Rylee Sanford Accessibility Cannabis
Anything donated will be used for our van, make our home accessible and for Rylee’s cannabis oil for her seizures.. We want to thank everyone that donated or shared her page!!
Hi everyone meet Rylee.. She is 10 years old and relies on her family for everything. She is A very smart girl that has learned to talk in the past year. She has a very rare brain malformation called bilateral close-lipped schizencephaly which ultimately causes her to have cerebral palsy. Schizencephaly basically means her brain has 2 clefts on it. Can you imagine lifting every time you go somewhere. ￼
Rylee was diagnosed a few months ago with focal seizures....
We have found a van....However making accessible makes the payments really expensive and we other things that need to be made accessible in our home we need help...We currently live in a double wide so we have to have our bathroom made accessible also...￼
Our bathroom desperately needs accessibility. This our current setup and her new bath chair doesn’t fit in the shower. Lifting her in and out really takes a toll on this moms back...
Here is where you come in…we need you to donate. We need you to share this link to all of your friends on Facebook, Twitter, Instagram, and your places of employment! Share to everyone you can think of! Please join us in making this need a reality for our family. Thank you….now SHARE, SHARE, SHARE!!!!
Last night was rough with seizures but I wanted to update everyone on the van. We are currently 3000 away from the conversion. I don’t know how families so much money. We however are so thankful for the ones that donated. The Facebook fundraiser ended so we have this one going again and it is updated with the funds from Facebook. Thank you so much if you have helped our Rylee!!
Hi everyone just a update. Rylee’s seizures continue but we did see a new neurologist. Hopefully we will see some change soon. We are still trying to fund the conversion for a van! We also have some other improvements that need to be made to our home. This life is tough...Thanks to everyone that has shared or donated.
We are currently about 5000.00 away from our goal. Feeling kind of discouraged with the week we have had. Between seizures and Rylee being sick. We are just asking for help with the conversion....