They are not supportive enough his legs collapse.
Doctors do believe he has the potential to one day walk, but while he is working on strength with PT he needs another way to get around with bracing and specialized equipment. He struggles to just do simple things like get into sitting and out of sitting on his own or crawl and he is 18 months old. Other things babies just get up and do so easily Channing can't.
It is extremely costly to raise a special needs child besides just equipment but the peices of equipment he needs ranges from $1,500-3,700. We are asking for help from the community for Channing to get strong, healthy, independent. Channing needs a handicap assecible vechile and living arragements. We rent a townhome with my parents which is not handicap assecible and have a extremely small vechile.
The government does not help with this nor do I currently recieve child support. People who have not wittnessed my situation tend to not understand it is impossible for me to work do to Channing's special needs. I constantly post videos and pictures so hopefully everyone can understand his life daily. He is a full time job! I work on strength building throughout the day so he will walk one day, rotate him from several different pieces of equipment, and take him to several out pateint treatments weekly.
This money raised could change my sons quality of life ammensly. It would pay for the peices of equipment, braces, adaptive bike, and down payments for handicap asseccesible home and SUV he needs. Without me working so hard with him throughout the day, bracing, and proper treatments, equipment he doesn't stand much of a chance.
My parents and I do all we possibly can to provide for his typical expenses any other child would have, but it is extrememly costly to raise a special needs child and accomedate them. Below are photos of channing's story. Please take the time to look at all photos so you truly understand Channing's journey and how your donations will truly give him a fair chance in life. Doesn't every child deserve one?. Thank you and god bless all who have donated and shared.
Channings Scar on his back from his closure of lesion from fetal surgury
Scar from second Surgery of dermoid cyst removal and tethered cord
Momma after Fetal Surgery to give my Channing a better life
Mommas Scars after Fetal Surgery


Christmas at ronald Mcdonald House in Philly recovering from surgery at CHOP. Wheelcahir bound at 24 weeks

Channing in the nicu for 2 months , born at 3 lbs ..


Recieving treatments majority of the day
 Channing 3 months old in his first brace. Pelvik Harness was worn 24 hours a day for 3 months. still a smile on his face

Channings Second Brace for his hip


Channing at Boston Childrens for his MRI of brain and spine followed by Uyrodymanics Study. He underwent anethesia followed one night hospital stay.

Channing next hospital stay and many more procedures


Channings second spinal surgery for tethered cord and dermoid cyst..swollen from surgery and recovering



 Channing at PT wearing his first set AFOS (ankle, foot brace) and first time standing assisted

Channing current day using equipment he needs. PT brings over temparly when available. an some of it channing struggles with because it isnt custom made for him and isn't the best of quality. The zipzac is best peice of equipment and he loves it. Was able to purchase his zipzac with funds raised already. These peices of equipment range from 1,000 to 3,700. As he grows we have been needing more and more different devices. He even needs special adaptive bike at one point.






Channing in his new his new brace (HKAFO) and reverse walker. He is praticing standing currently. Thanks to gofunem we were able to purchase his HKAFO and reverse walker.
Thank you for taking the time to read Channing's story More photos, videos, and updates will be posted so you can keep following him on his journey to overcome his struggles with Spina Bifida
He also has Hydrocephalus, Chiari Malformation II, and Hip Dysplasia. Spina Bifida Myelomeningocele causes severe orthopedic issues, weakness and paralysis , bladder and bowel issues, and hydrocelplaus. Channing has PT 5 times a week and goes to Boston Childrens Hospital Spinia Bifida clinic 3 times a month. He sees a team of 12 specialists in the spina bifida clinic and ungergoes a variety of invasive and painful procedures every 3-6 months. He also goes to CHOP in Philedephia once a year , but he is having some serious issues orthopedically right now and we are saving funds to take him their for possibly another surgery in the fall.
He may be pyschically impaired but he is a determined little guy with a outstanding personality. I had fetal surgery for him at 23 weeks gestigation at CHOP and was cut open hip bone to hip bone while he was in my womb to close his Spine. I was at CHOP for 2 months and on bedrest remainder of pregnancy and used a wheelchair to get around to doctors apppointments. Channing was then born at 32 weeks via emergency c-section and was in the nicu for two months. He had his second spinal surgery Feb. 16th,2016 for a dermoid cyst and terthered cord which he is still weak from.
He has permant nerve damage and a weakness in legs and hips so we don't know exactly what lies ahead for channing, but special needs equipment brings him joy to be independant and be able to play appropiately like other children his age. He wants to have independance and be able to roam free just like other toddlers his age. Channing is struggling to crawl, stand and walk. Mentally he is advanced and is frustrated he can't stand or walk or even crawl.
Insurance will not cover a mobile stander, gait trainer, crawler, zipzac, or adaptive bike. He was also prescribed a HKAFO which is a large brace starting at the foot and goes all the way up to his hip. Since birth he has had severe issues with his hip and it has progressivly gotten worse. Insurance covers one brace a year which he already got his AFOS this year. They are not supportive enough his legs collapse.
Doctors do believe he has the potential to one day walk, but while he is working on strength with PT he needs another way to get around with bracing and specialized equipment. He struggles to just do simple things like get into sitting and out of sitting on his own or crawl and he is 18 months old. Other things babies just get up and do so easily Channing can't.
It is extremely costly to raise a special needs child besides just equipment but the peices of equipment he needs ranges from $1,500-3,700. We are asking for help from the community for Channing to get strong, healthy, independent. Channing needs a handicap assecible vechile and living arragements. We rent a townhome with my parents which is not handicap assecible and have a extremely small vechile.
The government does not help with this nor do I currently recieve child support. People who have not wittnessed my situation tend to not understand it is impossible for me to work do to Channing's special needs. I constantly post videos and pictures so hopefully everyone can understand his life daily. He is a full time job! I work on strength building throughout the day so he will walk one day, rotate him from several different pieces of equipment, and take him to several out pateint treatments weekly.
This money raised could change my sons quality of life ammensly. It would pay for the peices of equipment, braces, adaptive bike, and down payments for handicap asseccesible home and SUV he needs. Without me working so hard with him throughout the day, bracing, and proper treatments, equipment he doesn't stand much of a chance.
My parents and I do all we possibly can to provide for his typical expenses any other child would have, but it is extrememly costly to raise a special needs child and accomedate them. Below are photos of channing's story. Please take the time to look at all photos so you truly understand Channing's journey and how your donations will truly give him a fair chance in life. Doesn't every child deserve one?. Thank you and god bless all who have donated and shared.
Channings Scar on his back from his closure of lesion from fetal surgury
Scar from second Surgery of dermoid cyst removal and tethered cordMomma after Fetal Surgery to give my Channing a better lifeMommas Scars after Fetal Surgery Christmas at ronald Mcdonald House in Philly recovering from surgery at CHOP. Wheelcahir bound at 24 weeks
Channing in the nicu for 2 months , born at 3 lbs ..
Recieving treatments majority of the day Channing 3 months old in his first brace. Pelvik Harness was worn 24 hours a day for 3 months. still a smile on his faceChannings Second Brace for his hip
Channing at Boston Childrens for his MRI of brain and spine followed by Uyrodymanics Study. He underwent anethesia followed one night hospital stay.
Channing next hospital stay and many more procedures
Channings second spinal surgery for tethered cord and dermoid cyst..swollen from surgery and recovering
 Channing at PT wearing his first set AFOS (ankle, foot brace) and first time standing assisted Channing current day using equipment he needs. PT brings over temparly when available. an some of it channing struggles with because it isnt custom made for him and isn't the best of quality. The zipzac is best peice of equipment and he loves it. Was able to purchase his zipzac with funds raised already. These peices of equipment range from 1,000 to 3,700. As he grows we have been needing more and more different devices. He even needs special adaptive bike at one point.
Channing in his new his new brace (HKAFO) and reverse walker. He is praticing standing currently. Thanks to gofunem we were able to purchase his HKAFO and reverse walker.
Thank you for taking the time to read Channing's story More photos, videos, and updates will be posted so you can keep following him on his journey to overcome his struggles with Spina Bifida
Organizer
Jenna Lee
Organizer
Seekonk, MA
