Wheelchair Van for the Beg Family
Donation protected
All three of the Beg family's daughters have Sanfilippo Syndrome (MPS IIIA), a devastating disease. They were diagnosed in 2002 when Abeerah was 5, Khansa was 4 and Zahra was 1.
http://caringbridgeclassic.org/nj/helpourgirls/
Sanfilippo Syndrome is a genetic error in the metabolism. It is a progressive disorder, meaning over time the girls have lost the ability to talk, walk, and swallow. Sadly, there is no cure and their lives will be taken much too soon from this cruel disease. Abeerah, Khansa, and Zahra are all in the final stage of the disease, meaning they are completely wheelchair dependent and rely on feeding tubes for nutrition/hydration.
As the mother of two children with this syndrome, our family has benefited from the kindness and generousity of others. When I think of having three children with Sanfilippo, plus two sons (one of whom has an autism diagnosis), I am compelled to act.
Wheelchair vans that can accommodate three wheelchairs are very expensive! It is my goal to raise the funds to purchase a wheelchair van for the Beg family so the girls can be in appropriate pediatric wheelchairs for proper positioning and to prevent skin breakdown (pressure sores). Their mother and father also need to be able to use a lift system to wheel the girls into the van and be safely secured.
I am dreaming big, so should we exceed our desired amount we are going to use the excess funds to purchase new wheelchairs for the girls who are currently using pediatric strollers which lack the necessary support they require.
Thank you for considering our cause. We hope you can join us in our effort to equip the Begs with a van they so desperately need.
http://caringbridgeclassic.org/nj/helpourgirls/
Sanfilippo Syndrome is a genetic error in the metabolism. It is a progressive disorder, meaning over time the girls have lost the ability to talk, walk, and swallow. Sadly, there is no cure and their lives will be taken much too soon from this cruel disease. Abeerah, Khansa, and Zahra are all in the final stage of the disease, meaning they are completely wheelchair dependent and rely on feeding tubes for nutrition/hydration.
As the mother of two children with this syndrome, our family has benefited from the kindness and generousity of others. When I think of having three children with Sanfilippo, plus two sons (one of whom has an autism diagnosis), I am compelled to act.
Wheelchair vans that can accommodate three wheelchairs are very expensive! It is my goal to raise the funds to purchase a wheelchair van for the Beg family so the girls can be in appropriate pediatric wheelchairs for proper positioning and to prevent skin breakdown (pressure sores). Their mother and father also need to be able to use a lift system to wheel the girls into the van and be safely secured.
I am dreaming big, so should we exceed our desired amount we are going to use the excess funds to purchase new wheelchairs for the girls who are currently using pediatric strollers which lack the necessary support they require.
Thank you for considering our cause. We hope you can join us in our effort to equip the Begs with a van they so desperately need.
Organizer
Tayyaba Beg
Organizer
Fairfax, VA
