BJ Williams Bone Marrow Transplant
Donation protected
Billy Joe Williams, (BJ, BONES, JillyBo )
Chattanooga,TN
Red Bank High School 2007
I'm Michael Williams, Billy Joe's dad and our family is seeking to raise funds for an up coming bone marrow transplant that he will be needing. Billy will have to go to Seattle Washing to children Medical hospital for a bone marrow transplantation. billy has been dianoised with I.P.E.X. syndrome a very rare disease (200 cases world wide).
I.P.E.X. Syndrome (immunnodysselectingregulation polyendocrinopathy,X link syndrome) is a rare disease linked to the dysfunction of the transcription factor FoxPE, widley know to be the master regulator of the Tcell lineage.
This autoimmunity is called IPEX and is the attack od the bodies on immune system against the body's own tissues and organs. Early age onset of this disease in males causes severe enlagement of the secondary lymphoid organs, insulin dependent diabetes, eczema, food allegies and inffections. There has been limited succes in treating the syndrome by bone marrow transplantion.
We are raising this money to cover living expenses and other nesecities that will be needed to for the 6 month period he will be staying there. His mom will be joining him to be by his side through the procedure. It will be a very long road for Billy. The whole process can take up to a full year before we truely see the full rewards.
We are trying to gather the funds as soon as we can. the doctors want to do this tgransplant during the summer months to minimize the risk for inffections.
I know this is short notice but we have only know aboout this for about a month now. We are trying to get as much of this by June 15th 2016
Your donation will be so gratefully appreciated by our whole family to hopefully allow Billy to lead a some what normal life without all these illneses. Billy if you ever have a chance to meet him would be the first to let you know quickly how much he aapreciates your donation.
Chattanooga,TN
Red Bank High School 2007
I'm Michael Williams, Billy Joe's dad and our family is seeking to raise funds for an up coming bone marrow transplant that he will be needing. Billy will have to go to Seattle Washing to children Medical hospital for a bone marrow transplantation. billy has been dianoised with I.P.E.X. syndrome a very rare disease (200 cases world wide).
I.P.E.X. Syndrome (immunnodysselectingregulation polyendocrinopathy,X link syndrome) is a rare disease linked to the dysfunction of the transcription factor FoxPE, widley know to be the master regulator of the Tcell lineage.
This autoimmunity is called IPEX and is the attack od the bodies on immune system against the body's own tissues and organs. Early age onset of this disease in males causes severe enlagement of the secondary lymphoid organs, insulin dependent diabetes, eczema, food allegies and inffections. There has been limited succes in treating the syndrome by bone marrow transplantion.
We are raising this money to cover living expenses and other nesecities that will be needed to for the 6 month period he will be staying there. His mom will be joining him to be by his side through the procedure. It will be a very long road for Billy. The whole process can take up to a full year before we truely see the full rewards.
We are trying to gather the funds as soon as we can. the doctors want to do this tgransplant during the summer months to minimize the risk for inffections.
I know this is short notice but we have only know aboout this for about a month now. We are trying to get as much of this by June 15th 2016
Your donation will be so gratefully appreciated by our whole family to hopefully allow Billy to lead a some what normal life without all these illneses. Billy if you ever have a chance to meet him would be the first to let you know quickly how much he aapreciates your donation.
Organizer
Mike Williams
Organizer
Chattanooga, TN
