Ellie Maus's CDH Battle

$1,527 of $10,000 goal

Raised by 32 people in 56 months
Our sweet baby Ellie needs some prayers! At our 20 week anatomy appointment on May 28th, my primary OB noticed that something wasn't right with Ellie's organs. On June 3rd we had appointment with a high risk OB at East Jefferson, which led to a referral to the Maternal Fetal Center at Texas Children's Hospital in Houston. On June 12th, after a day full of extensive testing, Ellie was diagnosed with a Congenital Diaphragmatic Hernia or CDH. CDH is a rare birth defect where part of the diaphragm either does not form, or has a hole in it, that allows organs from the abdomen to move into the chest cavity. We know from multiple ultrasounds and a Fetal MRI that Ellie falls in the Moderate category, but she is borderline on being in the Severe category. Short version: her stomach, intestines, and part of her liver are in her chest cavity causing her heart to be on the right side of her body instead of the left and making it difficult for her lungs to develop. As long as Ellie is growing inside of me, she is 100% okay. Her long battle will truly begin the moment she is born, when she has to use her tiny lungs to breathe on her own. She will have to be placed on a ventilator at birth to help her breathe and she will be taken directly to the NICU. Ellie will have to undergo emergency surgery within the first few days of her life to put her abdominal organs in the correct place. She will then be in the NICU for weeks(or months), depending on how long it takes for her lungs to get strong enough to work on their own. Ellie is due October 12th, but because of the risk of preterm labor, on September 1st we will have to move to Houston so Ellie can be born at Texas Children's Hospital where they specialize in CDH and can give our little girl the best chance at survival.

How you can help:

PRAY for us! We truly believe in the power of prayer, and Ellie needs as many people praying for her as possible.

Donate, if at all possible. Jonathan and I know we will have a rough road ahead financially. We will be living in another state for an indefinite amount of time. Jonathan will go back and forth from Houston to Reserve to work until Ellie decides to make her grand entrance into the world. Once she is born, we plan for him to stay with us until Ellie is stable and ready to come home. Unfortunately, while his job is secure, this time off will be unpaid.

Donations can be made through this website or can be mailed to:

The Maus Family
191 Marmillian Loop
Reserve, LA 70084
(Checks can be made payable to Jonathan or Samantha Maus)

Thank you for taking the time to read our story and for any help you are able to give! Please check back for updates!

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Update from 8/17:
Quick Ellie Update:
We met with our team of doctors here in Houston, and they feel it is in Ellie's best interest to stay put for as long as possible. Our pediatric cardiologist did a thorough ultrasound of her heart, and while she was a little concerned she and the rest of our doctors, still feel like we are in a good place to give Ellie more time for her lungs to mature and for her to put on some weight. We are now permanently in Houston where we will be watched closely for any changes. Please continue to pray for us and let's all hope that Ellie will make it as close to October as possible!
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Update from 8/14:
Update on Ellie Ann
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Update from 6/24:
Update on Baby Ellie: Yesterday, Monday June 23rd, we had a follow up appointment at Texas Children's Hospital. The doctor performed an ultrasound to measure Ellie's lungs again and to see how much they have grown since our last appointment almost two weeks ago. We received some good news! Ellie is still in a very dangerous situation, but every little bit of good news is a huge deal for us! Jonathan and I are in awe of the amount of love, prayers, and donations coming in from all over our community. Our family, friends, neighbors, co-workers, acquaintances, and even people we have never met are all coming together to pray for Ellie and to help us out in so many ways. It is hard to put into words just how much we appreciate each and every one of you! THANK YOU!
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$1,527 of $10,000 goal

Raised by 32 people in 56 months
Created July 6, 2014
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$50
Anonymous
50 months ago
$30
Anonymous
51 months ago
$40
Anonymous
51 months ago
CD
$20
Cari & Richard DeSanti
51 months ago

Hoping for a speeding recovery

$100
Anonymous
51 months ago
LN
$100
linh Nguyen
51 months ago

Will pray for baby and parents.

NP
$50
Nancy & Scott Phinney
51 months ago

Our twins spent 6 weeks in the NICU in Boston and it was a difficult and emotional time. They are now 12! Our thoughts and prayers are with you and your beautiful little girl!

$32
LandonandTam Roussel
51 months ago

Praying for Baby Ellie.. Donation from sales.

MR
$100
Mara Roussel
51 months ago

Our prayers are with all of you.

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