Amelia Hill's Medical Fund
This is Jenny Buttaccio (Amelia's friend in Chicago). Some of you may know 'Amazing Amelia Hill' as the girl in the bubble, living with severe MCS/Multiple Chemical Sensitivity, CFS/Chronic Fatigue Syndrome, and EHS/Electrohypersensitivity. Or maybe you know her as I do–the girl with an unbreakable spirit. It’s one of the reasons people follow her healing journey on social media from all around the world. She makes others believe they can get through whatever circumstances come their way. She inspires us all to be our best selves.
Though not always easy, she bravely shared her story in the media several times and published articles to raise awareness for the illnesses that have ripped her life apart and the lives of so many others. No matter what her circumstances, she's always trying to help others.
Many of you watched the challenges she faced. She's endured horrible, disabling symptoms, long-term isolation, a very limited food intake, living in an empty, sealed room for several years, and dental surgery in her kitchen. For the last year, she's had to sleep on the bathroom floor.
Despite all of these trials, she's fought incredibly hard to improve her health over the last few years, and many of you have cheered her on. You've celebrated every healing milestone along with her–like walking outside for the first time, going for a short drive in the car to the end of the street, having visitors, and experiencing a few precious hugs. Remember those moments?
Unfortunately, it breaks my heart to report her health has taken a turn for the worse. Her family, friends and I are very concerned for her well-being. She can no longer hold her body upright, and her respiratory muscles are so weak, making it is very difficult for her to breathe 24/7. No one is sure why she has deteriorated so dramatically.
Amelia needs emergency care but she cannot go to the hospital, so getting the help she needs is proving to be very difficult. Sadly, medical advice, specialist consultations, and testing are very hard to access when you're housebound with the illnesses that Amelia suffers from. Plus, her medical expenses are not covered by any insurance.
Amelia told me she hasn't wanted to ask for support because she felt she had somehow failed all of us. And, she recently told me that she can no longer afford her health care costs, and she has stopped all treatment (including treatment with an environmental doctor in the U.S., who she felt was really helping her). She's already sold all her furniture and many possessions to fund her medical costs, but that is now gone. Her situation is so dire that she's regularly forced to choose between food and medical expenses.
Amelia confided in me that she has started to lose hope, and she's feeling scared for her life. She doesn't want this to be the end of her story. She still has so much more to give.
Amelia desperately needs our help right now. If you have ever been touched by her story over the years, let's work together to get her the care she so badly needs. Please contribute what you can and share this campaign with your own friends and family too.
The money we raise will go specifically to Amelia's urgent medical expenses. They include:
*In-home consultations with a family doctor/primary care provider
*In-home consultations with specialists including respiratory and neurology.
*Restarting treatment with her environmental illness physician.
*In-home nursing visits.
*In-home blood draws and other testing.
*Medical equipment including an oxygen concentrator and a nebulizer (will purchase second hand if available).
*Shipping and handling to send some specialized test abroad.
*Necessary medication including prescription, herbal support, and supplements.
*Adjunct treatments, like acupuncture, to build her immune system back up.
"Amelia is one of the kindest, considerate and proud friends I know. Always the first to remember a birthday and send a gift, be thoughtful with messages and share her knowledge.
These past few months I have been very worried for Amelia’s physical and mental health, she is now confined to a wheelchair and her parent's bathroom floor.
Despite this, she tries to remain positive, help and inspire others."
"Amelia is one of the most beautiful people I know. And she has been faced with some of the biggest challenges I've heard of.
She has been pushed to the edge and back thousands of times. She struggles with very severe breathing and energy issues daily. I am concerned for her life, and know of no one more deserving of your support right now."
"Amelia sleeps on the floor in the bathroom with no heater in winter or air conditioner in summer. She lives on a rotation diet with 7 foods. Seven. There is no joy in food and she struggles to nourish her body, to keep herself alive.
In all of this Amelia is not a victim. She spends every moment being positive and trying to give back to others. She refuses to give up. Her strength and resilience are astounding."
"Amelia gives inspiration and hope to so many people (including me). Life tests us in weird and very often awful ways, but she has met all of it head on. Amelia is an incredible spirit."
Links related to Amelia's story:
Adelaide's girl in a bubble
Fit traveler: Meet the Amazing Amelia Hill
Huffington Post: When People Don't Look Sick Enough
Media & Links
Wholesome Living: Confined to one room for 5 years
I'm very excited to share an update with you this evening (Chicago time). I spoke with Amelia's mum (Danija), and she filled me in on the treatments Amelia has been able to receive so far with your generous donations.
1. Amelia was able to get some specialized testing done to try to figure out what's causing her abdominal issues. She's awaiting those test results.
2. Both an acupuncturist and an osteopath have made trips to the home. Those sessions seem to be the most helpful right now.
Please send your well-wishes and prayers, share, and donate as able. Let's see if we can get this campaign to the finish line. Just $1,380 more to go. Although progress is slow, we are making a difference!
Once again, we are so grateful for your generosity. Today, we passed the 13K mark, and our campaign has garnered media attention from all over Australia. However, the requests for interviews have taken their toll and Amelia's mum, Danija, has posted this update on Facebook today:
"Amelia has been approached by a number of television and magazine journalists over the last couple of days. Although she greatly appreciates the interest in her story and GoFundMe Campaign, she is just far too ill to be involved in any media at the moment.
She does feel a great responsibility to try and help others and to do what she can raise awareness for MCS, CFS, EHS etc, but right now she really needs to focus her energies on her own critical health. We all hope that in the future she will be well and strong enough to do more. Thank you all for your continuing support. It means so much to us."
Please continue to keep Amelia in your thoughts and prayers. She's fighting hard to regain her strength!
Love from Chicago,
Hi, it's me.
My heart is so full knowing so many of you have joined together to help me this week. I'm overwhelmed, humbled and completely floored by your very generous participation in the #GoFundMe campaign created by my lovely gal, Jenny Lelwica Buttaccio to help me finance my ongoing medical expenses.
I could write a million thank yous, but somehow they wouldn't ever feel like enough.
But here's one filled with absolute and ever-overflowing gratitude. Thank you.
Things are really not good here. They haven't been for a while now. And when things went from bad to worse, I realised that there was no way I could find a way forward without help.
of your @gofundme support, I am able to pursue medical advice/testing/treatment to address my current acute deterioration as well as restarting the ongoing treatment I had to stop last year due to cost. I have been so incredibly stressed about this and I can't tell you what an immense relief it is for me to know that I can let go some of that crippling daily worry now.
To conserve energy and keep focused on trying to improve my health, I'll continue to take a break from social media. It's just takes too much out of me. But I promise I'll try & pop by with an update when I can.
Once again, a big thank you for the very generous GoFundMe support ... and all the love, kind messages & prayers too. Thank you, friends ... you all really mean so much to me.
Love, light & squeezy Facebook hugs,
We are so pleased to see we made it over the $12,000 mark in less than one week! Again, we sincerely thank you all for your generous contributions.
I've received a couple of questions from US donors about why their credit card statements don't seem to match their donations. When you donate, the money is being converted into Australian dollars. The current conversion rate is 0.76 for every 1 US dollar. Hope this clears up any confusion.
We are almost there! Please continue to donate as you're able, and share this fundraiser across your social media platform.
Hi Jenny, Please contact me on 0438 885 816 so I can pass on some information from my journey which I know will help Amelia. Tks for helping a friend in need Sharon
I am so happy that Amelia is able to get the help she needs. We miss her beautiful smiling face. Stay strong Amelia, we've got your back.xx
Hi Amelia, I have MCS too, but nowhere near as bad as you. Electrical sensitivity comes from heavy metal poisoning. Look for causes of toxicity in your mouth. Do you have dental amalgams (silver-coloured fillings)? That is mercury, the most common cause of MCS and electrosensitivity. Did you have them before but you had drilled out without any safety precautions? Do you grind your teeth or were you ever in an accident where you hit your head and gnashed your teeth together real hard, releasing the mercury in one large dose? Have you ever had titanium dental implants, bridges, crowns, braces or dentures? Your body can be allergic to these metals. Do you have a root canal? All root canals harbour anaerobic bacteria which produce highly toxic toxins which are spread throughout the body. There are no symptoms at the site. Have you ever had a tooth extracted, especially wisdom teeth? It is very common for that to turn into a cavitation, which harbours even more toxic bacteria than a root canal. Do you have a metal implant or screws in your bone? Do you have a breast implant? All these are toxic. Have you ever been vaccinated? Vaccines contain mercury and aluminium, which are highly inflammatory to the immune system. They also breed candida (a fungus), which grows in your intestines and causes leaky gut. This is the cause of your food allergies. Have you been exposed to mould? Perhaps a house where you lived had mould in the basement or the bathroom which you were not aware of. Many of your symptoms are common with a fungal infection, although these can also be due to parasites. I suspect you have had one of these exposures between 15 and 30, which pushed you over the edge. Pesticides are not solely to blame, they do not take 15 years to act. Look for other sources of toxins. Also, a suggestion – get a desktop or notebook computer with a landline. This is way less radiation than a smartphone.
Is there a way to donate via PayPal? I think I sent something to Amelia before. Please advise. PP is best for me. Thanks. Much love , strength and faery dust to Amelia. Kimmergy