Amelia's fight against AML

$7,065 of $15,000 goal

Raised by 103 people in 12 months
Created December 30, 2017
Sarah Williams
on behalf of Brittany Churchill
On December 26, 2017, Amelia was admitted to the Barbara Bush Children's Hospital where she received multiple blood transfusions while waiting to find out why her hemoglobin levels were so low. On December 29th, she was diagnosed with Acute Myeloid Leukemia (AML) which affects the bone marrow and blood cells. Amelia is normally a very active 3-year old that loves to play dress up, spend time with her big brother, attend gymnastics and has most recently taken up ice hockey. She will be starting Chemo immediately and will be spending the next 4 weeks in the hospital with her Mom, along with many hospital visits to follow. Her dad will be traveling back and forth to work and treatments, as well as trying to maintain somewhat of a normal schedule for their 8-year old son. All funds raised will go directly to the family for the medical bills they will incur and toward travel expenses. Lee and Brittany have to focus on their family right now, my hope is that they do not have to worry about finances during this already stressful time. Any donations and well-wishes would be truly appreciated.
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Update 4
Posted by Sarah Williams
9 months ago
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Sorry for the delaying in posting... as most of you know, Lee, Brittany and Amelia were heading to Boston yesterday for her bone marrow transplant. Amelia was admitted today and will face an incredibly aggressive round of chemo to wipe out her existing bone marrow before receiving the bone marrow donor cells.

Both Lee and Brittany will be staying with Amelia throughout the entire treatment. Even with everything going as planned, they are expecting at least a 6 week stay. This will be more challenging than their previous stays at the Barbara Bush Children's Hospital where they had the comfort and convenience of being close to home. In Boston they will be charged a daily parking rate and will each have to purchase 3 meals a day which could get quite expensive for a 6-8 week stay.

They still have a long road ahead of them but Amelia is so strong and I have no doubt that she will be running her wing by the end of this week.
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Update 3
Posted by Sarah Williams
12 months ago
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Amelia is approaching her 10th day of her recovery period, which is expected to be 15 days. Her energy is up, she is snacking a little bit and according to Brittany, she seems to be feeling better. She is still on antibiotics to be certain that the infection is gone and will not return. She is still mostly restricted to her room due to her extremely low ANC levels (0 as of today). Her ANC level needs to reach 500 before they are able to perform another bone marrow biopsy to discover the effectiveness of her first round of chemotherapy. We are hoping that it will start working its way up shortly so it does not delay next round of chemotherapy and so she is at less risk for infection or sickness.

On January 15th Amelia’s oncologist confirmed that her AML mutation type is high-risk for relapse so she will need a bone marrow transplant. This will require a 4-week minimum stay in Boston, after confirming a donor match. Knowing Amelia, she will handle this better than most adults – the girl is tough!

For those who have been inquiring about how to join the bone marrow donor registry, there will be a Swab to Save Lives donor drive during the spaghetti dinner event on Friday, February 9th from 5:30-8:30 PM at the Boys & Girls Club of Greater Gardiner, 14 Pray Street, Gardiner, ME 04345. This is a great opportunity to bring more awareness to blood cancer and could potentially save lives! The donor age range is 18-55. Please feel free to contact me for more information on this and check out https://www.dkms.org/en (the accredited organization that we are using for the donor drive).
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Update 2
Posted by Sarah Williams
12 months ago
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Here is an overdue update of the last week: Amelia has completed her first round of chemotherapy; not without complications. Within the first week her Absolute Neutrophic Count (ANC) levels had dropped to half of what it should be, leaving her at higher risk for infection – which followed shortly after. On her 10th day of chemotherapy she was battling a 102 degree fever, low platelet count and underwent a Nasogastric Intubation procedure (feeding tube) which will allow nutritional supplementation on the days that she does not feel well enough to eat.

She is currently receiving an antibiotic to combat the infection and waiting on testing to find out the exact type of Acute Myeloid Leukemia she has. If the results determine that it is a genetic form or unfavorable type of AML she may need to go to Boston to for a bone marrow transplant. If you are interested in becoming a bone marrow donor please visit https://bethematch.org/support-the-cause/donate-bone-marrow/. It is just a simple cheek swap and it could save a life. I am hoping that we will be able to host a donor drive the evening of the Spaghetti dinner, Friday, February 9th (more event information will be out on Friday).

Thankfully, Amelia is the strongest 3-year old that I know and she will overcome this obstacle.
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Update 1
Posted by Sarah Williams
12 months ago
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On a positive note, a spinal tap has confirmed that the cancer cells have not spread to the spinal fluid! Amelia is on day 3 of an aggressive Chemo schedule that will have them living in the hospital for the better part of the next 6 months. This will require a significant amount of commuting for Lee and Brittany (and grandparents) to make sure that they are both able to spend time with Amelia and her brother, Lucas. This is going to be a challenge, but they are focused on Amelia's health and keeping Lucas' schedule as normal as possible during this time.

I want to thank you all so much for the donations and support, it means so much to us and will allow Lee & Brittany to continue focusing on their family.
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$7,065 of $15,000 goal

Raised by 103 people in 12 months
Created December 30, 2017
Sarah Williams
on behalf of Brittany Churchill
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