Jasper's Heart ~ Casey and Amanda

$11,285 of $11,000 goal

Raised by 110 people in 30 months
Chris Onyett
on behalf of Casey Onyett
 Kelowna, BC
Hi everyone,

It's been a challenging journey so far and the hardest parts are just starting. Jasper, our son with a congenital heart disease, and Amanda flew to Toronto on June 21. Aspen and I watched them leave with teary eyes but hope in our hearts. The doctors told us they would need to stay out there for around 6 months. So much is up in the air right now and were doing everything we can for Jasper but it is such a challenge.

We are raising money to help Support Amanda out in Toronto for 6 months, to raise money for traveling costs so we can bring Aspen out to Toronto eventually once Amanda is healed from her C-section, and to support our family in such a continually difficult and draining situation. 

The original plan was to give him the norwood heart surgury on June 22 since vancouver considered him to have hyperplastic heart syndrom and the surgury would give him the best chance with only half his heart working properly. It has a number of challenges and risks but the outcome would be a tough 3 years and then relatively good health untill he would be 15 and then often many complications arise sinse the heart can become tired with only the small chamber of the heart doing 100% of the required work.

On june 22 the doctors told us that Toronto offered to do a different procedure with higher initial risks but if successfull ( a rough 20 % success rate) he would be much better off than having the Norwood procedure in Vancouver. He will never have a normal heart but if Toronto's doctors can pull it off it is his best chance at a most normal life.

In Toronto the doctors plan on doing a balloon angioplasty tommorow ( June 23 ) and an open heart Hybrid surgury next week. The goal is to open his aortic valve and make a bunch of heart adjustments so that proper flow can  be achieved. If its a success then his ventricle could begin to grow again and through ventricle retraining his heart may be saved so he will have a whole heart. If things start to turn he may end up needing the Norwood surgury but this chance if successfull will increase his life expectancy and his quality of life. If the firt two surgeries go well then at 2 months they will remove the scar tissue and keep working on the heart to help it grow more. They can't tell if the other heart valves are working properly so if anything starts to fail then they will need to do a Norwood procedure right away. 

We have received so much Love, support, and donations to make it this far already. Family and friends have been miraculous every step of the way. I just want to thank everyone for everything given so far. If you are able to help us again in this next chapter of Jasper's challenging journey it would be so gratefully received. 

Even just a couple dollars helps enormously and if you can’t donate, I ask that you please share this and pray for us. Thank you!
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Jasper is doing amazing from his big heart surgery and will be home by July 16 ;-)
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After the balloon angioplast last Friday the MRI still showed low flow through the left side of the heart and possible damage to the mitro valve. Toronto no longer thinks Jasper is a candidate for the hybrid surgury and the ventricle retraining so now they are planning to go the one ventricle route with the Norwood open heart surgury.

The good news it that Amanda will no longer will be out in Toronto for 4 to 6 months. Instead she will be out there only 1 to 2 months and then they will be flown back to Vancouver for the rest of Jasper's recovery. We also got some funding for accommodation from cops for kids.

I've decided to stay back in castlegar and take care of Aspen and visit Amanda and Jasper once they come back to Vancouver.

Thanks again to everyone for all the support and prayers. We feel so grateful for all the love and encouragement. We look forward to introducing you all to Jasper once he is healed from his heart surgury.
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So the balloon angioplasty was a success yesterday but there is still not near enough flow through the heart and the MRI showed possible damage to a heart valve. They dropped the success rate to less than 5% and the fatality possibility sky rocketed if we were to go ahead with the hybrid heart surgury. Our goal has always been to give Jasper the best chance, not risk his life in pushing the envelope for scientific advancement. We have asked to go back to the Norwood procedure and are requesting relocation back to Vancouver since our experiences in Toronto are nothing like we expected. At least with the Norwood he has a 75 percent survival chance. When we know more we will post it.
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The first heart surgury - balloon angiosplasty to open up his aortic valve went well, nothing bad happened. Used two balloons of different sizes. He's getting a MRI to determine exactly what they will do in the big open heart surgury next week.
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Read a Previous Update
Lynn Russell
30 months ago
2
2

Call Hope Air. They can help with flights. Also call Action Canada for Sexual Health and Rights for help with hotel accommodation. 1.613.241.4474. Or go online at https://www.sexualhealthandrights.ca They can be amazing help. Goid luck!

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Karla Allan
30 months ago
1
1

Prayers for your family and a full recovery for your baby boy. My daughter needed open heart surgery when she was 3months old, please have faith and hope, the team of doctors at bcch are amazing, I'm sure Toronto is the same. If or when you would like to talk to a family having been through a similar procedure you can reach out to Children's Heart Network - www.childrensheartnetwork.org

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Ashley Siebert
30 months ago

The doctors and nurses at Childrens are so awesome! They saved me with my open heart surgeries and are very good with the families. Sending you guys so much support!

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Rebecca Lee
30 months ago

Sending all my love and positive energy to you and your little one. Big hugs!

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Marion J. Hunter
30 months ago

Do not forget Friends of the Family for help

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Mandy Erickson
30 months ago

Love you guys

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$11,285 of $11,000 goal

Raised by 110 people in 30 months
Created February 11, 2017
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$100
Doug Der
26 months ago

Sending good thoughts for a bright future for Jasper

$20
Amber Leal
26 months ago

Prayers are with you

$400
Anonymous
26 months ago
1
1
JJ
$20
Juie and Keith Jones
26 months ago

Sending lots of healing light your way. Karen and Herman are friends of ours and I really feel for your family during this time.

PH
$25
Paula Hosking
26 months ago

Much love to you all! ❤️

SM
$20
Shannon McCready
26 months ago

You are in our thoughts. Hugs to you. -Melissa and Shannon

CA
$50
Celine Angus
26 months ago
$100
Trina Pfannmuller
26 months ago

Love you guys ❤️

$40
Anonymous
26 months ago
CS
$20
Carla Sitko
26 months ago

Best wishes to your family! Keeping baby Jasper in our thoughts ❤️ Nathan & Carla

Lynn Russell
30 months ago
2
2

Call Hope Air. They can help with flights. Also call Action Canada for Sexual Health and Rights for help with hotel accommodation. 1.613.241.4474. Or go online at https://www.sexualhealthandrights.ca They can be amazing help. Goid luck!

+ Read More
Karla Allan
30 months ago
1
1

Prayers for your family and a full recovery for your baby boy. My daughter needed open heart surgery when she was 3months old, please have faith and hope, the team of doctors at bcch are amazing, I'm sure Toronto is the same. If or when you would like to talk to a family having been through a similar procedure you can reach out to Children's Heart Network - www.childrensheartnetwork.org

+ Read More
Ashley Siebert
30 months ago

The doctors and nurses at Childrens are so awesome! They saved me with my open heart surgeries and are very good with the families. Sending you guys so much support!

+ Read More
Rebecca Lee
30 months ago

Sending all my love and positive energy to you and your little one. Big hugs!

+ Read More
Marion J. Hunter
30 months ago

Do not forget Friends of the Family for help

+ Read More
Mandy Erickson
30 months ago

Love you guys

+ Read More
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