Help for the Willard Family

$15,463 of $25k goal

Raised by 243 people in 43 months
Jennifer Willard  CLAYTON, NC

I set up this account to help ease some of our financial burdens that come with dealing with multiple  family members that have chronic illnesses. 

 My husband  was the sole bread winner of our family but was diagnosed with an inoperable brain tumor in 2010 and since then he has lost his job and is now totally disabled due to his daily seizures , the brain tumor,  and the effects they along with all the medication he has to take  have on his body. He has already been through three years of chemotherapy. They cycle him on/off to give his body rest.  As of right now, there is no cure, just hopes of keeping the tumor stable for as long as possible. 

  My oldest daughter has a rare genetic disorder requires several specialist to follow her care.  This has caused the loss of her right eye, facial and bone deformity, and took parts of her left arm bones. She had endured dozens of surgeries in her young life. 

 As we speak highly specialized doctors are discussing several surgeries for my daughter,one as early as this summer. They will require several days in the hospital.  She has a very long and difficult  road ahead of her.

   My family has had its share of  burdens and any help will be appreciated.  

 Thank you,

 Jennifer

 

**** I do update often on my carepages website http://www.carepages.com/carepages/WillardFamily *

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Update 119
2 days ago

One thing I can not stand is a pompous overzealous physician to talk down to me. I have been calling all week to get answers and I was given the run around. It took my daughters pediatrician to call to finally get somewhere. Then a PA calls back and out right lies to me. He acted like I was stupid and did not understand the process of MRI's and reading those.

I of course was not going to let someone speak to me that way, so he pushed enough of my buttons until I finally let him have it. Within the next hour the actually surgeon called and apologized. He said Cheyenne will have to have another MRI because the first one was not done properly. Apparently they did not get the correct imaging and bone measurements of her femur. So another one has been ordered, we are now just waiting for radiology to call and schedule that appointment.

She will have to have surgery, its just who would be the best qualified to do the surgery. They should know after this MRI that we are waiting to be scheduled. He mentioned an open fracture derotational femoral osteotomy

Because of her pain level he is placing her on stronger pain meds until we can figure out how to proceed. All in all, I am not a happy camper!!
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Update 118
26 days ago

Today Cheyenne had her appointment with the hip specialist. It is not that easy to explain, but more than likely it looks like surgery. Her hip does not fit into the socket correctly. Basically it is pushed back and up into the pelvis so the more she moves around using it, the more inflammation it causing, which puts her in a lot of pain. She is going to start PT tomorrow. He is recommending 1 to 3x a week. He is hoping that may give her some temporary relief. On September 19th she has another MRI and the next day we get the results and his final recommendation. He is not a pediatric ortho doctor, so he wants to talk with them before any surgery is scheduled, especially since she has NF and Breanna has the psuedoarthosis of her arm. He is willing to try the PT for a few weeks, have the MRI and see if it has made any difference, but he stressed that she is probably looking at surgery. He just needs to get some input from the other doctors first.

So much going on.. so much to carry on our shoulders.

We still have a long road ahead of us with Breanna's stuff, Roy is looking at the possibility of chemotherapy again, and now Cheyenne.

I hate seeing her in pain. Some days are harder than others for her.

It is getting harder and harder to understand what God's plan is.
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Update 117
1 month ago

A very long tiring day at Duke today. We just walked in the door and are exhausted. The day started off with a 10:00 appointment and ended with us leaving his last appointment after 4:00.

First we saw his nuerolgist and he adjusted his VNS.. We will see him again in about three weeks to get another adjustment and see how his seizures are. We haven't notice any changes and in fact he is having more of the larger ones.

His oncologist was not overly concerned about his MRI but did notice some changes that she brought to our attention. The tumor itself is the same, but the tissue around it is "different" than previous scans. It looks more swollen. The swelling could be from the increase in seizures she just wants to keep and eye on it. He will have another scan in a few months and go from there. His tumor is a very large and deep wedge shape (kinda like a slice of pizza). It starts very wide near the top, invading two lobes on the right side of his brain and goes very deep. The deeper it goes the smaller it gets.

She mentioned the possibility of having to go back on chemo if his seizure activity hasn't changed but I don't know if that is something Roy wants to do. We will just have to wait and see over these next few months how things go and ask God for guidance.

Please continue to keep us in your prayers.
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Update 116
1 month ago

Long day.. First we came to UNC Children's to see Dr.W for post-op and stitches removal. She was very happy with the way things are healing. Her incision is very clean and shows no signs of infection.
Breanna is still quite puffy and starting to bruise, but she looks really good. She still tires very easily, the doctor said the type of surgery she had and the amount of fibroma they took out it will take awhile to get back to her normal self.

Dr.Z appointment went well too. He said that it's still to swollen to decide if she will need a new prosthetic eye or not.

We see them both again in about six weeks to check on things and talk about the next steps.

We are so thankful and blessed everything went well with her surgery and recovery.

Next week we see Roys round of doctors and he has his MRI. Praying that everything goes well and his tumor is still stable. His seizures have not gotten any better since his VNS surgery, but it's still early and we hoping and praying that it changes.

The end of the month we see the hip doctor about Cheyenne's hip.. please say a prayer for her that everything is alright.
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 677 total shares
Liza McConnell Coutu
2 months ago

Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?

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Felicia Bridges
27 months ago

Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.

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Kirsten Darby
27 months ago

We are praying for you and your family!

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$15,463 of $25k goal

Raised by 243 people in 43 months
Created March 13, 2013
Jennifer Willard  
SC
$250
Sophie Carmichael
9 days ago
SD
$100
Scott Davenport
9 days ago
KS
$100
Katie Sanders
9 days ago
$100
Anonymous
9 days ago
$50
Elizabeth Beatty
29 days ago
SM
$100
Susan Martois
1 month ago

Keeping you and your family in my prayers.

$50
Anonymous
1 month ago
$30
Anonymous
1 month ago
DB
$5
Donna Brumback
2 months ago (Monthly Donation)
SL
$50
Sandi Long
2 months ago

Love y'all!!!

Liza McConnell Coutu
2 months ago

Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?

+ Read More
Felicia Bridges
27 months ago

Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.

+ Read More
Kirsten Darby
27 months ago

We are praying for you and your family!

+ Read More
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