Whooshers.com Pulsatile Tinnitus Funds

$2,335 of $5,000 goal

Raised by 34 people in 72 months
My name is Emma Greenwood, and I am the founder of Whooshers.com, a web site devoted to pulsatile tinnitus.  Pulsatile tinnitus is a symptom often described as a whooshing, pulsing sound that is in sync with the patient's heartbeat.  Pulsatile tinnitus is a different symptom from the regular, more common form of tinnitus, for which there is no cure.


Whooshers.com
provides information and support for pulsatile tinnitus patients and the medical professionals who treat them, as well as for family and friends of those impacted by this rare symptom. 

Our community petitioned SUCCESSFULLY for new diagnosis codes, effective Oct 1, 2016. For more info, see  http://whooshers.com/whoosherspetitiondiagnosiscode.html

All funds go towards the expenses associated with efforts like the one to circulate the petition.  Currently we're in the process of revamping the website, organizing database projects and other meaningful efforts to help our community. 100% of funds go towards maintenance of Whooshers.com, organizing more Whooshers Unite! events, and other support activities for our community.

Thanks for your support!

Yours in the Whoosh,

Emma Greenwood
Founder

Whooshers.com

*Whooshers.com is not yet a registered 501(c)(3) (we need funds to get that done, too) but we're working on that!  For questions about taxes, please consult a tax professional.  

 

+ Read More
Harlan Stockman
4 months ago

Hi, I dropped off the facebook page a few months back, will ask to rejoin if all works out well. I had my consultation with UCSF, and they are pretty sure they have a cause of my PT: a dAVF to the marginal sinus, at the base of my skull. The final activation that caused PT was likely my traumatic whiplash injury Feb 4, 2018, while climbing. Dr. Amans thinks the basic arterial tangle had been developing at least 5 years; I speculate that it is due to a traumatic neck injury over 16 years ago, which resulted in a vertebral dissection and stroke in the cerebellum and brainstem. I'm scheduled for a very thorough angiogram Aug 21, 2018, to be followed immediately by a platinum coil embolization "if all goes well." I wanted to spread this info, because there was another fellow on the site (from UK) who had the same odd symptoms as I did; namely, if one presses over the Occipital vein/artery at the back base of the head, near the top of the trap and scm muscles, the pulsing gets louder.

+ Read More

$2,335 of $5,000 goal

Raised by 34 people in 72 months
Created December 29, 2012
Your share could be bringing in donations. Sign in to track your impact.
   Connect
We will never post without your permission.
In the future, we'll let you know if your sharing brings in any donations.
We weren't able to connect your Facebook account. Please try again later.
$25
Anonymous
14 days ago
JS
$25
Judy Sullivan
14 days ago

This site has been the only real source of information for all of us who suffer from pulsatile tinnitus. Many thanks for the effort it takes to maintain the site!

$50
Anonymous
4 months ago
$150
Alejandro Hernández
7 months ago

Your invaluable info helped my wife get diagnosed with IIH after many clueless doctors. Thank you!

Harlan Stockman
4 months ago

Hi, I dropped off the facebook page a few months back, will ask to rejoin if all works out well. I had my consultation with UCSF, and they are pretty sure they have a cause of my PT: a dAVF to the marginal sinus, at the base of my skull. The final activation that caused PT was likely my traumatic whiplash injury Feb 4, 2018, while climbing. Dr. Amans thinks the basic arterial tangle had been developing at least 5 years; I speculate that it is due to a traumatic neck injury over 16 years ago, which resulted in a vertebral dissection and stroke in the cerebellum and brainstem. I'm scheduled for a very thorough angiogram Aug 21, 2018, to be followed immediately by a platinum coil embolization "if all goes well." I wanted to spread this info, because there was another fellow on the site (from UK) who had the same odd symptoms as I did; namely, if one presses over the Occipital vein/artery at the back base of the head, near the top of the trap and scm muscles, the pulsing gets louder.

+ Read More
or
Use My Email Address
By continuing, you agree with the GoFundMe
terms and privacy policy
There's an issue with this Campaign Organizer's account. Our team has contacted them with the solution! Please ask them to sign in to GoFundMe and check their account. Return to Campaign

Are you ready for the next step?
Even a $5 donation can help!
Donate Now Not now
Connect on Facebook to keep track of how many donations your share brings.
We will never post on Facebook without your permission.