Wheelz4Nate

$515 of $8,000 goal

Raised by 14 people in 34 months
This is Nate......  he is a very special one of a kind boy with a very RARE CONDITION and a long list of health issues. Because of these health issues Momma cannot work outside of the home and so they must live off the limited allotment he gets because of his disability.

We have set up this account because there is just no other way for him and his momma to get the one thing they really need!!!!

And what his family really needs is a vehicle!!

A good reliable vehicle that will accomodate him and his wheelchair. A vehicle that can not only get him and Momma back and forth to the store and to his local checkups  but because he must be carfully monitored by his endocrineologist and other specialists twice a year they must go up to his specialist in Gainsville, Fl. ( a 3 hour drive from where he lives) 

About a year and a half ago their car broke down and they brought it to the mechanic to be fixed. Well for some reason that we do not know the mechanic closed up shop and took the car with him and did not tell us!!
There is a police investigation underway.
Nate and his momma have been begging rides to the doctors and to the stores.

the money donated to this site will be used to get a good running vehicle. 

Below is  more detailed information about our special little man.


He is the only known person in the USA with Pro-opiomelanocortin Deficiency Disorder (2p23.3) and SIM1 ( 6q16.3) And it seems he is the only person in the world with this combination. Making him truly ONE OF A KIND.

These are BOTH rare genetic disorders and he deals with many life threatening challenges on a daily basis.
None of his Endocrine glands work properly which means He has:
1)Adrenal Insufficiency- A life threatening issue
2)Hypothyroidism- A life threatening issue
These are also classified as auto-immune disorders and therefore he must avoid all and any that are sick, even something as 'minor' to you and I such as a 24 hour tummy bug can and has but him in the E.R.
3)Hypothalamic Disorder which means he cannot control his body's temperature, yes, potentially life threatening too,
4)Hypopituitaryism this is the Master gland and because it is 'abnormal' the rest of his glands don't work at all or not very well.
5)Hyperphagia- A life threatening issue
a constant unsatisfiable appetite that is leading to life-threatening weight gain which can be very rapid even on a low-calorie diet. He MUST be supervised at all times in all settings where food is accessible.Imagine always being hungry and NEVER feeling full.
On top of that a almost NON existent metabolism (and with all that he is on a strict diet of only 600 cal. daily)
He also has Developmental Delays, Hypotonia - Low muscle tone, Sensory Processing disorder (SPD) , PDD/NOS this is on the spectrum and He has many Autistic Issues, Obstructive Sleep Apnea (OSA) and Extended Linear Growth, Trichotillomania


*Side note:
Supporters can also help by going to his Facebook page
www.facebook.com/POMCmomma
and PLEASE leave a message!!
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Update 6
Posted by Nathaniel McKee And Karen Snizek
23 months ago
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2
2
Hello all.
I want to say a huge thank you to everyone that has been sharing our site. I apreciate all the activity and I have to hold on to the hopes that soon we will have enough to get a vehicle of our own.
Bless you all. and PLEASE keep sharing
Peddaling around town
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Update 5
Posted by Nathaniel McKee And Karen Snizek
24 months ago
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PLEASE SHARE
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Update 4
Posted by Nathaniel McKee And Karen Snizek
25 months ago
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Please help
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Update 3
Posted by Nathaniel McKee And Karen Snizek
28 months ago
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Hello everyone!

let me tell you a bit about the car we had...my Subaru (oh how I loved it!) finally broke down late last year sometime and it was towed to our mechanic. He said that he could fix it for me! I was of course thrilled because a running car with no A.C. was better than no car. And so it sat at his shop....for months, I would call or stop by every once in a while to check on him and he said that business has picked up and that he was down a mechanic but he would get to it...

not to worry.

And so I didn't worry...

well not about the car anyhow.

Well in July before we moved to our new place I called him once again and said to go ahead and get the parts and I would even be able to pay for some of it, he had offered to donate all parts and cost out of the goodness of his heart. But I thought that if I offered to help he would see how important it was to me. I also stopped in a few times just to say hi and to see how things were going

And so the big HORRIFIC time we had with the move and it was not until a few weeks after it was all done that I went up to that part of town.....and his shop is closed and he is GONE. And he took my car with him!!!!I have tried calling him and I have left a message on his business Facebook account.

I have contacted the police, we did a police report and there have been no leads what-so-ever

Now I don't even have a broken car that I can use as trade in or to sell for junk.

I am thankfully able to walk to the stores and bank as they are closer, but there have been times because of the weather we just had to do without because we just couldn't walk.

THANK YOU ALL FOR YOUR LOVING SUPPORT
If you are unable to help us finacially would you please share this with others?
thank you!!

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$515 of $8,000 goal

Raised by 14 people in 34 months
Created June 11, 2014
$75
Trudy Kerley
19 months ago
SG
$100
Sarah Gettler
19 months ago
VK
$20
vanessa kelly
23 months ago
2
2
$20
Anonymous
23 months ago
2
2
TK
$100
trudy kerley
24 months ago
2
2

thank you and NATE for the shirts and awareness bands!

$10
Anonymous
24 months ago
2
2
WS
$100
Wendy Steller
25 months ago
2
2
JS
$10
jennifer schaller
25 months ago
2
2
PM
$10
Paula Mewies
25 months ago
2
2

Love you Nate and mama x

$10
Nina Jain
28 months ago
2
2

Lots of love to your little guy!

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