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Admiration for Angelica

$16,070 of $16,000 goal

Raised by 156 people in 13 months
Created May 26, 2018
In the fall of 2016, following the birth of her younger brother Michael, Angelica (now 6 years old) began to experience TIA’s (mini – strokes). These were episodes of short intervals (10 – 20 minutes) where she would lose her speech, have weakness in her limbs, and her face would droop. In December of 2016, after several doctor visits and many tests, Angelica was diagnosed with MoyaMoya. MoyaMoya disease is a rare, progressive blood vessel disorder in which the carotid artery in the skull becomes blocked or narrowed, reducing blood flow to the brain, eventually leading to strokes.  Angelica underwent 2 surgeries in January/February 2017 at Lurie’s Children’s Hospital in Chicago at which the doctors performed indirect arterial bypasses, where a scalp artery is placed directly in top of the brain with the hopes of it gradually growing blood vessels into the brain to help supply additional blood flow.  It can take anywhere from 3 – 6 months for an indirect bypass to start providing additional blood flow. Several months after her initial surgeries, Angelica continued having TIA’s, even increasing in length, severity, & frequency.  After several additional tests the prognosis is that the bypass procedure on the left side of her brain worked very well, however the bypass on her right side was not successful.  Growing wearier of her situation and losing patience, Angelica’s parents, Dan and Jody, began seeking a second opinion on Angelica’s condition and a plan on how to move forward.  This has led them to the Chair of Neurological Surgery at Mayo Clinic in Arizona and the Chief of Pediatric Neurosurgery at Phoenix Children’s Hospital; 2 of the best doctors in the field.  Dan and Jody are now preparing to take Angelica to Arizona where she will undergo a 3rd arterial bypass surgery in the efforts to provide more blood flow to her brain and allow Angelica the opportunity to continue her life without the daily threat of a stroke or permanent brain damage. In her everyday life, even throughout all of this, Angelica remains her energetic, brilliant self, always taking the lead and spotlight in every room that she enters.  Her ability to run the show is admired by all, even the adults who come in contact with her. She has grown to be an amazing older sister to her siblings Marjorie and Michael. Angelica amazes her parents everyday with her knowledge, kindness, happiness, and love for everything and everyone around her.  The entire situation has been a great burden on her parents Jody and Dan, both emotionally and financially.  Jody and Dan have both taken on extra jobs to support them and their children all while fighting to provide Angelica with the best medical care possible. While Angelica, Jody, and Dan continue the fight to save Angelica, our hopes in setting up this account is to assist in alleviating all the additional expenses that the family has had to and continues to endure over the last year and a half and into the foreseeable future. If you are able to give, please do so. If you are not, we understand, but appreciate your prayers and if you could share this with everyone you know, that would be most helpful and appreciated. With love and great appreciation, Aunt Vicki and Uncle Matt
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Angelica spent two days in the ICU. She started walking with help the day after surgery and just continued to get stronger from there. She was moved to a regular room on Friday. She crushed her nurses goals of 3 bottles (full bottles) of water, getting to the playroom 3 times and we ended the day "going out to dinner" in the cafeteria and "going out to a movie" in the kid zone watching a wrinkle in time. Great movie by the way. She was released from the hospital on Saturday and is at the house the family can stay at resting very comfortably. She will follow up with one of her surgeons in two weeks. We are very grateful for everyone's kind words, thoughts, prayers, and "cyber" hugs. You have helped us stay strong with and for Angelica through the surgery, into her recovery, and the rest of this journey. She is truly a fighter and one of the strongest little girls we know. Thank you to everyone.
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Over the past week the Neurological Teams @ Mayo Clinic, Arizona & Phoenix Children’s Hospital have performed a battery of tests to verify the proper medial direction to address Angelica’s continued Moya Moya Symptoms.

After careful review of previous tests conducted @ Lurie’s & the current tests, with particular attention to MRI – MRA, the doctors will be performing a By-Pass to the Right Posterior Hemisphere of the Brain.

Angelica is scheduled for Surgery on Tuesday July 10 (Please wear purple on this day in support and take group pictures and send to angelicatherriault@gmail.com– as Jody will be putting together a collage for Angelica for when she is in recovery)

Prognosis: This procedure will provide additional, necessary blood flow, to the Posterior Hemisphere of the Brain.

Angelica’s demeanor & mannerism are positive. There is something to be attributed to the “innocence of childhood” She has been, for the most part, a Great Patient. She even got the nurses to get Bubble Gum Chap Stick to put on the mask for the MRI – MRA.

Dan, Jody & Angelica know all your thoughts & prayers are with them & that gives them comfort during this complicated time.
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Thank you again for the incredible show of support and for helping to spread awareness about Moya Moya. There has been a Facebook page set up if you wish to follow Angelica on her journey https://www.facebook.com/moyamoyastrong/ #Moyamoyasucks #girlpower #teamangelica
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Thank you all, for the incredible show of support to the family. Angelica had the opportunity to design her own shirt for her travels and we wanted to make these available to everyone who has shown support. All proceeds from a shirt purchase will go directly to the family, and the link below to order from is available until June 25th, to guarantee that everyone has theirs to wear in support of Angelica by July 9th, the scheduled date of her surgery.

https://form.jotform.com/81656658221158

Thank you again!
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$16,070 of $16,000 goal

Raised by 156 people in 13 months
Created May 26, 2018
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