Rally for Bri! Medical Fundraiser
Donation protected
!!ATTENTION ALL FAMILY AND FRIENDS!!
In a time of overwhelming emotions, fear, and uncertainty, the last thing a family need to be worrying about are the financial obligations associated with this scary time. If you know me you know that I am not the kind to ask for help, but both Sandie and Brianne would give you the shirt off their backs, even if you weren't the kind to ask for help either.
Last week Brianne was admitted to Sick Kids Hospital in Toronto because her condition has declined to the point that Health Sciences North in Sudbury could no longer provide the care that needs to fight this horrible lung infection that is resulting in a scary rapid decline towards a need of life saving lung transplant. This is avoidable but Brianne and her loving mother need to remain in Toronto to get the help they so desperately need. This is where I ask my family and friends for their support,
I am asking for your help. If thats through a donation to show Brianne your in her corner through this fight then I am grateful. If you cannot provide a donation please reach out and show your love and share this post with your friends and family and ask them. What if this was your daughter? Thank you for any support you can provide my sister and goddaughter, it really means the world to me
See below for original campaign
Brianne came into this world as her mother Sandie’s pride and joy. She soon learned that sweet little newborn Bri was born with only one kidney, and while that wasn’t life threatening, she could potentially face some challenges through life.
After some time spent wondering why Brianne wasn’t feeling well, Brianne was diagnosed with cystic fibrosis at 3 months old. For those who don't know, Cystic Fibrosis Canada explains:
Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. At present, there is no cure.
CF is a multi-system disorder that produces a variety of symptoms including:
Persistent cough with productive thick mucous
Wheezing and shortness of breath
Frequent chest infections, which may include pneumonia
Bowel disturbances, such as intestinal obstruction or frequent, oily stools
Weight loss or failure to gain weight despite increased appetite
Salty tasting sweat
Infertility (men) and decreased fertility (women)
The other unfortunate side of this journey is that cystic fibrosis sufferers should never meet each other, as they carry bacteria within their lungs that could be harmful to each other. Though there are great organizations like Cystic Fibrosis Canada, meetings and conferences are places where such cross-infection could occur, so even at cystic fibrosis-related events they need to be kept at a safe distance from each other.
Multiple and reoccurring lung infections, daily physiotherapy, dietary alterations, nebulizer treatments, many pills and inhalers have been a part of her daily living for as long as she can remember. Brianne is now 16 years old and has faced her challenges as brave, resilient and insightful young lady. Through various hospitalizations and exacerbations of her disease, she has persevered and continued her way through the obstacles that high school life presents.
The most recent added challenge was a diabetes diagnosis. The constant blood glucose monitoring, insulin injections and added dietary “rules” have only added to the demands on her daily self care. In the last month, Brianne has had 2 diabetes induced seizures, resulting in hospitalizations - if it hadn’t been for a speedy response, could have resulted in coma or death.
The diligent glucose monitoring on behalf of both Brianne and Sandie hasn’t been enough. Luckily, there is a WONDERFUL piece of equipment known as a continuous glucose monitoring system which is permanently attached to Brianne, doing the monitoring for her and alerting her of any dangerous highs or lows as soon as possible! This would dramatically decrease the risk of seizures and could save her life. However because she is under 18, it is not covered and the system has an expense of $5000 a year.
Sandie has started to campaign for this coverage, and has contact the MPP regarding this issue asking for change. In the mean time, we hope this fundraiser could aid Brianne in getting a monitor for a year as well as raise awareness that all diabetes suffers under 18 should have access to this life-saving tool.
We hope to help Brianne navigate life with as many tools as possible, and hope you can help us make this happen! Your time is very much appreciated, and we hope to bring cystic fibrosis and diabetes awareness to as many Canadians as possible!
In a time of overwhelming emotions, fear, and uncertainty, the last thing a family need to be worrying about are the financial obligations associated with this scary time. If you know me you know that I am not the kind to ask for help, but both Sandie and Brianne would give you the shirt off their backs, even if you weren't the kind to ask for help either.
Last week Brianne was admitted to Sick Kids Hospital in Toronto because her condition has declined to the point that Health Sciences North in Sudbury could no longer provide the care that needs to fight this horrible lung infection that is resulting in a scary rapid decline towards a need of life saving lung transplant. This is avoidable but Brianne and her loving mother need to remain in Toronto to get the help they so desperately need. This is where I ask my family and friends for their support,
I am asking for your help. If thats through a donation to show Brianne your in her corner through this fight then I am grateful. If you cannot provide a donation please reach out and show your love and share this post with your friends and family and ask them. What if this was your daughter? Thank you for any support you can provide my sister and goddaughter, it really means the world to me
See below for original campaign
Brianne came into this world as her mother Sandie’s pride and joy. She soon learned that sweet little newborn Bri was born with only one kidney, and while that wasn’t life threatening, she could potentially face some challenges through life.
After some time spent wondering why Brianne wasn’t feeling well, Brianne was diagnosed with cystic fibrosis at 3 months old. For those who don't know, Cystic Fibrosis Canada explains:
Cystic fibrosis (CF) is the most common fatal genetic disease affecting Canadian children and young adults. At present, there is no cure.
CF is a multi-system disorder that produces a variety of symptoms including:
Persistent cough with productive thick mucous
Wheezing and shortness of breath
Frequent chest infections, which may include pneumonia
Bowel disturbances, such as intestinal obstruction or frequent, oily stools
Weight loss or failure to gain weight despite increased appetite
Salty tasting sweat
Infertility (men) and decreased fertility (women)
The other unfortunate side of this journey is that cystic fibrosis sufferers should never meet each other, as they carry bacteria within their lungs that could be harmful to each other. Though there are great organizations like Cystic Fibrosis Canada, meetings and conferences are places where such cross-infection could occur, so even at cystic fibrosis-related events they need to be kept at a safe distance from each other.
Multiple and reoccurring lung infections, daily physiotherapy, dietary alterations, nebulizer treatments, many pills and inhalers have been a part of her daily living for as long as she can remember. Brianne is now 16 years old and has faced her challenges as brave, resilient and insightful young lady. Through various hospitalizations and exacerbations of her disease, she has persevered and continued her way through the obstacles that high school life presents.
The most recent added challenge was a diabetes diagnosis. The constant blood glucose monitoring, insulin injections and added dietary “rules” have only added to the demands on her daily self care. In the last month, Brianne has had 2 diabetes induced seizures, resulting in hospitalizations - if it hadn’t been for a speedy response, could have resulted in coma or death.
The diligent glucose monitoring on behalf of both Brianne and Sandie hasn’t been enough. Luckily, there is a WONDERFUL piece of equipment known as a continuous glucose monitoring system which is permanently attached to Brianne, doing the monitoring for her and alerting her of any dangerous highs or lows as soon as possible! This would dramatically decrease the risk of seizures and could save her life. However because she is under 18, it is not covered and the system has an expense of $5000 a year.
Sandie has started to campaign for this coverage, and has contact the MPP regarding this issue asking for change. In the mean time, we hope this fundraiser could aid Brianne in getting a monitor for a year as well as raise awareness that all diabetes suffers under 18 should have access to this life-saving tool.
We hope to help Brianne navigate life with as many tools as possible, and hope you can help us make this happen! Your time is very much appreciated, and we hope to bring cystic fibrosis and diabetes awareness to as many Canadians as possible!
Organizer
Kyle Boucher
Organizer
Sudbury, ON
Inspired to help? Start a fundraiser for someone you know
