Lyme Disease and Medical Bills

$11,011 of $25k goal

Raised by 76 people in 57 months
Stephanie Vostry   LOS ANGELES, CA

I am raising money for my LYME disease. Physically, Mentally, Emotionally and of course financially I just can't keep doing this alone. I have just been officially diagnosed with LYME disease October 2011. BUT I have been going through a medical nightmare for the last five years. Because the LYME has gone so long being unnoticed I have developed many medical problems.  

 

I have had vertigo for the last three years. ( http://en.wikipedia.org/wiki/Vertigo ) I had an endoscopy and realized I have many stomach ulcers and gastritis. ( http://www.mamashealth.com/stomach.asp ) I now am trying to battle the LYME with medication but its very hard to battle. I can barely stand up get food sometimes. The medication makes you very ill and its impossible to work while going through this treatment. 

I have neuropathy problems http://www.spine-health.com/conditions/chronic-pain/all-about-neuropathy-and-chronic-back-painthat This has made me unable to walk. I have to use a walker to get around. I cannot stand for more than 20 minutes in a day.  If I need to go out anywhere I have to use my wheelchair. 

The seizures I am having are conscious seizures. They are referred to as "simple conscious seizures". http://en.wikipedia.org/wiki/Seizure_types there are 40 different types of seizures and only ONE of them you are conscious through. I was the lucky one who is conscious through the entire seizure.  I can feel everything while the seizure is happening. They can last anywhere from 20 minutes up to 3 hours.

I urge all of you to watch a lyme documentary called "Under our skin" It's 83 minutes long and well worth your time.  Knowledge is power!!

Below is a  link written by a patient with LYME who explains what its like going through treatment with LYME disease. The medicine makes you deathly ill for quite sometime. Not better like people seem to think. http://www.angelfire.com/me2/StarShar/Herx1.html

I have also attached another link with information about LYME. http://www.medicinenet.com/lyme_disease/article.htm


The money collected will go towards my medical bills.  There are SO many things my insurance won't pay for my LYME disease.  There are alot of vitamins that you need for treatment that are obviously not covered by insurance.  I have so much more treatment to undergo. There are many co-factors to my illness so its going to be a rough road and alot longer than people seem to think. Its not a 30 day packet of medicine and then I'm healed.  My doctor has estimated that I will take 3 or more years to heal once treatment is started.  I have chronic LYME disease.  I am unable to work right now and need help paying my bills and medical bills so I can recover from this disease. This month I already don't know how I will pay my rent. I am up to my neck in medical bills that need to be paid. Its finally time to ask for help. As most of you know.  I'D ASK MY FAMILY FOR HELP BUT AS MOST OF YOU KNOW I DON'T HAVE ONE.    Please donate whatever you can. It would be greatly appreciated. If you are unable to donate your kind words and support would mean just as much!  

Thank you all for everything!

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Update 32
44 months ago
My eyes have been swelling up lately. Its awful!! We still can't figure out what the cause is. I posted a picture so you can see how quickly this happens and the severity of it all. I am now using an Epi-Pen for emergencies for when this happens. Within 5 minutes my eyes just swell shut. I keep going to the ER after it happens because we keep thinking we'll find a cause but we have found nothing yet. I need to go and see an allergist and try to figure out what is triggering this. Thank you all for being so loving during this journey of mine.
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Update 31
44 months ago
Well! The time has come for my new health insurance deductible to be paid. I have a High Deductible Health Plan. Which means I pay a 4,000.00 dollar deductible at the beginning of the year BUT, after that deductible is paid everything is FREE. That means no more co-pays at the doctors offices. I don't have to pay for my outrageously priced prescriptions anymore. I don't have to worry when I go to the ER or if I need a hospital stay. If a surgery or something is needed its covered! All I need to do is get the money for the 4,000.00 deductible and I will be able to continue treatment. The only way it would cost more is if I go out of network then the max deductible would be 8,000.00. I am really good at staying in-network. After that all I need to worry about is paying the premium of 400.00 per month for the policy. If anyone could help me get this money together I would greatly appreciate it!! If you can't. No worries I understand. I just want to be healed from this disease and be able to go back to California! OR maybe somewhere new. I just want to be healed so I have that option. I know I can beat this disease!! I just need help financially getting there. I hope you all are having a very happy new year!!
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Update 30
47 months ago
Hello All!! I hope you have been well. I have been living in Maine for the past two months and I have grown to love it here. Thankfully, almost every doctor I go to knows what Lyme Disease is!! I am hopeful this is where I will be able to get all the treatment that I need. My seizures have stopped. Thank goodness for that. I am able to walk but lately I feel like I am going backwards again. My legs are feeling numb again. I'm scared to death I could end up in a wheelchair again. I am going to a doctor here in Maine to get B-12 shots in my butt 3 times a week. I'm hopeful it wll bring my nerves back again. I am going to a neurologist and he will be doing another
EMG/NCV to see what is going on. This doctor suspects I might have CIPD http://swedal.hubpages.com/hub/CIPD-A-Rare-Immune-System-Disorder
I'll give more updates when I have them. I feel a bit stressed but! what doesn't kill you makes you stronger!
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Update 29
50 months ago
Please listen to my radio interview with Simon Jordan in the UK about my battle with LYME disease. I have told personal things in this interview no one has heard about me before. It was done on the 4th of July. 
http://www.gathermoreclients.com/simonjordanradio/homeless-penniless-and-at-risk-of-death
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 324 total shares
CK Thiruvathukal
12 months ago

I totally understand your pain. I've been sick for over 20 years. I've lost most of my life and time with my twins. I also had a fundraiser, and it was moderately successful, but I have few friends and they're sick. Have you tried low dose naltrexone or bee sting therapy? If you haven't tried the latter, I highly recommend it especially. It's cheap and not hard to do. Xoxo

+ Read More
Linda Jodie Johnson
13 months ago

My understanding is that the spirochetes in your brain are also in your eyes and can be sloughed off through the eyes. This causes the swelling. My eyes feel like they have gravel in them when this goes on, and get crusted over. Drink lots and lots of water, eat only organic food, and stay away from magnesium as the spirochetes need it. Do what you can to eliminate yeast overgrowth and keep your intestines clean. Move to Houston where the cost of living is less, with no State income tax; and Dr. Salvato is here. I know all this would be great if it could be afforded - perhaps if you put it out there, the Universe will come through with a miracle. I believe in miracles. Linda

+ Read More
Stevie Minnesota
23 months ago

being a chronic lyme sufferer myself, I know all too well the disaster this disease causes. I was very lucky to have a doc that knew about it here in Australia. To help battle the disease, I turned to cannabis oil as well. This is the stuff that really made me take drastic steps towards a normal life. Depending on where you live, it may be difficult to get and illegal. You may also want to get tested to mycotoxin levels. Mould is a silent killer that took my grandfather. Any kind of mycotoxin infection will cause havoc with your body. Antifungals are also sometimes given for lyme as well with good success rates in some people non responsive to antibiotics. The antibiotics ruined me. I had insane skin problems, reflux and heartburn that could kill a rhino, and it just seemed to make things worse. I jumped on Voriconozole (i think it is) and things got better within a few days. Still a long term thing, but I'm getting better. Combine natural and pharma ways to combat this. Cannabis oil, tumeric, lots of flavinoids, a non-grain diet, cold pressed juice from fresh veggies.. The more you make your body a hostile place for this disease, the less it will affect you. I hope this helps.

+ Read More
Eline Kaptein
46 months ago

i also have lyme ever since i was 11 years old. Had the same things that you had. I changed my diet and met a doctor who helped and belevied me! Nowdays it's getting very well and i don't need any medicins anymore!

+ Read More
Danijela Sose
49 months ago

Hey Stephanie :) I have just one question.. Did you try the treatment by dr. B? And wasn't it for free? :) I wish you the best and hope that you get well soon. Also, remember that many people in you :) stay strong!!

+ Read More
Laura Moore
49 months ago

Lyme Disease does not exsist. We made the whole thing up. From the Runway model Stephanie Vostry, the newscaster Brooke Landau Weathercaster , the rock star Daryll Hall Oates to people like me. The fact that people from all walks of life- everywhere in the world- have the same symptoms is just coincidence. In fact we all have the same symptoms because we all got together- and collaborated to match our symptoms- This is all a rouse to aggravate the CDC. We all like being ignored and we like giving our doctors a hard time and we LOVE going broke because of medical costs. We all love losing our family and friends and have them think we want attention. You got us - we made the whole thing up. Why would a model not want to be sick- or a rock star- Hey the jig is up. We all love being sick and are nothing but "Drama Queens". We all made it up. Lyme is not real and no threat to you. Your ignorance will protect you the way it protected me.

+ Read More
Julie Baxter
50 months ago

Oh, if it is not working, it is http://www.hulu.com/watch/271689. Sorry, there was a space before. Hoping you get better.

+ Read More
Julie Baxter
50 months ago

http://www.hulu.com/watch/271689 this is the link to your Millionaire Matchmaker segment on Bravo. When was this aired? Before you became sick, or after? Was just curious.

+ Read More
Colinda Parker
52 months ago

hi Stephanie.I just want to send prayers your way that you will get better. I suffer from a chronic disease called mastocytosis. Completely different diseases, but the same effect on your life. Know that you are not alone in your suffering . I can relate that every day is hard, and its very hard to keep hanging on. The actual pain and suffering are hard, as well as the terrible, cruel treatment i have received from doctors, and as a finishing touch, cruelty and disbelief instead of support and kindness from some family members. Its a very hard road to be on.The only thing that helps me to carry on is knowing,somehow, that our suffering does have a purpose and is not all in vain. Yes, it kind of FORCES you into a spiritual corner.

+ Read More
Travis Kopek
52 months ago

Has anyone ever heard of Rife Technology for treating lyme? I have heard some positive feedback (just can't make medical claims). Contact me if you would like more information.

+ Read More
Colleen Seiter
52 months ago

I know a person that has had great results with a natural product with NO side effects. It isn't a cure but could help with the symptoms. To hear more contact me.

+ Read More
Katie Powell
52 months ago

I was just told last Friday that I tested positive for Lyme Disease. I have medical issues since July of 2005, with migraines almost daily, brain lesions(more with every MRI done), dizziness, brain fog, left side weakness, and many other problems. It has caused me to stop working, lose our home, be homeless for 4 months once, struggle through bills and E.R. visits and Dr. visits, thinking I was losing my mind. After my last MRI, the actual radiologist wanted me tested for Lyme and now I am on antibiotics for 2 weeks. I do hope that 2 weeks of it will cure me but also, I do not remember ever being bitten by a tick as far back as 2005, and wonder why and if after all these years if this is it. In 2005, one Dr. said it was MS and treated me for MS and I felt better for the month I was on meds for it but when he did a spinal tap and it came back neg. for MS he stopped those meds. So its been a long hard road for me and really hard for my family. Will things get better from here and why are

+ Read More
Kirsten Yoder
52 months ago

I was diagnosed with Lyme about 4 years ago, having run through the gambit of 11 doctors-conventional and not, and finally the next two (in alternative med) could actually help. I currently drive 6 hours one way to continue working with my Lyme Literate doc out of state because there seem to be so few who know what to do with Lyme. I missed the Dr. Phil episode but saw clips online. Don't listen to those to don't believe you...avoid trying to convince others...it's too exhausting. You know what you have...seek the treatment you need. I pay everything out of pocket as well. It's not an easy or a short road to healing, but I am far better than I was and still have hope someday all of the politics will stop and we'll finally have doctors who are well educated in Lyme. Keep pressing on.

+ Read More
Moshe Ariyeh
52 months ago

Please forgive my multiple posts. I didn't think the post went through. The brain fog drives me crazy!! May I finish with; Would Kristy say to me; "Last time I saw you as a cop, you were doing fine....no seizures.... this may be a scam....just a fame whore" What about you Lisa Hardwick? Would you say to me "Time to get a job! Your limping act is just that...an act!”. What arrogant judgment! Why do we need money? Because the treatment runs around 20, 000 dollars a month. You may not like our careers, but one thing has nothing to do with the other.Before you critics go blabbing about us being fakes, let me offer you a blood transfusion so I can welcome you to MY "fake" lonely world.

+ Read More
Moshe Ariyeh
52 months ago

I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question.

+ Read More
Moshe Ariyeh
52 months ago

1. I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question. I am good looking guy and "appear" perfectly normal to someone who never met me.

+ Read More
Moshe Ariyeh
52 months ago

1. I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question. I am good looking guy and "appear" perfectly normal to someone who never met me. But let me show you my insides! I was a police officer under ten years before I was forced to retire because of this "fake illness" Am I making it up? Am I some type of fame/whore as someone called Stephanie? My life sucks! Not entirely because I have Lyme, but more so because I have no doctors in my area to help me

+ Read More
Moshe Ariyeh
52 months ago

I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question. I am good looking guy and "appear" perfectly normal to someone who never met me. But let me show you my insides! I was a police officer under ten years before I was forced to retire because of this "fake illness" Am I making it up? Am I some type of fame/whore as someone called Stephanie? What was not mentioned on the Dr Phil show was the CT AG who investigated the IDSA. Go to the CT Attorney General's website and you can find the following; "Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) proce

+ Read More
Shelley Marie
53 months ago

There a few things I hate. But I hate so many comments on this page. It is disappointing that people would take the time out of their lives to cyber bully a sick person. That is a disturbing quality, and I am praying for you all. Stephanie was a beautiful model with a bright future ahead of her, why would she give all that up to "be lazy and lay in bed", and why would she want to be famous for having an illness and showing videos of her darkest moments? That's not even fame, that's awareness. Also, while she is still beautiful now, you can tell she has been through hell and back. Stephanie, I commend you for being brave enough to go on national TV despite knowing that people would be so cruel afterward. If anyone's crazy, it's them.

+ Read More
Kelley Morea
53 months ago

This is ridiculous she was on season 5 episode 2 of the Millionaire Matchmaker on bravo! she is a reality tv/fame whore!....she is not rly sick she is tryin to get herself in the spotlight and prey on innocent sympathetic people who actually believe this crap enough to give her their hard earned money...my heart goes out to those who actually suffer from this disease..it's because of ppl like her that half of the world believes this is not a real illness.....it's unbelievable the lies ppl will tell 2 get famous

+ Read More

$11,011 of $25k goal

Raised by 76 people in 57 months
Created November 30, 2011
KL
$10
Karen L
33 months ago

I have recently been diagnosed with Lyme, my heart goes out to you and I wish I could give you more or heal you. Know that you are in my prayers.

+ Read More
JW
$25
Jon Wilson
39 months ago
NM
$50
Nina Moore
40 months ago
NM
$25
Nina Moore
40 months ago
TR
$20
Tracy Riccio
40 months ago

I love youuuuu

+ Read More
$50
Susan Dison
42 months ago

Stephanie, to a very nice and helpful person. You and people like us deserve to get well!

+ Read More
CM
$100
Caron McCracken
43 months ago

Please check out "Cowden Protocol". Our son Scott has neurological Lyme, tried many things and is getting results with this product that crosses the brain/bloodstream barrier. Please call if you need to know more at (859) 523-4242. Dr. Cowden has many YouTube videos on the web. God Bless and praying for recovery, thanks for sharing your story.

+ Read More
$5
Anonymous
43 months ago
CS
$100
Christopher Shonk
44 months ago

With love and hope for a better year in 2013.

+ Read More
GZ
$20
Gerry Zavorsky
44 months ago
CK Thiruvathukal
12 months ago

I totally understand your pain. I've been sick for over 20 years. I've lost most of my life and time with my twins. I also had a fundraiser, and it was moderately successful, but I have few friends and they're sick. Have you tried low dose naltrexone or bee sting therapy? If you haven't tried the latter, I highly recommend it especially. It's cheap and not hard to do. Xoxo

+ Read More
Linda Jodie Johnson
13 months ago

My understanding is that the spirochetes in your brain are also in your eyes and can be sloughed off through the eyes. This causes the swelling. My eyes feel like they have gravel in them when this goes on, and get crusted over. Drink lots and lots of water, eat only organic food, and stay away from magnesium as the spirochetes need it. Do what you can to eliminate yeast overgrowth and keep your intestines clean. Move to Houston where the cost of living is less, with no State income tax; and Dr. Salvato is here. I know all this would be great if it could be afforded - perhaps if you put it out there, the Universe will come through with a miracle. I believe in miracles. Linda

+ Read More
Stevie Minnesota
23 months ago

being a chronic lyme sufferer myself, I know all too well the disaster this disease causes. I was very lucky to have a doc that knew about it here in Australia. To help battle the disease, I turned to cannabis oil as well. This is the stuff that really made me take drastic steps towards a normal life. Depending on where you live, it may be difficult to get and illegal. You may also want to get tested to mycotoxin levels. Mould is a silent killer that took my grandfather. Any kind of mycotoxin infection will cause havoc with your body. Antifungals are also sometimes given for lyme as well with good success rates in some people non responsive to antibiotics. The antibiotics ruined me. I had insane skin problems, reflux and heartburn that could kill a rhino, and it just seemed to make things worse. I jumped on Voriconozole (i think it is) and things got better within a few days. Still a long term thing, but I'm getting better. Combine natural and pharma ways to combat this. Cannabis oil, tumeric, lots of flavinoids, a non-grain diet, cold pressed juice from fresh veggies.. The more you make your body a hostile place for this disease, the less it will affect you. I hope this helps.

+ Read More
Eline Kaptein
46 months ago

i also have lyme ever since i was 11 years old. Had the same things that you had. I changed my diet and met a doctor who helped and belevied me! Nowdays it's getting very well and i don't need any medicins anymore!

+ Read More
Danijela Sose
49 months ago

Hey Stephanie :) I have just one question.. Did you try the treatment by dr. B? And wasn't it for free? :) I wish you the best and hope that you get well soon. Also, remember that many people in you :) stay strong!!

+ Read More
Laura Moore
49 months ago

Lyme Disease does not exsist. We made the whole thing up. From the Runway model Stephanie Vostry, the newscaster Brooke Landau Weathercaster , the rock star Daryll Hall Oates to people like me. The fact that people from all walks of life- everywhere in the world- have the same symptoms is just coincidence. In fact we all have the same symptoms because we all got together- and collaborated to match our symptoms- This is all a rouse to aggravate the CDC. We all like being ignored and we like giving our doctors a hard time and we LOVE going broke because of medical costs. We all love losing our family and friends and have them think we want attention. You got us - we made the whole thing up. Why would a model not want to be sick- or a rock star- Hey the jig is up. We all love being sick and are nothing but "Drama Queens". We all made it up. Lyme is not real and no threat to you. Your ignorance will protect you the way it protected me.

+ Read More
Julie Baxter
50 months ago

Oh, if it is not working, it is http://www.hulu.com/watch/271689. Sorry, there was a space before. Hoping you get better.

+ Read More
Julie Baxter
50 months ago

http://www.hulu.com/watch/271689 this is the link to your Millionaire Matchmaker segment on Bravo. When was this aired? Before you became sick, or after? Was just curious.

+ Read More
Colinda Parker
52 months ago

hi Stephanie.I just want to send prayers your way that you will get better. I suffer from a chronic disease called mastocytosis. Completely different diseases, but the same effect on your life. Know that you are not alone in your suffering . I can relate that every day is hard, and its very hard to keep hanging on. The actual pain and suffering are hard, as well as the terrible, cruel treatment i have received from doctors, and as a finishing touch, cruelty and disbelief instead of support and kindness from some family members. Its a very hard road to be on.The only thing that helps me to carry on is knowing,somehow, that our suffering does have a purpose and is not all in vain. Yes, it kind of FORCES you into a spiritual corner.

+ Read More
Travis Kopek
52 months ago

Has anyone ever heard of Rife Technology for treating lyme? I have heard some positive feedback (just can't make medical claims). Contact me if you would like more information.

+ Read More
Colleen Seiter
52 months ago

I know a person that has had great results with a natural product with NO side effects. It isn't a cure but could help with the symptoms. To hear more contact me.

+ Read More
Katie Powell
52 months ago

I was just told last Friday that I tested positive for Lyme Disease. I have medical issues since July of 2005, with migraines almost daily, brain lesions(more with every MRI done), dizziness, brain fog, left side weakness, and many other problems. It has caused me to stop working, lose our home, be homeless for 4 months once, struggle through bills and E.R. visits and Dr. visits, thinking I was losing my mind. After my last MRI, the actual radiologist wanted me tested for Lyme and now I am on antibiotics for 2 weeks. I do hope that 2 weeks of it will cure me but also, I do not remember ever being bitten by a tick as far back as 2005, and wonder why and if after all these years if this is it. In 2005, one Dr. said it was MS and treated me for MS and I felt better for the month I was on meds for it but when he did a spinal tap and it came back neg. for MS he stopped those meds. So its been a long hard road for me and really hard for my family. Will things get better from here and why are

+ Read More
Kirsten Yoder
52 months ago

I was diagnosed with Lyme about 4 years ago, having run through the gambit of 11 doctors-conventional and not, and finally the next two (in alternative med) could actually help. I currently drive 6 hours one way to continue working with my Lyme Literate doc out of state because there seem to be so few who know what to do with Lyme. I missed the Dr. Phil episode but saw clips online. Don't listen to those to don't believe you...avoid trying to convince others...it's too exhausting. You know what you have...seek the treatment you need. I pay everything out of pocket as well. It's not an easy or a short road to healing, but I am far better than I was and still have hope someday all of the politics will stop and we'll finally have doctors who are well educated in Lyme. Keep pressing on.

+ Read More
Moshe Ariyeh
52 months ago

Please forgive my multiple posts. I didn't think the post went through. The brain fog drives me crazy!! May I finish with; Would Kristy say to me; "Last time I saw you as a cop, you were doing fine....no seizures.... this may be a scam....just a fame whore" What about you Lisa Hardwick? Would you say to me "Time to get a job! Your limping act is just that...an act!”. What arrogant judgment! Why do we need money? Because the treatment runs around 20, 000 dollars a month. You may not like our careers, but one thing has nothing to do with the other.Before you critics go blabbing about us being fakes, let me offer you a blood transfusion so I can welcome you to MY "fake" lonely world.

+ Read More
Moshe Ariyeh
52 months ago

I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question.

+ Read More
Moshe Ariyeh
52 months ago

1. I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question. I am good looking guy and "appear" perfectly normal to someone who never met me.

+ Read More
Moshe Ariyeh
52 months ago

1. I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question. I am good looking guy and "appear" perfectly normal to someone who never met me. But let me show you my insides! I was a police officer under ten years before I was forced to retire because of this "fake illness" Am I making it up? Am I some type of fame/whore as someone called Stephanie? My life sucks! Not entirely because I have Lyme, but more so because I have no doctors in my area to help me

+ Read More
Moshe Ariyeh
52 months ago

I cannot help but hope, those who judge the sufferers of chronic Lyme with these comments, will have the opportunity to have a tick visit you and leave you with this gift. How dare you judge a person by appearances! The worst thing about Lyme is that there are generally no outside/visible signs for many of us. If we do have signs (like Steph) they are called into question. I am good looking guy and "appear" perfectly normal to someone who never met me. But let me show you my insides! I was a police officer under ten years before I was forced to retire because of this "fake illness" Am I making it up? Am I some type of fame/whore as someone called Stephanie? What was not mentioned on the Dr Phil show was the CT AG who investigated the IDSA. Go to the CT Attorney General's website and you can find the following; "Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) proce

+ Read More
Shelley Marie
53 months ago

There a few things I hate. But I hate so many comments on this page. It is disappointing that people would take the time out of their lives to cyber bully a sick person. That is a disturbing quality, and I am praying for you all. Stephanie was a beautiful model with a bright future ahead of her, why would she give all that up to "be lazy and lay in bed", and why would she want to be famous for having an illness and showing videos of her darkest moments? That's not even fame, that's awareness. Also, while she is still beautiful now, you can tell she has been through hell and back. Stephanie, I commend you for being brave enough to go on national TV despite knowing that people would be so cruel afterward. If anyone's crazy, it's them.

+ Read More
Kelley Morea
53 months ago

This is ridiculous she was on season 5 episode 2 of the Millionaire Matchmaker on bravo! she is a reality tv/fame whore!....she is not rly sick she is tryin to get herself in the spotlight and prey on innocent sympathetic people who actually believe this crap enough to give her their hard earned money...my heart goes out to those who actually suffer from this disease..it's because of ppl like her that half of the world believes this is not a real illness.....it's unbelievable the lies ppl will tell 2 get famous

+ Read More
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