TeamCoben Fighting Childhood Cancer
Really, that's where we should STOP... isn't childhood cancer bad enough?
72 hours after being hit with a cancer diagnosis, our son then took a turn for the worst when he had a harsh reaction to chemotherapy and suffered a massive brain bleed, bleeding from 4 different places within his brain.
For days Drs. tried to avoid surgery knowing he wasn't strong enough, but as blood continued to full his brain cavity and shift his brain against his skull bone, an emergency craniectomy was performed.
The following 3 weeks would be touch and go, as Dr's assured us during every step that he might not make it. And yet, week after week, he has prevailed. And our struggles continue.
When we started this page... we had NO idea what we were doing, what we were in for. All we knew was we spent weeks sitting bedside to our first born son as he fought for his life while monsters inside his body continually tried to kill him.
Here we are 2 years later and I look back at our original pleas for help and laugh at what I and planned to do with the funds raised.
Fact is, it's been over 2 years and Coben continues to be my full time job. I am not able to return to work, we have simplified every aspect of our life to maintain out finances and simultaneously have maxed out all credit cards while purchasing just the bare necessities to maintain his health.
I've never been in a position where purchasing a pair of shoes for my kids has felt like a luxury over necessity... but here we are. My kids continue to grow and need basic things like clothes and shoes, meanwhile our income does not.
It's beyond humbling to have to ask for help and it will never be comfortable, but reality is we still need help.
Thanks and appreciation to all of our #TeamCoben supporters.
Thank you from the bottom of our hearts.
Coben has CLEARED his cancer!
I know our #TeamCoben community will be cheering right along with us, but I want to be clear this doesn't mean that we are finished by any means. This is simply the BIGGEST step forward we have had. We still have a 3 Year treatment plan...
While we are awed at the reaction and response of those sharing their hard earned money and tax returns with us, we are in need of funding NOW more than ever.
While Coben has cleared his cancer, it can technically still hide in places, so phase 2 of the hardcore chemo will still go on as scheduled. But this good news can keep the ball rolling because with his cancer being clear means we can address his cranioplasty (returning his skull) which is just another step towards his coming home. We have already molded Coben's left leg brace which helps him put pressure on his weak leg when he tries to walk, and a custom fit helmet to fit over the brain swelling.
Coben is working hard each day to gain strength and mobility and soon we can start to evaluate his reading and writing ability.
This upcoming Wednesday he will receive his lumbar puncture per usual, as well as surgery to his left eye to try and remove the excess blood clotting after seeing the successful recovery to his right eye. And if possible, he will have surgery to implant his port, which is like an IV placed under the skin, necessary so that future chemo treatments can be directly inserted rather than create an IV for each visit.
Thanks again to all who are continually reaching out in an effort to help, and to all who are sharing Coben's story to help us reach our goals.
Definitely some sighs of relief this weekend, much love to all of our community!
Much love to all 4 of you. Stay strong. You've got this, 1000%.