Adamson Medical Expenses Fund
Do Not Google It!
In late summer, my wife and I noticed a couple odd lumps on my back. In the past I have had cysts taken out that were no big deal so naturally we feel that this is what we see and we ignore them. As time goes on they start to pop up here and there and ignore them further; many of you probably know that I'm never concerned about much. From there we get really busy, getting married! pulling off a wedding in four months was no easy task but by the grace of God it sure happened. It is and will always be the best day of my life, just ask my wife! about this time these mystery lumps started to multiply and change to a red/purple color and bruising. We talk and decide enough is enough we need to get this figured out, so we turn to WebMD, and the medical professionalism of all of the people around us... We learn its probably nothing to worry about! after the honeymoon in Costa Rica, which was Bomb, we call the doctor to set up an appointment. They proceed to tell us that we cant be seen until a week into January because they are booked until after the holidays! Thinking its nothing we take it, spend our first and best Christmas ever, together! Going into the first doctors appointment we have everyone stumped, biggest reason being is that I am normal, well in the sense that I feel no symptoms. I just have bumps. So the tests start flowing in, blood work, urine test, chest x-ray, biopsy. Everything seems to come back normal, most importantly blood work comes back normal so we sort of rule out cancer! The only way to figure this out is to cut out a big section and run tests on it, so that's what we did. Told to wait about one week for results. The day things started to get scary we were called by every doctor we had seen up to this point, both telling us we had to come see them as soon as possible. Talk about your heart dropping to the floor. That next morning Morgan and I sat in an office and found out that I am a very very sick person. I was diagnosed with Blastic Plasmacytoid Dendritic cell Neoplasm, or BPDCN. A rare form of leukemia, we had no idea how rare or how dangerous this beast was. So after a short cry in the car, I decided to google it, I found out how bad of an idea that was really fast. Until 2008 BPDCN was never given a name and was referred to as the natural killer, not a name I was real thrilled about. Further research told me that there is still no standard of treatment for what I have, and that until recent date there were no survivors of BPDCN. Morgan and I at this point had a lot weighing heavy on our hearts and on our minds. Immediately we turned everything over to God our lord and savior, a place where we know that all burdens are made weightless. For those of you who don't know Morgan and I started to attend radiant church about 2 years ago, we since have met people that have changed our lives and pushed our hearts toward God. There has been nothing more exciting and rewarding that turning our lives our finances our marriage and so many other things over to God, including this situation. We have prayed before every doctors appointment for Gods healing hands and his grace. After finding out we were immediately referred to the U of M center for leukemia. Not to discredit the health care system here in Battle Creek, for whom my dad works for in the cancer center, but this is just something they have never even heard of before. At 70 cases a year and average age of patients being in their 70s I am a rare individual. Trust me I don't forget to remind my wife how rare I am! The five days of waiting before we got to the U were restless to say the least, yet full of prayer and trust in the Lord. On that Tuesday God brought such an overwhelming sense of peace and comfort to me and all of those around us. We were able to learn and laugh and enjoy so many things in the midst of darkness. Dr. Bixby was such an amazing person he informed us and put on the table our options in moving forward. The good news was that I am young and though it is urgent, we were told that we could take a week or so and decide what works for Morgan and I best. Which was such a blessing and being able to dig into prayer and just trust that the Lord would give us such a clear answer. We were given two options for treatment and lots of ways to receive them. Option one that was given was to receive a conventional form of chemo called CHOP, followed by bone marrow transplants. Option two was to be apart of a clinical trail called Sl-401, a targeting drug followed by the same transplants. Both show success in recent history, option one keeps us close to home, option two moves us all the way across the country to Houston, Texas. The common denominator between the two is the bone marrow transplants, before doctors realized that this was a necessary part of your treatment there had been no survivors of BPDCN. There were a few things to what BPDCN and our first visit that helped us rest easy. First, its genetic, there is nothing we could have done to prevent this. Second, we had time, they told us that treatments and outcome would not change to matter if we were to start this three months ago or in three weeks. At this point we are figuring that I have had BPDCN for about six months. With the sense of urgency being moderate, Morgan and I have been able to take our time, seek God's guidance and make the right decision. We tossed and turned, weighing the option and the success, nothing seemed like a bad option at this point. We knew that we would need to trust that God would make this answer so clear to us. He did just that, after talking to doctor Pemmaraju at MD Anderson in Tx we knew where we had to be for this journey. He and his team are the leaders in the world at treating BPDCN and Dr. Pemmaraju is one of the only doctors that has dedicated his whole career to the treatment and cure of BPDCN. He and his team contacted us and are so eager to treat us, we felt so blessed that the best in the world were seeking us and it is such a testament of Gods power through all the chaos. So as of now that is the plan, we are working very hard to make it all happen. Housing is still up in the air but we know that's where we need to be, so for those of you who do not know Morgan and I will be moving to Texas as of Tuesday morning.
In the midst of all of this chaos and what may seem like darkness, we have found such a light in Christ. Our priority is to obviously get healthy, but we feel that God has given us a chance to have a powerful testimony of faith and healing. A testimony that will be undeniable to many and lift up a glorious God. We feel that through this we will be able to change the hearts of so many that surround us. God is governing all of the chaos in this world and I now have proof of it. So many people spend the majority of their lives trying to find their purpose, I feel God just gave us our purpose a little bit sooner than most. So if you all wouldn't mind, my wife and I would love all of your prayer and support! We would also love for you to follow and share our story with those that surround you. We strongly believe that God has a Giant victory just around the corner, and we will praise his name!
if you have any questions for us about absolutely anything or have any updates for us please feel free to contact us, we may be bored in Texas! Stay tuned for videos of our journey and what God is doing!
Love, Nick and Morgan Adamson!