I set up this account to help with some of the financial burden associated with my husband's brain tumor and my daughters medical disorder. Any help would be appreciated. Below is a brief summary of our story.
Our oldest daughter was born with a genetic disorder, Neurofibromatosis. From this disorder she has a plexiform neurofibroma tumor that had grown invasively throughout the right side of her face. This has caused deformity to her face and the loss of her right eye. This disorder has also caused bone problems with her left arm. Between both of these issues she has had dozens of painful surgeries. Her left arm is significantly shorter than her right and she limited use of her hand and wrist. She has been through so much and has many more chanllenges ahead of her.
Unfortunately, our story of challenges and difficulty doesn't end there. In 2010, out of the blue, my husband suffered a grand mal seizure. The next day he underwent emergency brain surgery. The doctors found a very large tumor; because of its location, the surgeons were only able to remove enough for a biopsy.
His tumor is known as oligodendroglioma grade 2. He has done many cycles of chemotherapy- 18 months, 6 months, and 12 months. He has daily seizures that no amount of medicine can control.
We have a blur of emotions associated with many trials and overwhelming burdens for the future. As a family, we have been through so much. It seems as if never-ending challenges have come our way. We pass through one trial; another more serious one presents itself, and testing comes once again.
My husband was the breadwinner of our family, but last year he was let go from his job of fourteeen years. As you can imagine with his being out of work, the financial strain has only added to our already heavy emotional burden.
**** I do update often on my carepages website http://www.carepages.com/carepages/WillardFamily