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Carol Perry -our motivator needs our help!

$15,825 of $25,000 goal

Raised by 123 people in 4 months
Created March 30, 2019
Fundraising Team
on behalf of carol perry
Our friend Carol Perry is sick- she is now having to endure chemotherapy every day this month  which is causing the most energetic person I know to be immobilized.  She is unable to work and we dont know when she will be able to again.    Everyone that knows her has never gone to a class that she has taught and not come away happier and stronger.  It is now time for all of us to help her out.  While I dont know the technicalities of her disease, I do understand how financially crippling an illness like this can be for anyone - Let show our love and support for this wonderful person who is an icon to the fitness world in New England and the country.
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Hello from Mass General ER... What started out as a routine vestibular physical therapy appointment today has ended with our friend Carol being admitted to the ER with no feeling in her hands and legs. She will probably stay here for several days and hopefully come out stronger!!
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Friday June 6 th. Blasting this once again just because its FOREVER beyond beautiful. Keep in what ever fight your in with a gracious spirit , peaceful mind and pure soul. I’m facing the toughest battle of life I’ll ever faced right now , but I’m not facing it alone. I’m not giving up. .stay blessed. Ly
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Latest news from BOSS LADY!
May 29 th 2019. .

The Acceptance. .

This is an iconic video clip of my Hip Hop dance class 1994 at The Newport County YMCA. This clip is courtesy of Kelly Clemens. Very thankful she caught this on camera. Who had access to video on phone back then? Only the great KC THATS WHO.
Being able to view this piece of history brings pure joy and happiness into my heart . It’s not because of the age I was in this video but for the real life energy that my body had been so wonderfully blessed with all my life. This ebb and flow of my body moving, celebrating and exploding out 100% pure love and energy was a true gift from so many spiritual and iconic levels. This exchange I was able to give and love that was received was electric. . The exchange was food for my soul. I watch this and although it’s 25 years past I connect strongly with the undroppable energy God had given me lifelong .
How can it be fast forwarding to last night, where i find myself struggling to walk up to my streets stop sign and back? I kept asking myself this question. I was forced to receive this news now. I couldn’t deny this anymore. It was happening. I thought how at one point I used to teach 22 dance and fitness classes a week and can now barely make it 1/25 th of a mile alone. My tears come down heavy as I talk myself into accepting this for now. there’s a steady flow of tears that aren’t stopping and that are possibly clearing my path ahead for what Gods plans are for me in this delivery of Vasculitus.
I have been blasted with heavy prednisone for over the last 6 months. Now that I’m fully in treatment with Chemo they are slowly weaning me off this which is a worse ride of discomfort then the disease and nerve damage combined. Between the nauseous from chemo drugs, heavy shortness of breath , and flat out exhaustion ....it’s brought me to deep faith patience and more hope then I have ever prayed for to soldier through this war.
This Wednesday the 29 th of May I’m back up to Boston for another double chemo treatment. Dr R tells me it’s going to be a rough ride for the next year , next two to three months will be difficult. I continue to hope and pray for this treatment to help me get back to my heartbeat in life one day.
I’m not able to help myself with the vestibular damage out in California until chemotherapy is complete. I have such a way to go still but continue to stay focused and strong in my faith and can gratefully see recovery somewhere out there.
My deepest gratitude to all who continue to support this journey I’m on. Your acts of kindness and contribution of care and love you share my way are beyond incredible. Thank you for being kind humans. Thank you for sharing love. Love love love love love love....ily xx
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he Rescue...

The desperate diagnosis I’d been searching for came late February 2019 , I had been sick for 18 months prior. Vasculitus small cell effecting inner ear, sinus and upper respiratory. I had seen over 20 Drs who weren’t able to catch this disease. . I was gratefully recommended by my neurologist to see Dr Gilek from Brown University which was an excellent reference. 1 st appointment she aggressively sent me for tests and wanted me back the next day, as she told me I knew there was concern as she wanted to start immediate treatment. Under her direction I started quickly on chemo injections for one month once a week. Behind that she scheduled me to continue Hospital chemo another month of infusion weekly.
15 days later I was not able to start that immediate treatment because my insurance company would not approve the medication, they would not approve chemo unless it was generic form, however there is no generic for this chemo.
During that time I had seen my sinus doctor in Boston and he referred me to a Vasculitus specialist right there.
I literally was sitting again in Boston the next day with the vasculitis specialist clinic.
They changed my prescriptions around and wanted me to start immediately taking an oral chemo for three weeks and then I was going to go to their clinic and get the same 6 hour infusion Brown had planned on. Again insurance company sat another 15 days not approving Chemo needed to control this nasty monster. Again refusing my medicine for a generic which there’s not one available.
I was left to get sicker ... I was and I did. My body was failing now fast . The insurance companies literally left me to fail. My body I knew and cherished and respected through health and fitness over my entire life was failing me. I was beyond heartbroken. Insurance companies don’t care or help. If there’s not a generic drug to replace they let you fall and walk away. Bye bye life. We need a generic drug otherwise we don’t hear you, care about you surviving, it will move to help you until it’s the cheapest. .
I now had lost all feeling in arms legs hands and feet. Dr Nikes rushed me to Mass General for admittance. Because the insurance company’ made me wait one month my body had been fully attached by disease. He said that because insurance companies wouldn’t spend the $4000.00 for the medication needed they now would be billed a three day full blown hospital stay.
And then the rescue happened.
The picture you see is my team of hero’s who stayed by my side, the entire time I received back to back infusions. This team was medicine drs, specialty drs, physical therapists, and my hero team of nurses who stayed my side.
A very major shout out to Mass General Hospital Medical team that rescued me from a medical catastrophe. This is my anchor my life right now. I have such a journey ahead to continue but the love , compassion and care these hero’s gave me saved my life.
I am extremely grateful and thankful to each and every single one of you who support me.
Your love has become the wind beneath my wings. May 27 th I’m back to Boston for another double dose. This is such a tough ride. I didn’t think I could do this , but because of you all , I know I can. I can do this. I love and thank you from my deepest heart strings. I will continue to pray for you all and please keep me in your highest vibe
Much love and gratitude,
Carol Perry
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$15,825 of $25,000 goal

Raised by 123 people in 4 months
Created March 30, 2019
Fundraising Team
on behalf of carol perry
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