Love for Austyn Paige
Donation protected
On November 10th, Brooke and Chuck received devastating news that their baby girl Austyn Paige had been suffering seizures and probably had a brain bleed. Since then, Austyn has undergone numerous EKGs, EEGs, and a full body MRI, where neurologists found four tumors in her brain, two on her heart, some in her eyes, and some on her skin.
At just ten weeks old, Austyn was diagnosed with Tuberous Sclerosis, a genetic disorder that causes tumors to form in many different vital organs throughout the body. The aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. However, many people with TSC are able to live healthy, independent lives.
Austyn is currently being surrounded by the love and care of her parents and strong big sister, Addisyn Nicole at Loma Linda Hospital, the top listed TSC clinic in California. Austyn is fortunate to have a team of incredible doctors, working hard at providing answers and options for Brooke and Chuck.
Austyn’s neurologist has been focused on finding effective seizure medications to treat her seizures, which can be as frequent as only eight minutes apart. Austyn is currently on the highest dose of what doctors believe are the best seizure meds for her, meds that cost a couple thousand dollars a month.
Her neurologist is also working to find the best treatment for the tumors in Austyn’s brain. There is possibility Austyn will receive tumor reducing drugs, which essentially is chemotherapy, or surgery to remove the tumors, which will not be viable until Austyn is at least six months old.
Chuck, Brooke, Addisyn, and their baby girl Austyn Paige have a long road ahead of them to find the best options to treat Tuberous Sclerosis. The seizure medication and treatment Austyn will need is going to be extremely expensive and take a financial toil on the family. Any support given to Brooke and Chuck will greatly help them as they receive further news, find the absolute best treatment, and take care of their life’s biggest love, Addisyn Nicole and baby girl Austyn Paige.
At just ten weeks old, Austyn was diagnosed with Tuberous Sclerosis, a genetic disorder that causes tumors to form in many different vital organs throughout the body. The aspects of TSC that most strongly impact quality of life are generally associated with the brain: seizures, developmental delay, intellectual disability and autism. However, many people with TSC are able to live healthy, independent lives.
Austyn is currently being surrounded by the love and care of her parents and strong big sister, Addisyn Nicole at Loma Linda Hospital, the top listed TSC clinic in California. Austyn is fortunate to have a team of incredible doctors, working hard at providing answers and options for Brooke and Chuck.
Austyn’s neurologist has been focused on finding effective seizure medications to treat her seizures, which can be as frequent as only eight minutes apart. Austyn is currently on the highest dose of what doctors believe are the best seizure meds for her, meds that cost a couple thousand dollars a month.
Her neurologist is also working to find the best treatment for the tumors in Austyn’s brain. There is possibility Austyn will receive tumor reducing drugs, which essentially is chemotherapy, or surgery to remove the tumors, which will not be viable until Austyn is at least six months old.
Chuck, Brooke, Addisyn, and their baby girl Austyn Paige have a long road ahead of them to find the best options to treat Tuberous Sclerosis. The seizure medication and treatment Austyn will need is going to be extremely expensive and take a financial toil on the family. Any support given to Brooke and Chuck will greatly help them as they receive further news, find the absolute best treatment, and take care of their life’s biggest love, Addisyn Nicole and baby girl Austyn Paige.
Organizer and beneficiary
Emmy Eckles
Organizer
Corona, CA
Brooke Eckles
Beneficiary
Begin your fundraising journey
