Help Ethan fight LCH and get through chemo
The surgery was a success and the tumor was completely removed. Ethan was diagnosed with Langerhans Cell Histiocytosis (LCH), a rare cancer-like disease that affects 1:200,000 children. While the diagnosis could be worse, this is still a serious disease with no government funding available for researching a cure. Ethan will be starting chemo during the first or second week of January, possibly on his 3rd birthday, and the next six months will be difficult as we begin the journey of beating this disease.
On September 27, 2011, our family was blessed with the addition of Liam, Ethan's younger brother. Melissa and I have used all of our available sick time through June 2012 with the leave that we took following Liam's arrival, making it difficult for us to be off of work. However, Ethan needs us around as much as possible, especially Mommy, over the next 6-8 weeks during his first round of chemo and during any future treatments. We are trying to raise money that will help with the costs of Ethan's care so that we can keep our focus on keeping his spirits up and beating this disease. Asking for and accepting help has been one of the most difficult things that we have done, but we need any and all help that you can provide. Anything helps and please repost this page wherever you think may help. We truly appreciate any and all support. Please keep Ethan and our family in your prayers as we begin our battle. Any money raised that is not used in costs associated with Ethan's treatment will be donated to help educate and/or research LCH.
However, Ethan is doing wonderful and I am so grateful for that!! His spirits are high and we haven't had any more issues with his blood counts being low either. He is an all around happy 3 year old. I like to think that my dad is watching over him and is his guardian angle.
Last Sunday, 101 days after his craniotomy and reconstruction and 2 days after his 13th chemo treatment, Ethan ran in a 1K to support Be The Match, a national bone marrow registry. He ran almost the entire way and had a fantastic time. He is so inspirational and refuses to let anything slow him down. I had tears in my eyes as I watched him cross the finish line.
Only 3 more chemo treatments left and then we are on to maintenance!! I can finally see a light at the end of the tunnel. A big thank you to everyone for all of your continued support.
Unfortunately our chemo vacation is coming to an end this Friday. He starts his second 6 week round of weekly treatments. He also has to go back on the prednisone. It has been nice not having to give him all the meds or go to the hospital on Fridays. We can make it through, 6 weeks and he will hopefully be on to the maintenance phase of treatment. He won't however be completely finished with chemo until January 2013. It's hard to believe that he will have been on chemo treatments for his entire third year of life.
He is doing amazingly well. He still hasn't lost any hair and isn't getting sick either. He is continuing to be my little Super Ethan.
This is great I was diagnosed with lch when I was 1 years old the lch destroyed my liver and had a transplant in 2006 I can't bear to think about how you all felt. As it is such a rare disease no one knows about and took my mum 6 months before they even looked into it I happy to hear he is getting treated if you would like to contact me please do
Ethan is a special little boy as are his parents. Prayers still going up daily
Great news. Prayers still ongoing.
Continually praying for all of you.
Yayyy, That is great news! It's amazing how these little kiddos can be so incredibly resilient. They really teach us all so much about life. Continued positive thoughts and prayers :-)
Sometimes they can flavor meds in suspension so the prednisone won't taste icky.
So happy that you are finally seeing the light at the end of the tunnel.
Lots of prayers going up for Ethan and family. Thank you for keeping us informed.
Thinking of the Haas family today as Ethan starts more tests. Thoughts and prayers with you!
Sending prayers and positive thoughts your way as you go through the new tests. Stay strong!
ill pray for you and your family Mr.Haas, stay strong.
I pray that he will have the Lord's comfort as he is undergoing these new tests. I pray for all the family at this time to know that they are loved and cared about.
Keeping you all in our prayers<3 Love, The Doyle Family
Hang in there!!! (HUGS) He looks like a fighter!! :)
I pray that Ethan's progress will be ongoing with no setbacks and that he will keep his wonderful personality thru this. Praying for all the family daily.
I am really touched by Ethan's story. Vicky Moore is my cousin (Dane Moore's mom) and she shared your story with me. My sons are 4 1/2 and 1 1/2 and I just can't imagine what you are going through. I LOVE the video of him singing Mr. Sun. I will pray for your family and provide a small donation. I'm glad the surgery went well and hope for the best during Chemo. Stay strong, you sound like wonderful parents doing all the right things for your baby :)
Ethan & family, I was a friend and neighbor of the Holman family when Pam, Teresa & I were younger. I totally understand what you are going through at this time. My youngest grandson was born with HYPOPLASTIC LEFT HEART SYNDROME. The left side of his heart was underdeveloped. He has had 2 surgeries so far and will need one more after he turns 2 in March 2012. He is doing well at this time. It is so hard to watch someone you love so much go through something like this. My prayers will continue for the entire family. Keep the faith for positive results. God Bless you all, Robin Altenberger
Please know Ethan and the entire Haas family are in our prayers! Tammy (Grant)