Bee's Transplant Tribulations

$9,126 of $15,000 goal

Raised by 145 people in 29 months
Throughout the last year, Bernadette has had her medical ups and downs. We moved cross country for better medical care to get her off IV nutrition (TPN) and on tube feeds.
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At CHOP they tried to jumpstart her gut with no avail--it simply wasn't perfusing well enough to supply blood to her (what was left of her) intestines to digest and caused bleeding as a result. Due to the damage sustained in surgery, as a result of clotting and sustained by TPN and lipid infusion, Bee has end stage liver disease on top of her short gut syndrome. She has been in one hospital or another since early September and will until she receives the multi organ transplant she is currently waiting for.
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Bernadette is in Washington DC awaiting a donor for a multi-visceral transplant (liver, small bowel, pancreas and stomach). She is very high on the list, as high as she can be, but organ donation is a "game of luck" as the doctors say and there have been no offers yet. If she is lucky enough to get a second chance at life, it will be a long, tough road to discharge from the hospital and the ability to go home to Philadelphia. It requires 4-6 months of living in DC after discharge for doctor's appointments and unexpected inpatient stays. It requires many, many daily medications that are timed to the minute to prevent infection and rejection (where your body attacks your new organs) among other things. It requires a lot of time, love, and dedication.
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Until her transplant, we will strive to value every moment with her. We appreciate any love, prayers, support that is offered! Thank you from the Sanchez family!
Find her daily story in her Facebook group Hive Five for Bee. 
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Bernadette was blessed with a transplant last night! She has a long road ahead of her. In our excitement we must not forget the pain and anguish her donor's family is going through right now. Thank you so much for selflessly helping our daughter be granted a second chance at life.
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I'm overwhelmed with emotion over the generosity of everyone who has never met our sweet baby, Bee! Thank you so much for the support. I never thought in my wildest dreams that sharing the anecdote about her surgeon would have turned into such an outpouring of love and support.
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Bernadette is patiently waiting for transplant still. Her labs are stable for her and that's all we can ask for right now. Thank you all for your support, love and prayers again. It has definitely helped ease the burden a bit.
Follow Bee's journey on Facebook for more detailed updates.
Bee playing in her favorite chair.
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Thank you all for your love and support! When waiting for transplant, there's not really too much to update on unless you're either called with an offer or you take a turn for the worst. So nothing major to report, just a lot of gratitude for all you've done for us. I, we, can't thank you all enough.
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$9,126 of $15,000 goal

Raised by 145 people in 29 months
Created April 10, 2016
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JT
$5
John Tischler
16 months ago

Hang in there kid! You're doing great and you have a lot of life to look forward to.

$25
Anonymous
23 months ago
$100
Anonymous
23 months ago
$10
Anonymous
27 months ago
JJ
$50
jeanne johns
27 months ago
1
1

God bless you Bee and family!

$30
Anonymous
27 months ago
$20
Anonymous
27 months ago
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