Carter's Warriors

$3,995 of $15k goal

Raised by 67 people in 20 months
Ayla Vineyard
on behalf of Jen Hill
 IOWA CITY, IA
Carter Hill will be 2 on August 14th.  His Mama, Jen, had noticed significant bloating in his abdomen for some time.  A week ago, she noticed his liver being distended.

Her mommy instinct got him in for a scan which showed an enlarged spleen and liver.  He was initially diagnosed with a choledochal cyst on his bile duct.  He went in for surgery on Monday, the 15th, which lasted over 4 hours.  After which, he showed signed of improvement, followed by distress, which brought him in for his second surgery yesterday, the 17th.  

He has two very rare congenital conditions (choledochal cyst and congenital hepatic fibrosis) that make this recovery process very unique and unknown.

He is currently under sedation and on a ventilator.  The expected hospital visit is looking like a few weeks.

This all has happened suddenly for the Hill family, and as anyone can imagine, the medical bills in addition to missing work and being over an hour from home are a challenge, and a stress the family shouldn't even have to think about in this very trying time.  We are asking for any donations to help ease this stress.  

This page will continue to be updated as we find out more about Carters' progress and diagnosis.
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 456 total shares
Update 6
Posted by Ayla Vineyard
20 months ago
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A message from momma:

Carter continues to get stronger each day. All tubes and wires have been pulled other than his PICC line that is still providing small amounts of nutrition until his appetite returns. The current plan is to possibly go home tomorrow! Thank you again for the support and prayers ❤❤❤
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Update 5
Posted by Ayla Vineyard
20 months ago
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Carter started working with physical therapy today. He got to go for a wagon ride! He even took a few wobbly steps with their help. He definitely has a long road ahead of him..
They have finally given them a diagnosis of congenital hepatic fibrosis. It's so rare that the doctors are relying on small group and single case studies to provide the family with information. For example, one study found that 20% of children require a liver transplant within 14 years of diagnosis. Their GI doc has seen less than 5 cases in 25 years. Please continue to keep sweet Carter and his family in your thoughts and prayers!
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Update 4
Posted by Ayla Vineyard
20 months ago
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Today was a great day! Carter's fever is gone and they removed more wires and tubes. They are hoping tomorrow will be the last day in PICU. He is still weak from all the surgeries but he is definitely on the road to recovery!
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Update 3
Posted by Ayla Vineyard
20 months ago
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Little Carter is awake! His fever is holding steady at 100, and his abdominal distention hasn't gotten any worse! Continue to keep him in your thoughts!!
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 456 total shares
Read a Previous Update
Karrie Stell
20 months ago
1
1

I can say i do understand how bad it is to hear bad news about your child and have no way to make it better but being a good mom and staying beside him and loving him. Hit your knees and pray hard. Prayer does work. That is what got me through the 18 1/2 month battle with my son. Ill be praying for family and your sweet son. May gods blessings come your way.

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$3,995 of $15k goal

Raised by 67 people in 20 months
Created June 16, 2015
Ayla Vineyard  
on behalf of Jen Hill
AH
$25
Andy Hallman
19 months ago

Sending prayers for a speedy recovery! Little Carter is a trooper!

AV
$20
Ashley Vance
19 months ago

Thinking of you and your family.

$50
Anonymous
19 months ago
AG
$150
Astred Griffin
20 months ago
SR
$100
Sheila Ross
20 months ago

so thrilled for everyone that he is recovering so well

$30
Anonymous
20 months ago
$400
Anonymous
20 months ago
$25
Anonymous
20 months ago
SJ
$30
Susan Jatkowski
20 months ago

All love and blessings to you and little Carter.

TE
$20
Tena & Andrew Edlin
20 months ago
Karrie Stell
20 months ago
1
1

I can say i do understand how bad it is to hear bad news about your child and have no way to make it better but being a good mom and staying beside him and loving him. Hit your knees and pray hard. Prayer does work. That is what got me through the 18 1/2 month battle with my son. Ill be praying for family and your sweet son. May gods blessings come your way.

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