Abbys Surgery and Recovery
Donation protected
My best friends daughter who lives with the rare condition Rett Syndrome will soon have complete spinal fusion with possible hip reconstruction and foot surgery.
Because Abbys condition is rare they will be doing the surgery 5 hours from home at St Louis Childrens because of their attached Rett Clinic..
Unfortunately scoliosis is a common condition associated with Rett Sydrome due to extreme low muscle tone and Neurological misfiring.
Abby is 12 years old and recently went through the normal, big growth spurt for her age. Suddenly her scoliosis, which had been stable grew out of control. It caused her hip to come out of place, stress fractures, loss of mobilty and constant pain, that she cannot express properly as she is Non Verbal.
Her Ortho team decided that surgery could not be held off any longer as her right rib cage is sitting on her hip.
since the surgery will be so far from home and they are a one income household we are seeking funds for travel and hotel expenses for the next few months as they travel back and forth preparing and testing for the surgery and the surgery itself.
Girls with Rett Syndrome are known to take longer to recover from this surgery and since they are so far from home they will keep her a bit longer so she can travel once it is safe.
Her mother will need funds for gas, hotel beforehand for several trips. Food for herself from anywhere to a few weeks to 6 weeks or more.
Once Abby gets home we will need to set up a hospital type environment for her and would like to be able to purchase the things that insurance won't cover.
Cleaning supplies, positioning equipment, a special bean bag bed/chair. Extra sheets, towels, gauze , wipes. A towel and wipe warmer. And funds for all the little things that come up that are still unknown to her.
Terri devotes every waking moment to Abby and never ever complains. It's is a backbreaking job that she does with more knowledge, love and dedication than I've ever seen.
During this stressful time I don't want her to have to stress over money or the lack thereof.
As a friend you always ask what can I do? This is what I can do.
Appointments have already started and her next trip is January 18th 2017. Surgery will be Feb 22, 2017 with a 3 day hotel stay beforehand.
Any help given will be received with heartfelt gratitude as it will not only make this difficult road easier for Abby, but will also offer some peace of mind to a very dedicated and deserving Mother!
Abbys father works tirelessly as a Maintenance man so Terri can stay home and provide the best care possible for their child.
it is unknown at this time if there will be lost income so he can be with them during the decision making and testing process as well as surgery.
Thank you.
Laurie
Because Abbys condition is rare they will be doing the surgery 5 hours from home at St Louis Childrens because of their attached Rett Clinic..
Unfortunately scoliosis is a common condition associated with Rett Sydrome due to extreme low muscle tone and Neurological misfiring.
Abby is 12 years old and recently went through the normal, big growth spurt for her age. Suddenly her scoliosis, which had been stable grew out of control. It caused her hip to come out of place, stress fractures, loss of mobilty and constant pain, that she cannot express properly as she is Non Verbal.
Her Ortho team decided that surgery could not be held off any longer as her right rib cage is sitting on her hip.
since the surgery will be so far from home and they are a one income household we are seeking funds for travel and hotel expenses for the next few months as they travel back and forth preparing and testing for the surgery and the surgery itself.
Girls with Rett Syndrome are known to take longer to recover from this surgery and since they are so far from home they will keep her a bit longer so she can travel once it is safe.
Her mother will need funds for gas, hotel beforehand for several trips. Food for herself from anywhere to a few weeks to 6 weeks or more.
Once Abby gets home we will need to set up a hospital type environment for her and would like to be able to purchase the things that insurance won't cover.
Cleaning supplies, positioning equipment, a special bean bag bed/chair. Extra sheets, towels, gauze , wipes. A towel and wipe warmer. And funds for all the little things that come up that are still unknown to her.
Terri devotes every waking moment to Abby and never ever complains. It's is a backbreaking job that she does with more knowledge, love and dedication than I've ever seen.
During this stressful time I don't want her to have to stress over money or the lack thereof.
As a friend you always ask what can I do? This is what I can do.
Appointments have already started and her next trip is January 18th 2017. Surgery will be Feb 22, 2017 with a 3 day hotel stay beforehand.
Any help given will be received with heartfelt gratitude as it will not only make this difficult road easier for Abby, but will also offer some peace of mind to a very dedicated and deserving Mother!
Abbys father works tirelessly as a Maintenance man so Terri can stay home and provide the best care possible for their child.
it is unknown at this time if there will be lost income so he can be with them during the decision making and testing process as well as surgery.
Thank you.
Laurie
Organizer and beneficiary
Laurie Chance
Organizer
Kansas City, MO
Teresa Vejrosta
Beneficiary
