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Have A Heart For Anary

$9,578 of $5,000 goal

Raised by 28 people in 14 months
Created June 24, 2018
Have A Heart For Anary
on behalf of Adriana Suazo
Anary Suazo was born with a heart disease on March 3, 2006.   Her first open heart surgery was at just 7 days old. The surgery took 8 hours.  At the same time a mickey button was placed in her stomach to help her eat.  Anary remained in the hospital until April 3, 2006.  Her first surgery was to place a t-shunt to improve the blood to flow to the right side of her heart because the right side did not develop normally.  Doctors gave Anary 9 months to live.  With no improvement and her health at risk, her second open heart surgery was done knowing it was a two step surgery.  The first step was a single ventricle fountain.  The second step, and her third open heart surgery, was done in May 2008 at just over 2 years old.  Her health was okay after that with special requirements such as making sure she ate correctly, high calorie diets, and isolating her from colds and other germs.  Her mickey button was taken out at 12 months of age because she was just such a great eater.  She still follows good eating habits eating only fruits, vegetables, and meats; no candy or sodas.  In March 2010, at the age of 4, Anary had an accident at school where she broke her left arm.  Due to her arm not being mobile she developed pleural effusion.  With medication and heart catheterizations she managed to keep that under control.  Now Anary is 12 years old.  She started feeling tired and sick about 2 months ago.  Not knowing why, she was taken to see her pediatrician on May 1, 2018 and all of her levels seemed to be okay.  A week later, on May 9, after vomiting all day and her energy levels being low, Anary ended up at her pediatrician's office again, but now her oxygen level was in the 70's.  Anary ended up in the emergency room for an echocardiogram because her doctors wanted to do more evaluations.  They decided to admit her into the Tulsa St. Francis Children's Hospital that same night.  Her family thought she was going to bounce back after that virus like she has always done, however, they were mistaken.  After several tests, her cardiology team decided that after 3 weeks of being at the St. Francis Children's Hospital in Tulsa it was time for Anary to meet the heart transplant team in St. Louis, Missouri.  On May 30, 2018 she was transported by air to the St. Louis Children's Hospital where Anary stayed for practically a month undergoing further tests and treatment.  Anary's doctor's believe Anary needs a heart transplant, however, Anary's anatomy is extremely unique meaning there is nobody else with her condition and only 30 cases similar to hers in the country.  The percentage of a heart transplant failing for Anary is about 15%-20%. With this being said Anary's parents discussed the possible outcomes with Anary and asked her what she wanted to do, after giving her all the options.  Anary's answer was, "I want to keep fighting and I don't want to go to heaven yet".   Anary has dreams she wants to reach, therefore, her parents decided to list her and give her a chance to fight and it will be one hell of a fight.   The doctors are giving Anary 4 to 6 months before she becomes very very ill and will have to be transported back to St. Louis to wait inpatient at the hospital for a heart donor, and then of course a very long stay in the hospital, thereafter, for the recovery after the surgery takes place.  Please help Anary and her family as they undergo this uphill battle towards a healthier, happier, and longer life for Anary.  We all want her to be able to see her dreams come true.  God bless to all!
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12/7/2018: Anary had an appt last Tuesday the 4th for a heart cath (here in STL)and other testing, well after the great team of doctors reviewed her case and her numbers it was decided to admit her in the hospital. It’s just not safe for her to be home and something to happen so far away from the hospital and it would be too late. This means that as of today Anary has become status 1A and makes her a priority in the heart transplant list. So STL we are calling you home for the next weeks possibly months (most likely). Anary is okay staying strong and super positive she has started paint therapy, physical therapy and will start a school schedule. Thank you so much for the support and prayers I can not say enough how loved we are, we have the best family and friends that slowly are becoming family.
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Update October 2, 2018: Anary and our family will be traveling to St. Louis tomorrow for check ups please keep us in your prayers. Anary is in good spirits it's us her parents that are worried and feeling a little nervous.
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Update Sept. 6, 2018: First of all i would like to thank everyone that has asked for Anary and her health it means a lot to me.
She is doing okay and continues to be stable as this journey is long and bumpy but her strong and positive attitude helps her so much. She decided to go back to school i must say that it self it's hard work for her but with the help of classmates and most of all teacher she has done great. Except this week because she missed due to immunizations affecting her more than normal but we will get back on track soon. Anary also decided to take on cheer so Go Comets!! I must say she does very good for her little tinny self. Anary has also decided to continue to grow as a tween and has her very own phone where she is very social with her friends except on days she's not feeling well. Anyways thank you for your continues prayers and your love for Anary!!
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Update July 4th, 2018: Anary is doing well as everyday is different for her at times she's very tired, sick and her energy is low. She requires a lot of time and attention, for the next couple of weeks I will not be in here. Thank you to each and everyone that has sent me messages and calls to know about Anary we are very thankful for you. I share this pictures with all of you because it says a lot about us right now, Anarys first selfies in months even when she was vomiting that morning she felt a little better and had a great smile. Alexy is my other half he is growing so much and i am not always there to see how much he is changing he needs me as much as Anary does and it hurts not to be with him too. A special person told me I can't let Anarys condition run my life and it's hard but i try daily. If you're a mother keep your kids close to you because life doesn't stop and your kids don't either if their healthy. Enjoy your summer and your love ones!!
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$9,578 of $5,000 goal

Raised by 28 people in 14 months
Created June 24, 2018
Have A Heart For Anary
on behalf of Adriana Suazo
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