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Adeline's Journey

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Dear family, friends and anyone else whose hearts our story touches. We are asking for prayers and financial help for our infant daughter sweet Adeline Grace. During my pregnancy the doctors suspected that our baby might have a chromosome disorder. As 1st time parents the news was hard to hear. Towards the end of my pregnancy the doctor determined that Adeline was struggling to gain the weight and for her to remain healthy, they would need to induce labor early to save her life. Due to complications with natural labor, cesarean birth was our only option to get her out quickly.  Adeline arrived weighing only 4 lbs 2 oz and because she was so small she had to be admitted to the NICU. She was placed in an isolate and an Nasogastirc Tube was placed to administer my breast milk through. It was a very difficult time for us. We couldn’t hold our precious baby for several days and I couldn’t breastfeed her.  During our time in the NICU we did receive confirmation that our baby did in fact have a rare chromosome disorder called Micro Deletion of chromosome 2. We were heartbroken by the news and wondered what this would mean for our baby’s future; but through the love and prayers of our family we were able to have peace despite all the worries we faced.  After being in the NICU for 41 days our baby was able to come home with her mommy and daddy! She was still struggling to finish her bottles and gain the weight that she needed to thrive so she was sent home with the NG tube still in place so we could feed her every 3 hours. Due to Adeline’s need of the NG tube we are still unable to find daycare for her so my husband and I are having to take turns staying home from work to care for her. This along with all of her medical bills have created a huge financial burden on us.  On top of that, her chromosome disorder caused the need for her to see many doctors, most of which are out of town.  This means even more time off of work for the both of us. We love our sweet baby girl and we want the best for her. We know that God loves loves her too and has great plans for her, plans to give her wonderful hope and a future. We are putting our trust in him. We thank you so much in advance for any help that you can give us. We also ask that you please share our story with others by clicking the share button or simply re-posting. Love James, Amanda and Adeline
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Donations 

  • Cathy Vaccaro
    • $50 
    • 5 yrs
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Organizer

Amanda Sellers
Organizer
Topeka, KS

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