BJ Williams Bone Marrow Transplant

$6,710 of $35,000 goal

Raised by 56 people in 35 months
                      Billy Joe Williams, (BJ, BONES, JillyBo )
                                        Chattanooga,TN 
                              Red Bank High School  2007

I'm Michael Williams, Billy Joe's dad and our family is seeking to raise funds for an up coming bone marrow transplant that he will be needing. Billy will have to go to Seattle Washing to children Medical hospital for a bone marrow transplantation. billy has been dianoised with I.P.E.X. syndrome a very rare disease (200 cases world wide).

I.P.E.X. Syndrome (immunnodysselectingregulation polyendocrinopathy,X link syndrome) is a rare disease linked to the dysfunction of the transcription factor FoxPE, widley know to be the master regulator of the Tcell lineage.
This autoimmunity is called IPEX and is the attack od the bodies on immune system against the body's own tissues and organs. Early age onset of this disease in males causes severe enlagement of the secondary lymphoid organs, insulin dependent diabetes, eczema, food allegies and inffections. There has been limited succes in treating the syndrome by bone marrow transplantion.

We are raising this money to cover living expenses and other nesecities that will be needed to for the 6 month period he will be staying there. His mom will be joining him to be by his side through the procedure. It will be a very long road for Billy. The whole process can take up to a full year before  we truely see the full rewards.
We are trying to gather the funds as soon as we can. the doctors want to do this tgransplant during the summer months to minimize the risk for inffections.
I know this is short notice but we have only know aboout this for about a month now. We are trying to get as much of this by June 15th 2016
Your donation will be so gratefully  appreciated by our whole family to hopefully allow Billy to lead a some what normal life without all these illneses. Billy if you ever have a chance to meet him would be the first to let you know quickly how much he aapreciates your donation.
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Hello everyone!

I wanted to give you an update on BJ'S condition. He has had a few set backs during his stay in Seattle but it looks like things may be making a turn for the good. He had Host vs Graph Disease (HGV) set in in his skin and stomach. They have been able to treat his skin issues with a procedure called ECP that treats his blood with ultraviolet lights and that has worked extremely well. They are now treating the HGV in his stomach with a experimental drug. This was declined by the insurance company because it is considered an experimental drug, even though it's been out for 10 years. We were able to get it approved due to his lack of income. He had been in the hospital for 37 days but because of the drug he got released last Thursday. He seems to be making progress and we are hoping that he is on the last leg of this journey. To say Beth and BJ have been through it would be a understatement.'
I wanted to post this to give everyone a update on his progress.

I am with reluctance reaching out for any assistance you may be able to give to get them through hopefully these last few weeks of treatment. I don't have a timeframe or date at this time but will post it as soon.

Thank you again for all your past support and as I hear something I will make sure to post it.

From all of Thank You again and God Bless you.

Sincerely,

The Williams Family
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Hello Everyone, I just wanted to let everyone know what's going on. We are waiting for test results back to see if Cody or Madyson are matches. If so then I'm sure everything will be set in motion to get him to Seattle. Doctors tell us the summer season is the best time due to least amount of viruses floating around.
Again from all of us thank you so much for your prayers and thoughts.

The Williams
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Thanks everyone for your generous contributions. I'm more that amazed and so grateful at the gestures and contributions from you guys. We are off to a good start for "A new beginning for Billy" please share with all your friends.

Thanks again for helping Billy at a difficult time in his life. Bless you all.

The Williams
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Hello everyone I just wanted to let you know that the gofundme account has been set up for my son Billy Joe Williams. We want to thank everyone in advance for your prayers and comments.

The Williams Family
www.gofundme.com
Billy Joe Williams Medical
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Read a Previous Update
Karin Brands
35 months ago
2
2

My daughter was treated at St. Jude's in Memphis for cancer. We met people who were being treated for conditions like your son's? Have you and your doctors looked into them?

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Wendy Meachem
33 months ago

How old is your son? Lee was diagnosed at 4 months, transplanted at 6 months and thriving

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$6,710 of $35,000 goal

Raised by 56 people in 35 months
Created May 11, 2016
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GK
$200
Gregg Kitzelman
32 months ago

Our prayers and thoughts are with you and your family

$50
Jeff Girman
32 months ago

Many blessings for your son BJ...he will be in my prayers.

JJ
$250
Jay Jumper
33 months ago

Thinking about you BJ.

Karin Brands
35 months ago
2
2

My daughter was treated at St. Jude's in Memphis for cancer. We met people who were being treated for conditions like your son's? Have you and your doctors looked into them?

+ Read More
Wendy Meachem
33 months ago

How old is your son? Lee was diagnosed at 4 months, transplanted at 6 months and thriving

+ Read More
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