Help for the Willard Family
I set up this account to help ease some of our financial burdens that come with dealing with multiple family members that have chronic illnesses.
My husband was the sole bread winner of our family but was diagnosed with an inoperable brain tumor in 2010 and since then he has lost his job and is now totally disabled due to his daily seizures , the brain tumor, and the effects they along with all the medication he has to take have on his body. He has already been through three years of chemotherapy. They cycle him on/off to give his body rest. As of right now, there is no cure, just hopes of keeping the tumor stable for as long as possible.
My oldest daughter has a rare genetic disorder requires several specialist to follow her care. This has caused the loss of her right eye, facial and bone deformity, and took parts of her left arm bones. She had endured dozens of surgeries in her young life.
As we speak highly specialized doctors are discussing several surgeries for my daughter,one as early as this summer. They will require several days in the hospital. She has a very long and difficult road ahead of her.
My family has had its share of burdens and any help will be appreciated.
**** I do update often on my carepages website http://www.carepages.com/carepages/WillardFamily *
First we saw his nuerolgist and he adjusted his VNS.. We will see him again in about three weeks to get another adjustment and see how his seizures are. We haven't notice any changes and in fact he is having more of the larger ones.
His oncologist was not overly concerned about his MRI but did notice some changes that she brought to our attention. The tumor itself is the same, but the tissue around it is "different" than previous scans. It looks more swollen. The swelling could be from the increase in seizures she just wants to keep and eye on it. He will have another scan in a few months and go from there. His tumor is a very large and deep wedge shape (kinda like a slice of pizza). It starts very wide near the top, invading two lobes on the right side of his brain and goes very deep. The deeper it goes the smaller it gets.
She mentioned the possibility of having to go back on chemo if his seizure activity hasn't changed but I don't know if that is something Roy wants to do. We will just have to wait and see over these next few months how things go and ask God for guidance.
Please continue to keep us in your prayers.
Breanna is still quite puffy and starting to bruise, but she looks really good. She still tires very easily, the doctor said the type of surgery she had and the amount of fibroma they took out it will take awhile to get back to her normal self.
Dr.Z appointment went well too. He said that it's still to swollen to decide if she will need a new prosthetic eye or not.
We see them both again in about six weeks to check on things and talk about the next steps.
We are so thankful and blessed everything went well with her surgery and recovery.
Next week we see Roys round of doctors and he has his MRI. Praying that everything goes well and his tumor is still stable. His seizures have not gotten any better since his VNS surgery, but it's still early and we hoping and praying that it changes.
The end of the month we see the hip doctor about Cheyenne's hip.. please say a prayer for her that everything is alright.
Breanna is happy to be home and sleep in her own bed. She still tires easily, been sleeping on/off since we got home. Her appetite is slowly coming back, it's hard for her to chew with the swelling and numbing on the right side. The doctor said it will get worse before it gets better and the bruising will start soon. She just needs to keep her head elevated and make sure she gets plenty of rest. All in all she is doing surprisingly well.
While in the hospital the Pediatric team followed her closely along with her surgeons and they got a kick out of her foot wear. Ever since the girls were little I would buy them cute knee socks to wear and they continued that even when they got older. So every day she had on a different pair of socks and the residents and interns made a game out of it took guesses as what she would wear. She had popcorn, pizza, bacon, yes all food. What can I say.. she's her father's daughter.
Dr. Z did his part. The implant and sphere are in. Her right eye is now symmetrically with the left. He decided not to do the eyebrow lift and tumor debulking of the forehead at this time, instead opting to wait and do another surgery. That would possibly be beginning of next year. That surgery would include the sinus cavity, tumor debulking of forehead, and eyebrow lift.
Dr. W said everything went well with her part. She had a lot of bleeding, but was able to accomplish a great deal. She debulked what they could, but due to the bleeding and location they had to be cautious. They were not able to lift her nose like they wanted due to the massive fibromas. That will have to be addressed in a later surgery. All in all they are happy with the results. Her implant fit just right. She will still need more surgeries, but this is a giant leap foward.
Roy and I can finally take a deep breath, today was a long stressful day. Thank you for all the prayers and well wishes.
Jennifer, I have not met you in real life, but I've been following your gofundme for quite a while and pray for you and your family. I wondered if you have heard of or seen The Truth About Cancer video series. It has so much good information, not just about cancer treatment and prevention, but how to make good choices about what you eat and are exposed to that will help your immune system fight off the many things you have described here. I will continue to pray that you get the information you need the wisdom to process that information the way God wants you to, and the strength to obey God in however he is leading you. Even though I don't know you, my heart goes out to you as you go through all of these trials. Feel free to contact me if you do not know how to find the video series. I think I first found you through Spice-line?
Breanna is such a delight - I have enjoyed getting to know her in small group on Sunday mornings and our family is praying for her and for your whole family. Praying for healing, provision, peace and faith - praying, too, that God will bring encouragement in these very difficult days.
We are praying for you and your family!