Whooshers.com Pulsatile Tinnitus Funds

$1,800 of $5,000 goal

Raised by 24 people in 50 months
Whoosh Whoosher  NEW YORK, NY
My name is Emma Greenwood, and I am the founder of Whooshers.com, a web site devoted to pulsatile tinnitus. Pulsatile tinnitus is a symptom often described as a whooshing, pulsing sound that is in sync with the patient's heartbeat.  Pulsatile tinnitus is a different symptom from the regular, more common form of tinnitus, for which there is no cure.


Whooshers.com provides information and support for pulsatile tinnitus patients and the medical professionals who treat them, as well as for family and friends of those impacted by this rare symptom.

Our community is petitioning several organizations and people serving in the World Health Organization's Steering Group for a formal diagnosis code for pulsatile tinnitus.  As of now, there is no diagnosis code for our symptom, which means many of us are being misclassified, misdiagnosed and not evaluated properly.  We have reached over 1000 signatures on the petition, which was our goal. 


These funds are being raised to help with costs associated with printing the pages (over 125!) and mailing them around the world.  We'd like to send the petition to as many people on the committee as possible.  When possible we will send electronic copies, but printed copies will be necessary. 

To see our petition and some of the parties we intend to contact please go to: http://www.change.org/petitions/pulsatile-tinnitus-is-not-tinnitus-create-a-pulsatile-tinnitus-diagnosis-code-icd-10-cm

All funds will go towards the expenses associated with circulating the petition.  If there are any extra funds, 100% of them will go towards maintenance of Whooshers.com, organizing more Whooshers Unite! events, and other support activities for our community.


Thanks for your support!


Yours in the Whoosh,


Emma Greenwood

Founder

Whooshers.com


*Whooshers.com is not yet a registered 501(c)(3) but we're working on that!  For questions about taxes, please consult a tax professional.  


12/30/12

Thanks so much for the overwhelming support!  Originally this was created to raise money to help pay for costs associated with circulating the petition.  In less than one day we made our goal of $500!  I've been overwhelmed with the generosity.  I've raised the cap on this to $5000 to give people the opportunity to contribute if they want to. All funds will go towards circulating the petition, and additional funds will support Whooshers.com and the creation of a nonprofit organization for our community.  Every penny!


Thank you so much!


Emma

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$1,800 of $5,000 goal

Raised by 24 people in 50 months
Created December 29, 2012
KE
$25
Katrina Easton
6 months ago

site has provided invaluable information for us, thank you for all your hard work!

$50
Anonymous
14 months ago
$200
Anonymous
27 months ago
NO
$50
Nancy Oakes
41 months ago

Thank you Emma!

BM
$150
beverly mack
41 months ago
LW
$50
Lisa W.
41 months ago
$100
Denise Mirco
43 months ago

Emma, thanks to all your hard work and the Whooshers.com site I was able to persist and finally get a diagnosis and cure.

KG
$25
Kathie Gilson
43 months ago

Emma, thank you for all your hard work and dedication.

EG
$100
Everett Glover
43 months ago

Happy to help...

WT
$20
wendy timlin
45 months ago
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