Main fundraiser photo

jaxons pfic type1 liver disease

Donation protected
Jaxon is a 2 year old boy who has a rare liver disease called pfic type 1. His disease causes liver failure and one of the symptoms is a painful itch which never leaves., Causing him to self harm his body constantly through out the day and mainly at night, which means sleepless nights for both of us, There is no medicine for this ich not even a treatment or cure. Same goes for his disease, Jaxon will be having a transplant very soon due to his itch is interfering with his qaulity of life. Jaxon has a lot of liver scaring for his age and if it continues to progress he could end up with liver cancer, he has regular check ups to make sure there is no chance of this happening , Jaxon is also vitamin dificient which means he is on lots of meds and has regular blood tests these tests were done every Friday when he was young and is now every 4 weeks,  There is no garountee that the transplant will stop the itch but it will stop his disease progressing and leading to liver failure. I know it sounds like a itch isn't that bad but if you had a itch all over you that didn't leave and was painful felt more like a burn how would you feel, not being able to scratch it or sooth it that's how Jaxon feels daily, we have tried some medicines that are believed to help pruritis but none showed any improvement,  Jaxon will be heading to sydney very soon to be assessed so he can be put on the transplant list this year , Jaxon had a external bilary diversion last year which was working great to get rid of his extra bile, whish was causing his itch it also showed that his liver function improved in December 2014 Jaxon had his second surgery to make his diversion internal this ment connecting his gallbladder to his colon. Since then Jaxon is no longer yellow and his bile salt level has dropped but is still high, and his itch has come back liver function is better but not great , Jaxon is also tube dependent meaning he does not eat and he is tube fed every 3 hours he spends a lot of time on his machine which results in him not been able to attend a preschool. Currently Jaxon is the only pfic 1 child known  in australia and there are not many type 1 children around the world so please help spread the word about this disease and help raise awareness . Please donate to help cover Jaxons medical expenses and to help towards  his trips to sydney and john hunter childrens hospital.  
Donate

Donations 

  • Lorna Patton
    • $100 
    • 6 yrs
Donate

Organizer

Jaxon Caldwell
Organizer
New South Wales

Your easy, powerful, and trusted home for help

  • Easy

    Donate quickly and easily.

  • Powerful

    Send help right to the people and causes you care about.

  • Trusted

    Your donation is protected by the  GoFundMe Giving Guarantee.