Baby Boy Fritz Fund
Baby Boy Fritz was due in Mid-April 2015. He was born on 1/2/15 at 3:31 AM at just 1 lb, 9 oz. He is in the NICU and will be there for quite some time.
Amii owns Up on the Hill in Sheperdstown, WV and has two other children.
Amii and I have been friends since about 1993 and all funds will go directly to Amii and Guy to pay day to day expenses.
I will post updates as I can.
ps-huge thanks to Dr. Sean at Jefferson Urgent care. There was a long wait ( we were there for 3 hours from start to finish) and Oliver has having a medical anxiety related tantrum in the tiny waiting room ( check in was nearly impossible). Having a son with sensory issues, he immediately recognized Ollie needed a more secluded space to wait and he let us use an empty room until his slot was ready. It's been a long while since Oliver has needed focused care, and we've taken for granted his own team who knows his history. It was surreal to explain his normal 02 sats ( yes 95 is ok), the pin in his chest, the issues with his left lung. A reminder of how complex he can become, rather quickly.
Overall Oliver is doing fantastic. He is 21months old, he weights 19.5 lbs and is 29.5 inches long. He just graduated out of his bucket seat, and he is in 12-18 month clothing. He is walking and babbling, not too many words yet, but he finds his own way to communicate. So far he has had a healthy fall, and i'm holding my breath as we approach RSV season, he has aged out of the Synagis injections, so he is on his own if he contracts it this year.
Oliver had his birth to 3 appointments today and he has graduated out of PT! He will still be seeing his OT and possibly a SLP for ongoing tongue motility issues, which are impacting his ability to eat appropriately, ditch the bottle, and foster speech. We have also discovered he has some sensory issues when it come to certain textures of food/ liquid, and possible zinc deficiency due to his ongoing attempts to eat paper. We are hoping the addition of a good multi-vitamin will fix the later.
We head back to UVA in November. He will see his GI, to discuss his slow weight gain, possible absorption issues, and his extreme excema flares. We were also supposed to see Dr.Carter, his pediatric ophthalmologist, but due to some changes in our health insurance, Dr. C is no longer covered. We would need to pay the out of pocket cost for that appointment that day (around $250). While we LOVE Dr. Carter, it's a bit more than we can swing. Every trip to UVA cost us in gas, lodging, food (for all 5 of us) as well as missed income from work. The store does not have employees, as we are paying off loans from the year that Oliver was born to keep our business up and running. (high interest emergency loans are a bad idea) We are hoping to find an ophthalmologist in our area that takes our insurance. We are open to recommendations.
I'll try to post another update after our trip! Thanks to everyone who still asks about Oliver, I can't believe he's almost 2!
He had his twice rescheduled well-baby visit with Dr.Duck. He weighed 14lbs 12oz, down a bit from his last weigh in. His appetite still hasn't returned from his bout with the flu. He is gaining length at almost 27 inches! (maybe a bit less, he was pretty wiggly) He had a finger prick to test for lead and hemoglobin levels, both were perfect. His fear of medical professionals is at an all time high, but I don't blame him after the month he's had. He did pretty well overall. He got 1 vaccine, but we delayed the second due to a family history of negative reactions. He sees an allergist later this week ( so no more new food until that visit!) and we are putting off any further discussion about a hypospadias repair indefinitely.
As soon as we got home it was time for PT! Oliver is "crawling", pulling to a stand, and even doing a little cruising! His crawling form needs some work, and he still has trouble sitting down from a standing position. He is 11 months adjusted (14 months actual) and is right on target! My tiny tiny toddler! I love his PT sessions, and was told to expect a walker in the next 8-10 weeks. I am SO not ready for that.
This Friday we leave early in the morning for UVA. We see peds GI & an allergist to discuss the possibility of EOE. If they decide to scope him I don't know if it will happen this trip or sometime in the near future. Spring sports are in full swing at UVA and lodging is pricey! Our old hotel no longer offers a hospital rate, so we had to scramble to find somewhere new to stay. Each trip is a challenge with the cost of gas, lodging, food, and either missed work or the cost to pay employees. We still have several "Ollie Dragon" stickers and decals. We would LOVE to send you one with ANY donation amount! Just get me your address and which you would like,
Oliver's home-aversary is right around the corner in April. We should do something fun to celebrate! Maybe he will be cleared to eat cake by then!! Better than all the tissues he tries to eat now - he's obsessed with shredding them.
We got referred to Dr. Melissa Kern in Sterling for George's eye appointments. She has been great!
Thinking of you both - hope you make a speedy recovery!
I'm so sorry he got sick, this must be so scary! I'll be thinking of you guys!
Happy Birthday Oliver, I learned about your little one from Diana, my little one goes to daycare at Diana's and is the same age as Oliver. I have been following your updates, I need to visit your store :-)
I always read each update and am always so happy when you have more good news. I'm so sorry you are having such a tough time right now. Hugs to you!
They won't let you even HOLD him for vaccinations??? Oh MAN, that stinks :(
I'll have to look into that Carolyn. The lab is in the same complex as his NICU, so you would think they would be accommodating. Although his Ped. office wouldn't let me hold or nurse him for his vaccinations either, so maybe not.
Oh MAN! Do you have an option of a different lab to go to? :( (My friend's son has super severe allergies and so they are PROS at baby/child lab situations. She always recommended going to a lab that cares for a lot of cancer or chemo patients, because they're usually more gentle and patient!) Or could you maybe ask your ped for a note saying that because he's a preemie he needs XYZ accommodations, and see if showing that to them next time gets them to bend their usual rules?
Thank you for this latest update. I've been wondering how things were going!
AHHH, I was excited to see what Momastery had in store for tomorrow already, but now I'm SUPER excited! :)
So glad your family is together again!
So glad Oliver is home with his family! Been watching and waiting for the family to be together permanently!! :) Congratulations Oliver!!! Keep going strong!!
Yay for Baby Oliver! George spent 109 days in the NICU and also came home on oxygen. It's scary at first but just like the NICU experience, becomes your new normal after a bit. Continuing to pray for your family and for Oliver to continue to make great strides and come off all the oxygen soon!
Look how much he's filled out! I know they probably want him home SO BADLY, but it's at least so encouraging to see how much bigger he is getting :)
The time has finally come! Oliver is a regular fellow now ready to join his family. I have now stopped having concerns!!!! Wow oh wow!
HOORAY! It's so fun to see him without all the tubes, just his darling little face! I'll be sending him good wishes!
My older brother was born about 25 weeks as well. He is now 30 years old working at a Harley dealership! Sending good vibes to your family and little oliver!
Keeping Oliver & Family in my prayers! Sending lots of love and positive energy!
Praying for the Fritz family! Sending love and good vibes.