Stephen's Medical Expenses

$1,761 of $15,000 goal

Raised by 47 people in 43 months
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My cousin, Stephen, who is 31-years-old is suffering from complications of a Pineal cyst removal as well as a Chiari I Malformation Decompression surgery that failed.  

That means there is fluid pushing against Stephen's brain, which is causing a lot of pain and pressure on his brain.  There are complications such as signal abnormalities showing up on his MRI after only a couple of months.  Stephen has also started having problems with his heart, he has seizures, trouble with his kidneys and a myriad of other health issues.  Because of all the additional problems with Stephen's health, he has really deteriorated. 

Right now, Stephen has days when he can’t get out of bed and others when he wants to just shoot for the moon.  Some of his physical issues are: he is unable to control his body temperature, has Grand Mal seizures, he passes out for periods of time because of his heart problems, has bad anemia and episodes of Parkinson's shakes.  There are good days, and there are really tough days.

Stephen has been unable to work since his health problems started.  Lesley (his wonderful wife) is working on getting her degree in Epidemiology to better support her family.  To fund that, she is serving her community through AmeriCorps, which is a program that pays for her school and provides a very minimal stipend, but doesn't allow her to work in another job during her service term.  They are working on getting insurance assistance for Stephen, but at this point, he isn't covered on any insurance plan.  Needless to say, they are working on an incredibly low budget and the medical expenses are only growing.  Right now, Stephen's day to day care is provided by their son, Drew; but he will be leaving on an LDS mission to Argentina in just a few months.

Stephen and Lesley are some of the greatest people I know.  Stephen has overcome so much in his life and has made a conscious decision to be a better person for it.  It’s frustrating that this is going on when he has finally settled down and chosen to lead a productive life.  Lesley is endlessly positive and upbeat.  She loves to great depths that few others do.  She has overcome much in her life, including two battles with cancer.  Stephen and Lesley are more than deserving of as much help as we can get for them.

Stephen and Lesley appreciate all their family and friends and how they are serving them- even the "small" things mean the world to them; things like help with rides to doctor's appointments and daily care are invaluable to them.

If you are able to contribute to Stephen's medical care and trip to New York for a brighter future, even just a couple dollars, they would be eternally grateful.
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We received the dictation from the surgeon from New York and Stephen followed up with his Medical Doctor here in Utah because he had not been feeling well for the past two weeks. Apparently Stephen has been diagnosed with Occipital Neuralgia and now both doctor's are fighting for Stephen to get Social Security. Lesley fought to get back Stephen's Disability Medicaid, and won. The state of Utah decided to return Stephen's coverage and decided he in fact is disabled after all. We surely appreciate your continued efforts and will need so much more as we head into the next phase and prepare for Stephen's third brain surgery.
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Thank you so much for spreading the word to all you know. Because of people sharing Stephen's story, we have found a little hope.
Through Facebook, a woman contacted my cousin. She founded an organization called Chiari Spirit Fighters, which helps people find other options when they have been given a hopeless diagnosis, like Stephen had.
This group has put Stephen in contact with a Neurosurgeon in New York that may be able to help him. Stephen has spoken to one of the doctor's former patients that has recovered incredibly well after a similar dismal diagnosis.
Now we're working with a glimmer of light-- to get Stephen to the help available in New York. Thank you so much for sharing his story and helping us reach our goals to help my cousin and his family.
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Stephen and his family found out today he was denied Social Security Disability Insurance. That means Stephen won't be receiving Medicare as hoped. He'll be reapplying, but it's pretty devastating news right now.
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$1,761 of $15,000 goal

Raised by 47 people in 43 months
No Longer Accepting Donations
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Created January 13, 2015
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$20
Anonymous
40 months ago
RP
$50
raisa pruitt
41 months ago

Please people soften your hearts and help Stephen, it is a matter of life and death and it is getting worse by the minute, what would Jesus do? Please help!

LR
$20
Lazara Rodriguez
41 months ago

Sending prayers for Stephen and his family and my cousin Lesley. Hugs and Kisses Love, Jackie and Lucrecia

$55
Aurora Resina
42 months ago

See u in Utah in less than 3 weeks!! $5 of this donation came from my sweet client Peggy. I love you, Chusmi & Stephen :-)

$25
Jason scott
42 months ago

Rev. 21 3-4 Agape love you all

JA
$50
Juan Arnold
42 months ago

Hope you get better man Never give up!!!

$25
Anonymous
42 months ago
$25
Anonymous
42 months ago
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