Help for the Willard Family

$16,932 of $35k goal

Raised by 252 people in 48 months
Jennifer Willard  CLAYTON, NC

I set up this account to help ease some of our financial burdens that come with dealing with multiple  family members that have chronic illnesses. 

 My husband  was the sole bread winner of our family but was diagnosed with an inoperable brain tumor in 2010 and since then he has lost his job and is now totally disabled due to his daily seizures , the brain tumor,  and the effects they along with all the medication he has to take  have on his body. He has already been through three years of chemotherapy. They cycle him on/off to give his body rest.  As of right now, there is no cure, just hopes of keeping the tumor stable for as long as possible. 

  My oldest daughter has a rare genetic disorder requires several specialist to follow her care.  This has caused the loss of her right eye, facial and bone deformity, and took parts of her left arm bones. She had endured dozens of surgeries in her young life. 

 As we speak highly specialized doctors are discussing several surgeries for my daughter,one as early as this summer. They will require several days in the hospital.  She has a very long and difficult  road ahead of her.

   My family has had its share of  burdens and any help will be appreciated.  

 Thank you,

 Jennifer

 

**** I do update often on my carepages website http://www.carepages.com/carepages/WillardFamily *

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Update 132
Posted by Jennifer Willard
2 days ago
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Its been a few days since Breanna's surgery. She spends most days sleeping on/off, she needs the rest. Her swelling has went down quite a bit. She was what is best describe as a rhino horn. It is all on the right side, mostly around the eye, nose, and center of her forehead. It will take several weeks for it to completely go down. Next week we go to see both surgeons for post-op visits, and she has the stitches removed. I am amazed at how well she is doing. She is one strong young lady. Please continue to keep her in your prayers.

Roy has been doing better this week with the nausea, but I'm sad to say his seizures have gotten worse. In a few weeks, his has his bi-monthly MRI, sees his oncologist, labs, and chemo appointments. If you could, please say a prayer for him too.
Resting with Angel keeping her company
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Update 131
Posted by Jennifer Willard
6 days ago
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After a long exhausting day, we are finally home. Surgery went well, the doctors were able to accomplish what they needed too.

Breanna is resting now, pain meds on board. She looks good but DR.E said she will probably be more swollen and bruised tomorrow.

They were able to place the tube and get her a working drain now. They also debulked what they could of the neurofibroma around her inner corner of her eye and nose. The bottom lid was lifted and tightened and her inner right corner was raised and brought closer to her nose to be level with the left. Her eye is sutured shut with the prosthesis in. This was done to help shape her eye socket and with healing. They followed some of her previous incisions but also had to cut new ones.

Very glad this surgery is out of the way. The next eight weeks she can focus on healing and recuperating.

Then in April we will get ready for the next one.

Thank-you for the continued thoughts , prayers, and support.

Every donation helps and we are very grateful.
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Update 130
Posted by Jennifer Willard
8 days ago
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Roy had his monthly visit with his oncologist this past week. Labs look well enough to get next months chemo. This will be cycle 4 of 12. I know he is getting tired of this. I hate it for him. The chemo will never shrink the tumor, it only puts it to "sleep" for awhile. Its frustrating that the amount of anti-seizure medications he take along with the chemotherapy and the VNS he had implanted only limit his seizures to around a dozen a day. It sucks not knowing from day to day what is next. I know we must look to God and rely on him, but it is hard, and if I here we are never promised tomorrow one more time I will SCREAM!!! Don't you think that thought crosses my mind daily. That every morning I wake up and every night as I lie down to sleep that is all I think of. That I pray for God to allow Roy to grow old with me, that I pray for the seizures to stop. For his tumor to go away, just disappear. I pray for a "normal" life.

Breanna will have her first of three possible surgeries Monday. Its seems that this his her "normal". I honestly don't think she has went a whole year without some surgical need.This surgery is relativity small compared to what she has faced in the past, but it is still surgery and contains risks. It is scheduled as an outpatient, thank goodness. Please pray that it is successful and for no post-op infections. It will probably be a few hours and it will include ENT and Occular and Plastic reconstructive surgeons.

Please continue to pray for our family .
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Update 129
Posted by Jennifer Willard
1 month ago
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Roy is been having a harder time this go around with chemo. He has some days where he feels great and then other days where he can't even get out of bed because of the nausea. He is only in cycle 3 of 12. I am not sure how he is going to handle nine more months of this. I hate that he has to go through this.

Breanna has her first two surgeries scheduled. One is next month and the other April. The one coming up in a few weeks willbe outpatient and focus on her tear duct and inner corner of her right eye. They will place a Jones tube, debulk the tumor if needed, and try and fix the lacrimal caruncle. This should help with her tearing issues and help with the proper fitting of glasses. She will be quite bruised for a while.

The surgery in April is going to be more complex . They have sent off her CT scans and have had conference calls with the company that makes the implants, these are made exclusively for Breanna. They want to make sure she is completely healed and free of any infection before they proceed with surgery. These implants will help with the structure of her face and disguise some of the damage the tumor has done.

Cheyenne is doing well, so well in fact her therapist said she may get to go down to once a week for physical therapy. She is now walking unassisted. Her bones are healed and she is pain free. The hip is still weak, but this is a huge step.

We are so thankful for every single donation, they help in so many ways.

Much of our time is spent going to and from doctor appointments, having MRI's, CT scans, lab work, talking to surgeons and hospital stays... But through it all my children have never lost faith. They still say their prayers and have God close to their hearts. I pray that God watches over them.


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Liza McConnell Coutu
8 months ago

Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?

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Felicia Bridges
32 months ago

Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.

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Kirsten Darby
32 months ago

We are praying for you and your family!

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$16,932 of $35k goal

Raised by 252 people in 48 months
Created March 13, 2013
Jennifer Willard  
DW
$50
Darcee Williamson
2 days ago
$50
Anonymous
3 days ago
1
1
$500
Anonymous
2 months ago
MS
$100
Michelle Scruggs
2 months ago

Marcus and I hope y'all have a good Christmas with many blessings!! We love ya!

$500
Anonymous
2 months ago
$50
Anonymous
2 months ago
$100
Anonymous
4 months ago
SL
$50
sandi long
4 months ago

Much love and admiration!!

$69
Anonymous
4 months ago
SC
$250
Sophie Carmichael
5 months ago
Liza McConnell Coutu
8 months ago

Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?

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Felicia Bridges
32 months ago

Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.

+ Read More
Kirsten Darby
32 months ago

We are praying for you and your family!

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