Help Families Affected by Canavan

$1,765 of $10,000 goal

Raised by 13 people in 24 months
I am trying to raise enough money so that families can get together at the 2017 Canavan Research Illinois Benefit and meet the leading research teams working on Canavan disease.
As the parent of a 19 year old child living with Canavan disease I know firsthand how expensive it is to raise a child with profound and multiple special needs.

On October 21st Canavan Research Illinois will hold its annual event for the 19th year. Leading experts will be on hand for personal appointments with families. This is a wonderful opportunity for families to travel to a central location and meet others going through similar life experiences. It is my goal to raise enough money to pay for hotel rooms for up to 20 families and even help with travel costs if possible.

Families like mine are already struggling financially and I would like to do everything possible to help alleviate some of the financial burden. I do not want any family to be forced to fundraise in order to attend this event so I am hoping to do it all for them.  All funds are being deposited directly to the bank account for Canavan Research Illinois, a tax exempt charitable organization to be used for helping families attend the 19th Annual Canavan Charity Ball.

If there is additional funding left after expenses are paid for all interested families funds will remain in the CRI account and be used for the Family Networking Program in 2018.

All donations are tax deductible to the full extent of the law. If you include your email address we will send you a thank you note from CRI as well.  For more information about CRI please visit our website.  
www.curecanavan.org
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Maxie's 20th Birthday is only two months away! Our family is extremely blessed and very fortunate in so many ways. In honor of Max's upcoming Birthday I would like to respectfully request that our friends and family would consider making a donation in Max's name to this GoFundMe page. Maxie truly has everything he needs. I have discussed this with him and he's overjoyed to use this huge milestone to raise funds for helping other affected families♥️♥️
Maxie and Mom at Family Day at camp♥️
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I am raising these funds in honor of my own son Max. He was hospitalized in early November for respiratory failure and septic shock. He remained in ICU for over a month and suffered two bouts with pneumonia and had to be placed on a ventilator on two separate occasions. We almost lost Maxie more than one time. Many other parents reached out to me in the hospital to offer support, share similar stories and words of encouragement. I would like to be able to do something wonderful in Max's name and help unite this amazing and strong group of parents and children. Thank you to everyone who has helped and hopefully we continue to raise money for these amazing children.
Maxie in the PICU with mom, Ilyce and his brother Alex. He finally went home a few days after this photo was taken!
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Karen Ferrandi
24 months ago

I have donated and I have FB about 20 people in hopes they will help. Blessings! ♥

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$1,765 of $10,000 goal

Raised by 13 people in 24 months
Created November 30, 2016
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MN
$100
Margaret Nyeholt
16 months ago
1
1

Happy upcoming Birthday to our hero Maxie Randell! You are the most loving, sweetest, smartest, person ever and it is just like you to want to help others this way. Your adoring grandparents, Gammie and Grandpa

RS
$100
Rita Shapiro
16 months ago
1
1

Thank you for organizing this Ilyce. It's so important for families to get together and receive support

$20
Tricia Wells
21 months ago
1
1

For Amber, Ariel, and Kaydi.

MN
$200
Margaret Nyeholt
22 months ago
1
1

In honor of Maxie Randell

MN
$100
Margaret Nyeholt
24 months ago
1
1

In honor of Max Randell. Maxie is the bravest warrior on the planet - a champion in every way. Plus - he is loving, sweet, smart and beautiful (inside and out). Maxie is my hero.

MN
$200
Margaret Nyeholt
24 months ago
1
1

What a wonderful thing to do! We are deeply moved by your endless dedication to the children and families battling Canavan disease.

Karen Ferrandi
24 months ago

I have donated and I have FB about 20 people in hopes they will help. Blessings! ♥

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