Whooshers.com Pulsatile Tinnitus Funds
Whooshers.com provides information and support for pulsatile tinnitus patients and the medical professionals who treat them, as well as for family and friends of those impacted by this rare symptom.
Our community petitioned SUCCESSFULLY for new diagnosis codes, effective Oct 1, 2016. For more info, see http://whooshers.com/whoosherspetitiondiagnosiscode.html
All funds go towards the expenses associated with efforts like the one to circulate the petition. Currently we're in the process of revamping the website, organizing database projects and other meaningful efforts to help our community. 100% of funds go towards maintenance of Whooshers.com, organizing more Whooshers Unite! events, and other support activities for our community.
Thanks for your support!
Yours in the Whoosh,
*Whooshers.com is not yet a registered 501(c)(3) (we need funds to get that done, too) but we're working on that! For questions about taxes, please consult a tax professional.
Hi, I dropped off the facebook page a few months back, will ask to rejoin if all works out well. I had my consultation with UCSF, and they are pretty sure they have a cause of my PT: a dAVF to the marginal sinus, at the base of my skull. The final activation that caused PT was likely my traumatic whiplash injury Feb 4, 2018, while climbing. Dr. Amans thinks the basic arterial tangle had been developing at least 5 years; I speculate that it is due to a traumatic neck injury over 16 years ago, which resulted in a vertebral dissection and stroke in the cerebellum and brainstem. I'm scheduled for a very thorough angiogram Aug 21, 2018, to be followed immediately by a platinum coil embolization "if all goes well." I wanted to spread this info, because there was another fellow on the site (from UK) who had the same odd symptoms as I did; namely, if one presses over the Occipital vein/artery at the back base of the head, near the top of the trap and scm muscles, the pulsing gets louder.