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Anne's Fearless Heart

$66,919 of $100,000 goal

Raised by 466 people in 3 months
Created September 26, 2018
Fundraising team
on behalf of Anne Knapke
Anne Knapke is currently at Cedars-Sinai hospital in Los Angeles waiting for a life-saving heart transplant! We need your help today!

Bubbly, free spirited, optimistic, a sweet soul — all ways to describe Anne. For most of her life, she could be found hiking in Montana de Oro, practicing Crossfit during her lunch breaks at MindBody, or walking her dog Zeeta on the beach in Cayucos.

Yet in January Anne started feeling ill; she was overly-tired and always out of breath. After countless doctor visits, extensive testing, and a trip to the ER, she was finally diagnosed with Cardiomyopathy.

We were all shocked: “Heart failure? That doesn’t make sense. She’s only 26!”
 
As devastating as the diagnosis was, Anne remained determined to get better. She followed the doctor’s orders; taking her medication and making modifications to her diet; she went on regular walks, and got plenty of rest. She made spiritual amends and explored new techniques in health and wellness to relieve the mounting stress. She tried virtually everything to recover naturally.

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On September 11, Anne went to Cedars-Sinai Medical Center with her boyfriend Anthony for a routine check-up. Hours later she woke up in a hospital bed with tubes coming out of her neck connected to heart monitoring machines. Her heart is failing quickly. On September 13 Anne was officially put on the transplant list as status 1a, the highest priority.

Bubbly, free spirited, optimistic, a sweet soul, and an urgent heart transplant patient — all ways we now describe Anne.

Anne wouldn’t want us to dwell on the hardships, but they are here. In addition to the emotional stress, there are also very serious financial challenges. Anne’s hospital stay will be partially covered by insurance but not even the best insurance can cover all the unforeseen costs associated with a transplant and issues that follow. Other costs not included are the loss of her income, relocation costs to LA, alongside all the other regular daily bills.

Once the heart transplant surgery is complete, she must reside within proximity to the hospital for 2-3 months to ensure she has access to vital care if there is an emergency, and also for frequent doctor check-ups. In addition, Anne will be taking, and paying for, anti-rejection meds for the rest of her life. These are just a few expenses she will have to endure, and we’re asking for your help!

As Anne sits in her hospital room at Cedars-Sinai, waiting for the call that will save her life, she remains a bright light in what is a very dim situation. Through her pain, she has inspired us all with her motivation and strength. Anne has befriended not only the hospital staff but also the other patients. Her hospital room echoes with laughter as she tells stories to nurses and visitors.

Without fully understanding the dire situation she would be in today, back in June Anne wrote,

“I am happy, I am free and I fight for my life every day. I am okay with how my story plays out now because I know I am doing the best that I can and some things you just can’t control. If you are fighting for something right now, my advice to you is keep filling yourself up with light and have strong faith. Help others and always listen to your heart… your miracle might be right around the corner waiting for you to complete the final task.”

We are hoping there are two miracles around the corner for Anne — a new heart and the financial help of our community — help from you.

Please contribute what you can to help Anne Knapke get through the mounting expenses she has acquired throughout this entire journey, and into the future. Any amount you can contribute to Anne’s Fearless Heart Fund would be greatly appreciated.

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Update 1
Posted by Anne Knapke
1 month ago
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Hi friends,

Reading your comments and seeing all of the love pouring out of this page brings me to tears. Thank you for loving and supporting me throughout my heart journey. You are so special and I appreciate you so much.

I waited for the perfect heart at Cedars-Sinai hospital for 59 days. During those 59 days I was in 2 ICU units due to my worsening condition. To keep me alive, a small surgery for an impella device was planned. When they went in, the team realized my veins were too small and it would not fit. Magic and miracles do happen because my body was able to pull through without this device and I was sent back to the cardiac unit to continue waiting for the perfect heart.

I received a beautiful loving heart on November, 9th 2018. I woke up in the ICU and spent 3 very fuzzy days there. After that I was able to recover in a cute recovery room. After 71 days at Cedars-Sinai I was discharged on November 20th, 2018 (my dad's birthday). I can’t say enough amazing things about this place. Every single doctor, nurse, clinical partner, staff member, toilet scrubber, you name it provided high quality care to me. The things that they can do are amazing and the people are incredible. Thank you Cedars-Sinai hospital for saving my life.

It has been one week since I was discharged from the hospital. I am currently recovering in Burbank, Ca and feeling better than ever! The precautions I am taking right now are due to a low immune system because of the high amount of anti-rejection medications I am on and my sternum needs 6 weeks to fully heal. If there is any place to heal and enjoy some R&R it’s here in Burbank. This is the cutest town ever!

I plan to be back in Cayucos after the holidays and I can’t wait. I am so giddy to come home and embrace my community. If there’s one thing that I’ve learned it’s that you can’t do it alone. Thank you for being apart of my tribe. Thank you for lifting me up. Thank you for loving me. Thank you for supporting me all in a time where I could not do these things for myself. You are a blessing to me and I thank God everyday for you, for my new heart, and for a chance at life again. I love you.

Love,
Anne Knapke
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$66,919 of $100,000 goal

Raised by 466 people in 3 months
Created September 26, 2018
Fundraising team
on behalf of Anne Knapke
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