cure4rett

$550 of $200k goal

Raised by 14 people in 21 months
Graziella Cohn  BOSSIER CITY, LA
I would like to start fundraiser in name of my granddaughter for the cure of rett syndrome..
+ Read More
Update 2
Posted by Graziella Cohn
20 months ago
   Share

Bruce
12:33 PM (35 minutes ago)

to
Friends,

My wife, Graziella and I have undertaken this project to ultimately make a large donation in Adah’s (our granddaughter) name and also fund any special equipment that health insurance will not.

Last year in school the children were asked to draw a picture of what they wanted; Adah drew a picture of herself outside playing and through her computer communicated “To live one day without Retts.” She is a treasure for us all, every moment is a blessing.

I am asking that if you can make any donation, then “Thanks” but most of all please pass forward to others whether email, Facebook and other social media if you use.

Please check out the below link:

http://www.gofundme.com/a28z748bs

Thank you for your prayers, donation or just for passing this forward,
+ Read More
Update 1
Posted by Graziella Cohn
20 months ago
   Share
By Mayo Clinic Staff
Rett syndrome is a rare genetic disorder that affects the way the brain develops. It occurs almost exclusively in girls.

Most babies with Rett syndrome seem to develop normally at first, but symptoms surface after 6 months of age. Over time, children with Rett syndrome have increasing problems with movement, coordination and communication that may affect their ability to use their hands, communicate and walk.

Although there's no cure for Rett syndrome, potential treatments are being studied. Current Rett syndrome treatment focuses on improving movement and communication and providing care and support for affected children and their families.
+ Read More
Read a Previous Update
Be the first to leave a comment on this campaign.

$550 of $200k goal

Raised by 14 people in 21 months
Created July 25, 2015
Graziella Cohn  
$25
Graziella Cohn
6 months ago
$100
Anonymous
13 months ago
ZZ
$25
Zia and Zio
20 months ago

Love you forever!

RM
$50
Rodney Miller
20 months ago
HS
$50
Howard Sheward
20 months ago

I will her well in her fight against this terrible ailment. Prayers for her!

CM
$50
Cesar Marrero
20 months ago
$50
Anonymous
20 months ago
ZT
$50
Zia and Zio T
20 months ago

Adah, we love you to the moon and back!

DC
$25
Doreen Cohn
21 months ago

I hope they find a cure for this horrible disease.

KT
$25
Kelly Thurber
21 months ago
Be the first to leave a comment on this campaign.
or
Or, use your email…
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now

This campaign needs your support

Any amount helps!
Donate Now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.