Help for the Willard Family

$22,812 of $40,000 goal

Raised by 290 people in 67 months

I set up this account to help ease some of our financial burdens that come with dealing with multiple  family members with chronic illnesses.  

 My husband  was the sole bread winner of our family but was diagnosed with an inoperable brain tumor in 2010 and since then he has lost his job and is now totally disabled due to his daily seizures , the brain tumor,  and the effects they along with all the medication he has to take  have on his body. He has already been through several rounds ofchemotherapy but sadly there is currently no cure.

  My oldest daughter has a rare genetic disorder requires several specialist to follow her care.  This has caused the loss of her right eye, facial and bone deformity, and took parts of her left arm bones. She had endured dozens of surgeries in her young life. 

 She has a very long and difficult  road ahead of her.

   My family has had its share of  burdens and any help will be appreciated.  

 Thank you,

 Jennifer

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Its been a while since I posted an update. A few weeks ago, Roy had a seizure that required me to call an ambulance. His doctors ran some test, and everything is stable so they are baffled as to why his seizures have intensified.

They are just guessing at this point. It is frustrating not getting anywhere, never any answers or solutions.

Breanna may require another surgery. She had another post-op visit yesterday and it was brought up. They have scheduled another consult in a few weeks to meet with her other surgeons and we will talk about their opinions on the matter.

Since her very bad allergic reaction, she has been taking off the trial medication and there had been no further discussions on what the next steps may be.

Pray... pray for a cure for all of my family... They are each battling something.
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With chronic illnesses, you have good days and you have bad days. You just pray that the good outweighs the bad. The last few days have been up and down like a rollercoaster. Roy has been having more seizures and it is taking him longer to recover from each one. His team of doctors are aware and are just baffled. They have ordered an MRI to check on things. I just hope and pray that nothing has changed with his tumor. I hate this. Its like we are stuck on this side of the mountain, its one step forward and two steps back. His tumor will always be there, he will always have epilepsy because right now there is no cure. Every three months we do the same routine, MRI, a neurologist and neuro-oncologist visit. We pray that everything remains stable. We are on this never-ending merry-go-round.
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A few weeks ago Breanna started a new medication. The doctors had hoped this new drug would stop and possibly shrink her plexiform neurofibroma. We talked to several of her doctors and they were all encouraged by the results it has shown in previous NF patients with plexiforms as extensive as hers. We talked to Breanna and went over the side effects with her and she agreed to give it a try. The first week went great, she experienced no side effects, but by the middle of the second week she had a horrible reaction. It was so bad, the doctor had her stop it immediately. It has been a week since they had her stop it and she is just now starting to recover. Her doctor said it will probably take another week or two before things start to return to normal.

Apparently it is rare to experience the severity of side effects Breanna did. At this point I am not sure what the next steps will be, but taking her off was the best course of action right now.

Roy still continues to be plagued with seizures, the quantity is less than before his surgery, but the intensity is worse. His nuerolgist is changing some medication around to see if that makes any difference.

Cheyenne is doing great. She finished physical therapy and is completely recovered from whatever ailment that she had a few months ago.

As always, we are most grateful for you prayers and donations.
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Its been a busy few weeks. We have been back and forth to doctor appointments for much of the family.

Let's start with Cheyenne first. By the grace of God, she is walking again. She still needs physical therapy a few times a week, but she is walking!! The doctors have not been able to figure out the mystery of why she stopped in the first place.

Breanna had surgery with her oculoplastic surgeon two weeks ago to finish what he was not able to accomplish with her surgery in February. She is healing wonderfully. She is still swollen some but soft tissue, especially hers, heals slowly.

Unfortunately, he thinks that she may need to be refitted for another artificial eye. These are very detailed oriented and only a few individuals are able to do it. I think in the state of North Carolina there are maybe four. They take a custom mold of your eye socket and form it to fit. Everything is done by hand from the mold to painting. They match your iris, pupil, even blood vessels. They have to make it look as real and close to the other as possible. Of course, the price reflects this.

Her surgeon wants to see her back in September for another check-up and then will probably want her to see the ocularist then.

We also received a call from her neurologist, who wanted us to come in and meet with a neuro-oncologist. They are starting a new NF clinic for patients with plexiform neurofibromas as extensive as hers. It is a medication that has shown promise in stopping these horrible disfiguring tumors from growing.

The medication has its share of side effects, which they will be monitoring her very closely. They will want to see her every six to eight weeks.

Please pray for minimum side effects.

Roy saw his neuro-oncologist a few weeks ago. His MRI was stable. He is still having side effects from the surgery and his oncologist is concerned. His vision has not improved. Next week he is having some test done to determine his new baseline following his surgery.

OT/PT have been ordered for his vision and left side weakness.

He returns in October for another MRI and to see his oncologist.

Pray for our family... please.

We are thankful for all the prayers and donations. Every bit helps us.
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Read a Previous Update
Cindy Hale
10 months ago

Jennifer, My heart breaks for you and your family. I often wonder why things are the way they are but then i remember that God is God and though we don't understand many times, He does. The Bible says, " come to me all who are weary and burdened'...i am praying specifically for you to feel comforted at this very moment if only for a second, to a safe refuge of our Most High.

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Liza McConnell Coutu
27 months ago

Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?

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Felicia Bridges
51 months ago

Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.

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Kirsten Darby
51 months ago

We are praying for you and your family!

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$22,812 of $40,000 goal

Raised by 290 people in 67 months
Created March 13, 2013
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Cindy Hale
10 months ago

Jennifer, My heart breaks for you and your family. I often wonder why things are the way they are but then i remember that God is God and though we don't understand many times, He does. The Bible says, " come to me all who are weary and burdened'...i am praying specifically for you to feel comforted at this very moment if only for a second, to a safe refuge of our Most High.

+ Read More
Liza McConnell Coutu
27 months ago

Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?

+ Read More
Felicia Bridges
51 months ago

Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.

+ Read More
Kirsten Darby
51 months ago

We are praying for you and your family!

+ Read More
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