In hopes of alleviating some symptoms, Allie, now 17, underwent a serious brain surgery in February, and part two of that plan was a back fusion. It's time for the surgery, but the costs are overwhelming.
Allie and her Mom (our daughter Angie Case Skelly) need transportation to and from Florida to NY, as well as expenses while there for two weeks, a special new mattress, and many medications (already her medications cost over $1000 a month). Her mother will not be able to work for at least 4 weeks and possibly more, and will lose this income, as she is self-employed. They have not even begun to pay the actual hospital/drs'. bills from the first surgery, and unfortunately, due to a change in insurance, they will be responsible for a good chunk of the cost of this one as well.
We hope to arrange the surgery for next month; Allie really cannot wait much longer without negative consequences.
If you spent 10 minutes with Allie, you would be blown away by her courage, her resiliance and determination. She has big plans for her life (she wants to be a pediatrician so she can help other children), and we know she can achieve them when she receives the treatments she needs. Please consider helping us help Allie! She will help change the world one day.
Thank you so much.
Hi Facebook family! We were able to Skype with Allie's back surgeon in New York today. He agrees that it is time for the surgery. Her back slides out of place and causes temporary paralysis in her legs and sometimes her arms as well. He has a few tests that he wants info from prior to surgery. One is an EMG of her lower extremities which she was hoping to avoid as it involves needles and electric currents - ugh! But better to go in with as much info as possible. He is going to try to get her on his schedule for end of May. We are happy to have the process started but of course not excited at the idea of what lies ahead. This week has been a "crash" week for her as she pushed so hard to be part of everything last week. Hoping that once she has the surgery she won't have to pay for every normal day she tries to be part of! Thank you so much for being part of this journey with us!
Thank you everyone for your likes, shares, contributions and kind words! We feel so wrapped in love and support! Can't help but want to use this moment to share a glimpse into the life of a child with invisible illness. If you saw us at the park at 4 o'clock taking pictures, you would never know this girl was sick. We planned her day so carefully, with time to lie down and rest between hair and makeup, pictures and the actual prom. I sent them off knowing that we had done all we could to give her a fighting chance at a normal night. But her body did not cooperate, and she only had an hour and a half before she was dizzy, nauseous and hurting too much to stay upright. She was crushed. Her wonderful and ever-patient boyfriend calmed her down, brought her home and shared a pizza with her, in all their finery. It was not the storybook night she envisioned. This is not the life she envisioned. But she is the strongest, most resilient person I know, and she will be smiling soon! Thank you all for your part in giving us the chance to take away some of her daily pain. Fingers crossed that the upcoming surgery gives her back some “normal!”