Breath In Life & All The Beauty

$15,198 of $50,000 goal

Raised by 177 people in 67 months
Meet my beautiful son William at age 12 he was dancing at his brother's wedding with his mother. Never did we dream 4 years later he would be in a wheelchair. William is a gentle, kind, loving, humble spirited young man. Four years ago William was a typical 13 yr old boy running, jumping, playing basketball, not a care in the world. William started having leg pain and started walking a little funny and was becoming very uncoordinated. Doctors contributed it to William growing 6 inches that summer & getting use to those new longer arms and legs. Finally the day of basketball try outs came, William was pumped. Knowing he was the tallest kid in the school he knew he was probably a show in. That was a day as his mother I will never forget. On September of 2009 our lives were turned upside down. William called me just 30 minutes into try outs and said "Come get me, something's wrong with my legs." I got to the school and found a very disappointed young boy was sitting in front of the school. My heart sunk. William got in the car and said "My legs just locked up." I had no idea what was going on but I knew in my heart something was horribly wrong. William is the youngest of 4 children. I always said, "God knew my sanity was on the line when I had my 4th child therefore he gave me the sweetest child in the world." That my friends isn't even the half of it. Within 6 months William was wearing leg braces. Within a year his long term memory was gone. Within two years William couldn't walk or stand for any longer than 15 minutes. He was extremely weak. We had been told he had inflammation in the white matter in the brain, peripheral neuropathy and demylination of the cerebrum, cerebellum, & spinal cord as well as autonomic nervous system dysfunction. What does all this mean? Your brain is the command center for your body to do everything. Messages go from your brain through your nervous system to the different parts of your body, telling it what to do. Those messages are protected by myelin that is a coating throughout your body protecting your nervous system. William's myelin is deteariating which also causes atrophying of the muscles. What was happening to our child and what was this mysterious disease. Still no answers, we watched our son deteriate every day knowing we couldn't do anything. I'm his mom it's my job to make everything better, but I couldn't fix this one. William never once complained. He never wanted any special attention, and tried to hide it from his friends at school because he didn't want them to feel sorry for him. But over the years everyone began to ask "What's wrong with William?" William went into his high school senior year in a wheelchair. He can still walk short distances but it's hard. You see that smile in the photos .... It is always there. When ask how he is doing he always says "I'm Fine". William has been through countless MRI, Spinal Taps, Cutting edge of genetic testing, Countless stays in the hospital, skin biopsy, even a brain biopsy in January 2013. We have tried several treatments such as IVIG and steroid infusions but NOTHING has helped. He has had his vascular tissue of his brain scraped to check for vasculitus. This young man has been through so much and still is always happy. He has touched so many lives by exhibiting such enormous courage and will to continue life no matter the obstacles. He doesn't want pity, he doesn't want special treatment. He wants to live his life as normal as possible There isn't a day he doesn't thank me for everything I do and tells me he loves me. After 4 years under the care of some of the best doctors in the world at Children's National Hospital in D.C. we are being put on the undiagnosed diseases list at NIH. This past week we were told we needed to do William's medical directive and power of attorney. No parent should ever have to do this with their child. Williams's disease is affecting his organs now and as his mother I want to make sure William breaths in life and experience all the beauty in this life before he is unable to. Williams wish is that I take 2 months off work and we rent an RV and start in Virginia were we live and travel down south then across the United States and up the west coast and into Canada and back down. Some of the highlights on his list include enjoying a helicopter ride down into the Grand Canyon, seeing Niagara Falls, Yosemite National Park, having dinner at The Needle in Seattle, Washington just to name a few. Without your help I will not be able to fulfill my son's wishes. There have been so many people saying "What can I do to help?" This is it guys. I want to share this with my son, and just tour the U.S. and LIVE for 2 months. Anyone that knows William and I know it isn't easy for either of us to accept help. However, it's time to put pride to the side and talk from the heart. Thank you in advance for your love and support.


+ Read More
June 4th 2014 - William Mason Sanders graduated from Sherando High School . Three long years of SO many obstacles have been overcome. William has been faced with so much . William spends most of his time in the wheel chair now. He is still able to drive for short periods of time which gives him some freedom. The faculty, Staff, Parents & Students have been so supportive through it all. Countless fundraisers, Countless helping hands, countless Smiles, countless gestures of Kindness. Thank you to ALL!
William Mason Sanders Graduated ....
+ Read More
June 4th 2014 - William Mason Sanders graduated from Sherando High School . Three long years of SO many obstacles have been overcome. William has been faced with so much . William spends most of his time in the wheel chair now. He is still able to drive for short periods of time which gives him some freedom. The faculty, Staff, Parents & Students have been so supportive through it all. Countless fundraisers, Countless helping hands, countless Smiles, countless gestures of Kindness. Thank you to ALL!
William Mason Sanders Graduated ....
+ Read More
I want to thank everyone again. William and I just enjoyed one of our first trips on his bucket list. Although we can't do a two month journey across country do to William getting too tired. Altering our plans we were able to go to Costa Rica. What a beautiful country. William sat in the hot springs of the volcanic water for 4 days. A rash has had for several years from medication is much much better.nature is a magical thing.I would watch William and he glowed almost Angelic. watching him smile and laugh and talking in Spanish to people trying to learn the language brought tears to my eyes of joy. We met so many wonderful couples, now friends. you have given us a gift of a lifetime. A gift of time, precious precious time.a gift to William of seeing the world and all its beauty. A gift to his mother of watching the julie on his face. See the pictures and no from the bottom of my heart I thank you.
Costa Rica our 1st trip
+ Read More
I AM AMAZED BY EVERYONES LOVE & SUPPORT. THANK YOU.
To everyone who has stood by us
+ Read More
Read a Previous Update
Mary Sanders
67 months ago

see my page and share

+ Read More

$15,198 of $50,000 goal

Raised by 177 people in 67 months
Created October 17, 2013
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
DB
$20
Darian Banks
59 months ago

I saw this young man walking down the steps to the field on his graduation day. I wondered why I had never seen him before, since I just graduated in 2013. My best friend said "I think that's the boy I read a story about." We quickly looked it up and foudn the NV Daily story and my heart broke and smiled at the same time. I cheered loudler for William than any of the graduates that I actually knew. God does not give us anything that he didn't make us strong enough to handle. With the same token, I believe that there is a reason my eyes drew to William before he even reached the bottom of the steps and I learned of his story. I hope y'all reach your goal and then some. Your family is my prayers.

$25
Anonymous
60 months ago
DF
$100
Debra Fine
62 months ago

We learned your story through Karen and Dick Thomas and are glad to supply support in this small way.

DT
$500
Dick and Karen Thomas
62 months ago

After meeting Mary Ann and William, we were inspired by their joy and vigor in the face of adversity. William's warmth and zest are unique and very special. He's a remarkable young man.

$75
Anonymous
63 months ago
$5
Anonymous
63 months ago
JW
$200
Jim & Diana Walch
63 months ago

We will keep Will and family and all of the doctors searching for answers in our prayers. Stay strong and plan an awesome adventure for Will.

$50
Anonymous
63 months ago
Mary Sanders
67 months ago

see my page and share

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.