Help send Mandie to Fragile X Conference

$3,430 of $2,000 goal

Raised by 51 people in 54 months
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Every 2 years the National Fragile X Foundation organizes the International Fragile X Conference. People travel from all over the world to hear about new research, connect with other families affected by FXS and learn more about all facets of Fragile X. With limited resources and support services offered in Saskatchewan, this conference has been a wealth of opportunity for my sister to learn more about Fragile X Syndrome (as well as medical conditions related to Fragile X carriers, such as myself). Attending this conference is a benefit not only for the wellbeing of my nephew (who has Fragile X Syndrome) but also other families in Saskatchewan affected by FXS. My sister provides education and awareness sessions based on what she has learned at these conferences and is able to better support questions we receive from newly diagnosed families in Saskatchewan. Having the opportunity to connect with specialists, medical professionals, and researchers in the field of Fragile X Syndrome is invaluable. New information about therapies and daily living techniques have aided in improving the quality of life for my sister’s son. However, the cost of attending this conference is high. With the registration cost at just over $500CDN, flight costs (as the conference is held in the USA) and the costs of hotel and food, the total is over $2000.00 per person for this 5 day conference. As such, I'm asking that you help me help my sister cover the costs of attending the 2014 International Fragile X Conference. The conference runs July 16-20 but I am going to leave the donations open longer in order to help pay off the cost. Every little bit helps!

Thank your for your help! To learn more about Mandie & Colton and Fragile X Syndrome, please visit www.fragilexsask.ca, our facebook page (Fragile X Saskatchewan) or our twitter account @fragilexsask.
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Over 150%! You are all amazing! To each & every one of you who has donated, shared the page, & contacted us with encouragement - gratitude!
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Wow! I am amazed and overwhelmed by the support that has been shown for my sister and my nephew. This is incredible. I did not expect to reach our goal in only a day. Reaching funds over our target goal means that we may be able to fund the full conference cost. Maybe even the cost of my nephews flight, as my sister is taking him to attend the conference this year.
Thank you all so much for your support!
Jamie
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$3,430 of $2,000 goal

Raised by 51 people in 54 months
No Longer Accepting Donations
 Share on Facebook
Created June 23, 2014
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$20
Anonymous
54 months ago
SH
$100
Shelley Hamilton
54 months ago

Colton and Amanda, You are two very special people that make the world a better and brighter place. Have fun and soak up all that you can in Toronto,.

DD
$50
D Delday
54 months ago

Love you both!

HF
$200
Hardcore Fitness
54 months ago

People cross our path for a reason. Sometimes I don't understand why, but I know that it's not by accident. It's been 5 years counting that I have met Amanda and Colton and it's difficult to put in words how to describe them...but amazing, loving, patiences, hard working, perseverance are a few that come to mind. Colton is a main stay at HC who is truly loved by each member. His fitness level has improved so much each year He is willing to try any exercise we do...even the hand shake which is so cool. Have a wonderful trip. You have definitely earned it Amanda.

TE
$100
The Ervine's
54 months ago

We are so lucky to have gotten to know you and Colton so well. You both are very important to us! Enjoy Cali :)

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