Help for the Willard Family
I set up this account to help ease some of our financial burdens that come with dealing with multiple family members that have chronic illnesses.
My husband was the sole bread winner of our family but was diagnosed with an inoperable brain tumor in 2010 and since then he has lost his job and is now totally disabled due to his daily seizures , the brain tumor, and the effects they along with all the medication he has to take have on his body. He has already been through three years of chemotherapy. They cycle him on/off to give his body rest. As of right now, there is no cure, just hopes of keeping the tumor stable for as long as possible.
My oldest daughter has a rare genetic disorder requires several specialist to follow her care. This has caused the loss of her right eye, facial and bone deformity, and took parts of her left arm bones. She had endured dozens of surgeries in her young life.
As we speak highly specialized doctors are discussing several surgeries for my daughter,one as early as this summer. They will require several days in the hospital. She has a very long and difficult road ahead of her.
My family has had its share of burdens and any help will be appreciated.
**** I do update often on my carepages website http://www.carepages.com/carepages/WillardFamily *
Today both girls saw the doctor/surgeon whose speciality is pediatric orthopedics and spine.
He is referring Cheyenne to yet another specialist. This one dealing with the hip. It seems as though something is going on with her ball and socket joint. Cheyenne has been having some pain and kinda drops her hip.
Breanna has a spine mri ordered to check for anything that might be pinching a spinal nerve. He said if that comes back clear then he wants to start PT. She leans to one side, at first they thought scoliosis, but was able to rule that out.
Just more on our plate. Breanna's surgery is coming up in less than two weeks... Please keep her in your prayers.
Surgery scheduled for me on July 5th at UNC to remove the small mass from the back of my head, one on my shoulder, and another on my right side above my hip. They are small neurofibromas. Kinda like Breanna's, but of course mine is not as intensive as hers.
Cheyenne has ultrasound scheduled next Thursday. They found a small mass above one of her ovaries that they want to watch.
Then the following week both girls meet with duke orthro, Cheyenne has small fibroma in her femur they want to keep eye on. Breanna has slight hip displacement and turns her feet in more and more when she walks.
August 1st Breanna's big surgery
Today we saw Roy's nuerolgist to get his VNS turned on. They are starting it out low and every tens days we go to see the doctor for them to up the voltage until they can get it at the level they need.
They gave him an emergency magnet to either stop it if need be or give him an emergency shock depending on how he holds the magnet. Right now he gets a slight voltage shock every 5 minutes for 30 seconds.
So much going on.. Prayers please.
The incision will mostly be along her hairline, but she will have one under her eye, and a small one across her face from corner of eye to hairline.
This will be a very long complex surgery. Please say a prayer for my Breanna.
The surgery is scheduled for the first of August.
We were also told that Breanna will need a new artificial eye after surgery. That cost is around $2,000. That is just another cost added on to our many.
We have so much going on as a family. We are drowning. It is hard trying to keep just the doctors straight between Roy and Breanna.
Some things have came up with Cheyenne that we are monitoring
Anything and everything helps. Gas cards, food cards, grocery... anything.
We go back to the doctors office in about two weeks to have them turn on the vns. I pray that this works. He has so many seizures a day, he deserves some relief.
This week we also meet with Breanna's surgeons to discuss and finalize everything . How can you prepare your child for such a massive surgery.
Sunday is Father's Day and our 17th wedding anniversary. Breanna will also be turning 16 soon, June 28th.
Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?
Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.
We are praying for you and your family!