Brett Walls "Locked-In Syndrome" Fund
On February 27, 2014, Brett's life changed in an instant. With no warning he was struck with a brain-stem stroke due to a blood clot, leaving him in an extremely rare condition; Locked-In Syndrome. He was cognitively intact, could feel everything, hear and see, but he could only move his eyes vertically, the bridge from his brain to his body was severed. When he awakened he could not speak, breath on his on or move. He was trapped in his body. He was told he would never improve.
Since that time Brett has worked hard to prove the doctors wrong. He is regaining speech, eating some by mouth, movement and strength in all areas. Brett is determined to one day walk again. He will not stop believing in that dream. He believes that one day he will have a story of hope and recovery to share with those that come after him. He has come a long way. However with insurance guidelines and limited resources, he has a long way to go, requiring complete care. His wife, Gayle is his sole caregiver, thus is unable to work.
All money raised will help with living expenses, rehab and medical bills for the Walls family.
Brett's FB recovery page if you would like to follow/like = Brett Walls Journal of Recovery
Brett has been home for almost almost a year. He continues to defy his diagnosis. I can't help but wonder how many people have faced this grim diagnosis/prognosis and choose to "slip away". How many are lingering that could have experienced recovery if give the chance (rehab). We still have a long way to go, but we have come a long way too. Baby steps, every day. Brett would flourish in a more intensive rehab environment, but as it stands now most of his therapy is via me. We do what we can. Albeit slow, we are headed on the right direction, proving them all wrong. As too many of you know, the insurance industry is not focused on health and recovery. The industry has failed us. But I will say that being the squeaky wheel has proved beneficial. (Don't accept denials people!). If you would like to follow Brett's progress he has a FB recovery page, Brett walls journal of recovery - I will try to post a link in the next comment. Thanks so much for your support.
Gayle here . . . Wanted to give you an update. Brett came home on November 6. While he has a long way to go, he is defying the original prognosis. After loosing muscle mass as we fought with UnitedHealthCare for the rehab he deserved and desparately needed, we finally got his body mobilized with rehab first at Forest Hills care center, then the world renowned rehab hospital, RIC, in Chicago. Unfortunately that rehab was much shorter then his condition requires. He recently began outpatient rehab, but again - only 20 visits allowed per year. His needs require 20 visits per month. Today Brett still requires complete care, but he is regaining mobility in all extremities, beginning to talk, eats soft foods (and occasionally must have a bite of not-so-soft food if the temptation to cheat overcomes rational thinking). Despite limitations in resources, somehow we are going to get him there. Brett believes he will have a significant recovery, and so do we. He believes he will walk again. And so do we. And we thank you for believing, for your prayers and for all of your support that comes in many forms. We are forever changed because of people like you.
I wish we could personally thank you all. This is such a difficult place to describe. We are fighting for so much. Brett, for his life. Me fighting for Brett, fighting with insurance, fighting not to lose our home and all that we have fought so hard to build. It's shattering in many ways, yet the thoughts, prayers and generosity of friends family and complete strangers . . . With you and God's help we are able to get through the days, one at a time, so thank you from the bottom of our hearts. I believe that some day we will have a story to tell of hope and recovery. I hope that we can pay it all back in spades. Thank you for giving me legs. Thank you for giving us hope. Xoxo Gayle Payton Walls