Medical Expenses for Amelia
It’s been almost 10 years since I’ve slept in a real bed with a proper mattress and bedding.
Besides a 5 day stay in hospital and 1 month on a foam mattress wrapped in plastic, I have not slept in comfort or in my own sleeping space in all those years.
For many years I slept on a single fold out bed with only folded cotton blankets underneath me for minor padding, many more years I slept on the bathroom floor on half a massage table with rolled up towels as my pillow. This past year in my new home, my bed has been a plastic Ikea sun lounge in the middle of the lounge room ... some folded towels and a cotton quilt my only padding.
ME AND MY FOLD OUT BED IN MY SAFE ROOM
MY BED ON THE BATHROOM FLOOR
I honestly just do my best and don’t try to focus on this area of my life.
I have told myself that one day I will get to have another real bed to call my own. But with so many other pressing issues, that dream always gets shelved or postponed to some future far off date.
But it’s also been a dream I have been afraid to hope for, because if it didn’t happen I didn’t want to experience the let down.
The other reality is my back is not coping. I have constant pain. Again, I just try and manage it. But I don’t want to ‘just manage’ this anymore. Now that I’m finally living in my new home I would really love to sleep in a proper bed in a proper bedroom. Not on some makeshift foldout or on the floor - but a real place of comfort and safety and peaceful and restorative slumber. Can you just imagine how amazing that would feel for me?
ME ON MY CURRENT BED IN THE LOUNGEROOM OF MY NEW HOUSE - A METAL/PLASTIC IKEA SUNLOUNGE
CLOSE UP PHOTO OF MY IKEA SUNLOUNGE BED. I USE A THIN COTTON QUILT AND TOWELS AS PADDING.
As I said, I’ve been afraid to admit I really want this. It’s hard to let myself say this out loud too. It’s as if wanting and articulating this means I’m asking for too much or inviting disappointment. After all, I am grateful for what I have and I know others have it more challenging than me. But now, I’m realising that a proper bed is a very important way to literally support and help my body in the healing process so it’s time to start the journey.
Due to my sensitivities, my best chance at success is an organic cotton/ natural latex/coir mattress - I have already tested samples of mattress materials and it looks hopeful. But the reality is, these natural mattress are expensive. The cheapest of these natural mattresses is in the $2600 price range not including shipping or other bedding.
It’s my birthday on Sunday and I’m trying to find the courage to ask for help in achieving this big goal - because I can’t see a way I can do this on my own. A goal, a dream to sleep in my very own proper, comfortable bed - after almost 10 years of getting by with the bare minimum.
So I am courageously asking if anyone would like to contribute to my mattress savings fund as a birthday gift? If so, I would very graciously and very gratefully accept.
THIS IS THE IKEA TIMBER BED FRAME I BOUGHT SECONDHAND ABOUT 18 MONTHS AGO. MY BODY DOESN’T TOLERATE THE RAW PINE, BUT I’M HOPING THAT AFTER IT IS SEALED WITH VOC FREE SEALER I WILL BE OK.
THIS IS THE BEDROOM IN MY NEW HOUSE THAT I HOPE I WILL BE ABLE TO SET UP WITH THE NEW BED/MATTRESS
My heart is also warmed by the idea of how amazing it would feel to literally sleep on a bed created out of love and friendship and collaboration. How special that would be?
Questions or messages below or via DM are welcome.
Thank you so very very much for reading my post and considering my very genuine request for help.
So much love, light and gratitude,
PS It’s really difficult to be this candid and this vulnerable with all of you. - especially asking for help and sharing photos. Thank you for your understanding.
PPS this page was originally set up 2 years ago by my friend Jenny, so her details are visible
We did it! Nine hours ago, we reached $15,000 in donations. My heart is overflowing with gratitude for your generous contributions and the continued sharing of this fundraiser. Thank you so much for allowing us to achieve our goal and for helping our dear Amelia receive the funds she needs to search for appropriate treatment. This has been a giant team effort!
15,000 thank you's to you all!
I'm very excited to share an update with you this evening (Chicago time). I spoke with Amelia's mum (Danija), and she filled me in on the treatments Amelia has been able to receive so far with your generous donations.
1. Amelia was able to get some specialized testing done to try to figure out what's causing her abdominal issues. She's awaiting those test results.
2. Both an acupuncturist and an osteopath have made trips to the home. Those sessions seem to be the most helpful right now.
Please send your well-wishes and prayers, share, and donate as able. Let's see if we can get this campaign to the finish line. Just $1,380 more to go. Although progress is slow, we are making a difference!
Once again, we are so grateful for your generosity. Today, we passed the 13K mark, and our campaign has garnered media attention from all over Australia. However, the requests for interviews have taken their toll and Amelia's mum, Danija, has posted this update on Facebook today:
"Amelia has been approached by a number of television and magazine journalists over the last couple of days. Although she greatly appreciates the interest in her story and GoFundMe Campaign, she is just far too ill to be involved in any media at the moment.
She does feel a great responsibility to try and help others and to do what she can raise awareness for MCS, CFS, EHS etc, but right now she really needs to focus her energies on her own critical health. We all hope that in the future she will be well and strong enough to do more. Thank you all for your continuing support. It means so much to us."
Please continue to keep Amelia in your thoughts and prayers. She's fighting hard to regain her strength!
Love from Chicago,
Hi, it's me.
My heart is so full knowing so many of you have joined together to help me this week. I'm overwhelmed, humbled and completely floored by your very generous participation in the #GoFundMe campaign created by my lovely gal, Jenny Lelwica Buttaccio to help me finance my ongoing medical expenses.
I could write a million thank yous, but somehow they wouldn't ever feel like enough.
But here's one filled with absolute and ever-overflowing gratitude. Thank you.
Things are really not good here. They haven't been for a while now. And when things went from bad to worse, I realised that there was no way I could find a way forward without help.
of your @gofundme support, I am able to pursue medical advice/testing/treatment to address my current acute deterioration as well as restarting the ongoing treatment I had to stop last year due to cost. I have been so incredibly stressed about this and I can't tell you what an immense relief it is for me to know that I can let go some of that crippling daily worry now.
To conserve energy and keep focused on trying to improve my health, I'll continue to take a break from social media. It's just takes too much out of me. But I promise I'll try & pop by with an update when I can.
Once again, a big thank you for the very generous GoFundMe support ... and all the love, kind messages & prayers too. Thank you, friends ... you all really mean so much to me.
Love, light & squeezy Facebook hugs,
Hi Jenny, Please contact me on 0438 885 816 so I can pass on some information from my journey which I know will help Amelia. Tks for helping a friend in need Sharon
I am so happy that Amelia is able to get the help she needs. We miss her beautiful smiling face. Stay strong Amelia, we've got your back.xx
Hi Amelia, I have MCS too, but nowhere near as bad as you. Electrical sensitivity comes from heavy metal poisoning. Look for causes of toxicity in your mouth. Do you have dental amalgams (silver-coloured fillings)? That is mercury, the most common cause of MCS and electrosensitivity. Did you have them before but you had drilled out without any safety precautions? Do you grind your teeth or were you ever in an accident where you hit your head and gnashed your teeth together real hard, releasing the mercury in one large dose? Have you ever had titanium dental implants, bridges, crowns, braces or dentures? Your body can be allergic to these metals. Do you have a root canal? All root canals harbour anaerobic bacteria which produce highly toxic toxins which are spread throughout the body. There are no symptoms at the site. Have you ever had a tooth extracted, especially wisdom teeth? It is very common for that to turn into a cavitation, which harbours even more toxic bacteria than a root canal. Do you have a metal implant or screws in your bone? Do you have a breast implant? All these are toxic. Have you ever been vaccinated? Vaccines contain mercury and aluminium, which are highly inflammatory to the immune system. They also breed candida (a fungus), which grows in your intestines and causes leaky gut. This is the cause of your food allergies. Have you been exposed to mould? Perhaps a house where you lived had mould in the basement or the bathroom which you were not aware of. Many of your symptoms are common with a fungal infection, although these can also be due to parasites. I suspect you have had one of these exposures between 15 and 30, which pushed you over the edge. Pesticides are not solely to blame, they do not take 15 years to act. Look for other sources of toxins. Also, a suggestion – get a desktop or notebook computer with a landline. This is way less radiation than a smartphone.
Is there a way to donate via PayPal? I think I sent something to Amelia before. Please advise. PP is best for me. Thanks. Much love , strength and faery dust to Amelia. Kimmergy