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Mandy's Road to Surgery & Recovery

$1,250 of $20,000 goal

Raised by 23 people in 2 months
Created December 11, 2017
Icca Dantes
on behalf of Ma Arlyn Sta Ines
I recently became a new aunt to identical twin girls. Two little princesses. Lia and Mandy, Born December 8, 2017... They are angels and a new addition to our family. 

While Lia was able to make it home, Little Mandy had to stay at the hospital. 

She was born with a huge lump at the back of her neck. Her neuro surgeon said that it is a rare genetic disorder called Meningoencephalocele.  (A very rare developmental disorder where a part of the membrane that covers the brain and or part of the brain itself protrudes through an abnormal opening in the skull. The condition may be asymptomatic or if the defect is large, severe neurological abnormalities may result- source: checkorphan.org/diseases/meningoencephalocele) This apparently only  happens in 1 out of 5,000 births. 





Symptoms includes: Hydrocephalus, Paralyzed arms and legs, Small head, Vision problems, Developmental delay, Retarded growth, Mental retardation, Seizures, Ataxia, Gap in skull bone, Protruding brain tissue.

Additional Educational Materials:  https://rarediseases.info.nih.gov/diseases/3473/meningoencephalocele

A series of tests is needed and since it is almost at the cerebelum part, they say that it may also affect her long term development. 

The original plan was to do the surgery after her first month. Now, the pediatric neuro surgeons say that it has to be performed the soonest possible time as the lump is already at a point where in it could leak and Mandy may be susceptible to infection. We are coordinating with a couple of hospitals for her transfer to get the surgery done. The only challenge is that there is no available incubator for the NICU.

The surgery will indeed be costly. Something that my sister could not afford and would be needing help with.





I have been doing charity work for indigent sick kids of a government hospital back in the Philippines for 12 years now and didn't think that this would happen to our family. Sick children always have a special place in my heart and this is closer to home... I would do everything for family.  

We have been blessed to have 2 new babies and we would do anything to ensure their well-being. Right now, baby Mandy needs help the most. We humbly ask for you to share her story, support and pray for her. We would be forever grateful if you could spread the word out there  and help out 

Please help bring Little Mandy home to her twin sister Lia. 





Love... Peace... and Unity

For those in the Philippines you may send donations directly to my sister 
Jessica S. Dantes,
BDO ( Sun Valley Branch)
SA Account No. 011040013315
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Hi Everyone, I apologize if I have not post updates recently as we have all been busy. Mandy has had 2 surgeries performed on her. One is to remove the lump and the other is to place a shunt as she developed hydrocephalus. She is a fighter and we know that she will overcome this part of her life
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Hi Everyone, Just another update, Baby Mandy has gone through surgery. She is currently being monitored. Doctors are checking her reflexes, motor skills, eyesight, reaction to stimulus. Also trying to determine if she has hydrocephalus. If she is tested positive for Hydrocephalus, another surgery needs to be done. Once again , we would like to keep you all posted of all developments and thank each and everyone of you who have helped and continuously helping our family for Baby Mandy's well-being. We love you all!
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Another update friends and family, Mandy was transported to the Children's Medical Center and was in the ER until 3:00am MNL time. They are waiting for her to be assessed by the doctors and to give recommendations. The first part is over, and now we are moving towards getting a surgery date. Please continue to pray for her. We really appreciate all the help and effort everyone has been giving to our family. We love you guys.
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Hi Everyone, there is already an available incubator space at one of the government hospitals and Mandy is going to be transferred today. Hopefully get the surgery done this week or next week. Please keep her in your prayers. we are asking you to continue to share her story . Happy New Year everyone
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$1,250 of $20,000 goal

Raised by 23 people in 2 months
Created December 11, 2017
Icca Dantes
on behalf of Ma Arlyn Sta Ines
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