Bob Taylor ALS Support Fund
For most us, our lives have this unknown expiration date. Which, unfortunately, gives us a false sense of time and mortality.
We are given 1440 minutes each day, seven days a week for 365 days a year. When you are young, it seems like a lot. As you get older, you wonder where all that time has gone
We toss away a movie date with our mom, because obviously, there will be other movie dates. We fail to appreciate a casual visit from a brother or a sister, because, tomorrow we will certainly see them again. A day watching baseball with your father is just another summer day, like any other you have spent your entire life.
Then, suddenly, someone gives your life a countdown clock. A doctor puts an expiration on the time you have left with those whom you love most. Your father is given two years, maybe five, and in the blink of an eye you realize you won't have anymore movie dates or casual visits or baseball games.
For the last few months, my father, Bob Taylor, has been slowly losing mobility in his shoulder. Being a professional baseball player in his twenty's, we believed perhaps his throwing arm was simply breaking down. After a few weeks, the paralysis moved to his neck and then he began having trouble swallowing.
Quickly, we realized something more significant was taking place.
After three months of tests and MRI's, the prognosis appears to be a form of Amyotrophic Lateral Sclerosis (ALS), better known as Lou Gehrig's Disease.
For those closest to Bob, and the Taylor family, you know we have always worked very hard for the life we have. While insurance will cover some of the medical costs, there will be other, unknown expenses my father will somehow need to account for. My mother will need to focus on the care and support of my father, and will not be able to financially provide for these unknown expenses.
This is why we have started this Go Fund Me page. To help ease some of the financial burden my parents will be facing in the coming months.
The Taylor family has always been stubborn, but resourceful. We make the most of life and find the humor in even the darkest times. This experience, this new journey, will be no different.
On behalf of my parents, Bob and Jane, my sister Ashley, as well as the entire Taylor family and our huge extend family of Kuesters , Cantrells and Wagners, I would like to thank you for any contribution you are able to offer. Every penny will be valued and appreciated.
In addition, please note that 10% of any money we raise will be donated to The Joe Martin ALS Foundation so that more families can spend more summer days watching baseball with thier fathers, grandfathers, brothers and sisters.
Start with Love.
Stay with Love
End with Love.
Today this conversation happened:
Jane: "Oh look Bob, William Christopher died, he played Father Mulcahy on M.A.S.H....he was 84."
Bob: "Sounds pretty good to me."
Well played Dad...well played.
Although the news of my father's condition was unwelcome, the overwhelming outpouring of prayers and wishes has been comforting.
In 2017, we will continue to work to help my father transition into this new chapter and we will hope for new treatments for this unfortunate disease.
Thank you all again for your donations and kindness.
We went over what to expect over the coming weeks, months and years.
This next chapter in my father's life will be challenging, but it will be one we will face head on with courage.
Since launching this GoFundMe page, we have raised nearly $3,500 with 10% of those funds going back to the Joe Martin Foundation so that others can benefit from the generosity of our friends and family.
In the last week, we raised almost $2,400, which will help my parents with any number of unexpected expenses which could come up.
On Friday, we are meeting with some of the wonderful people at the ALS Foundation and we will inform them that 10% of all the money we raise in this campaign will go back to help with ALS reasearch.
Thank you again,